It has been another LOoooooooooo day for Lee. The blood pressure is still so low that he just wants to sleep all the time. He says he feels terrible and has no energy. Every time he trys to get up he gets very light-headed. His BP has been around 80-88/60 all day. I called the nurse lung coordinator and told her I cut his dose in half last night and this a.m. but he is still too low. She said to take him to the emergency room. I told her we had been there, done that and everything checked out fine. All his breathing tests that we do here are fine and all his other vitals are normal. I reminded her that he was fine until discharge from the hospital and the MD doubled some of his meds. The discharge nurse even questioned his decision to do that. I also reminded her that we have an appointment at the clinic tomorrow. She relented and said that the medication would be changed tomorrow and to omit the dose for tonight and tomorrow. Thank Goodness. I don't believe I would have been able to convince Lee to go back to the ER.
I am hoping that with the elimination of the med tonight and in the a.m. I will be able to get him to the clinic tomorrow. I am afraid to walk him with the low BP. Two of the guys @ the CFL have "blacked-out" and had disastrous results from the fall. One guy who had one lung about the time Lee had his......had this to happen and broke ribs on the new lung side. He had to be in the hospital for several days with chest tubes, etc to drain all the blood that had accumulated around his new lung. As you can see, Lee must have a blood pressure of at least 100/? to get on his feet.
We are looking forward to tomorrow and anticipate some changes in his medication. Hopefully the remainder of the week will allow him to begin to walk and get back into his rehab which is so important. That is our key to returning home!
Thank you all for being there for us. I can't tell you how therapeutic it is for me to write each day knowing I have you there. When I can write it all down and read it, I am able to deal with each crisis that arises.
More Later.......................................Brenda
Oh, just know that I am thinking about the two of you -- and I have been thinkig about you all day. Brenda, I made your lasagna today for lunch, but I must have left something out - cause it wasn't nearly as good as yours. I have been watching Little House on the Prarie all afternoon for this lazy Sunday.
ReplyDeleteI just know that with those meds out of his system, he'll be ready to take on the world tomorrow. I can't wait to hear from you then.
Much love --Bonnie
Brenda, I know what you mean about the Dr. and medication. Debbie and I had the same problem with a medication and I had the heart go crazy and I had to be shock. If your "gutt" feeling is that the medication is wrong, then stop ask why,check and ask if they have talked this over with the other Drs.. If they get offended, then you and Lee don't want them in the first place. The lung and heart Drs. are a team and 1 Dr. should not change medication without the others agreeing. Take care and remember there's a lot of people in Lincoln County and FBC that's praying and "rooting" for your guys. Take care and get some rest.
ReplyDeleteI agree with Bill's comments - all the doctors should ALL be on the same page - but seems they are taking their sweet time - maybe time to put some fire under them and get them to sit up and pay attention! Seems like Lee will never get the chance to rehab and that has to be very frustrating! Hang in there and let me know if I need to come down there and 'chat' with those doctors!! :o) Love you both! Elizabeth
ReplyDeleteJust want you two to know that we are still backing you up with a lot of positive thinking, a lot of praying and much love. Sorry things have been so slow. I know you both are so ready for things to normalize. We will continue praying to that end. Dixon and Carolyn
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