Sorry to be so late in returning to blogging.........just that time of year when I really need more hours in each day!
Before leaving Durham, we received a good report from the doctor. Two of his medications were decreased and she said that if the Bronchoscopy, that was to be that afternoon, was without infection or rejection then he would not have to have another before Feb. We were delighted to hear that. All his labs were within normal limits and the chest x-ray and lung function tests were very good.
We were able to enjoy a short visit from my brother Dennis and a dinner with Jerry and Gloria from Wilmington. It was good to have enough time for those visits. Wednesday was an overwhelming day that began at 7:15 a.m. and ended at 7:15 P.M. Clinic, Dr. and Bronk all in one day! That was very tiring for me let alone what it does for Lee.
Lee was able to drive all the way to Durham and I drove on the return trip. (No driving until 24 hours post Bronk). Since he has been home he has been coughing more and more. I was becoming very concerned about the cough but decided it was probably some irritation from the bronchoscopy as he has done that before. This cough; howevcr did not want to stop.
The Lung transplant coordinator called to reiterate the above reports but also added that the biopsy did show a fungus in the lung. So that is why he is coughing so much. On Monday the special medication will be delivered to us and must be administered vial special breathing apparatus. In addition he will begin on an oral anti-fungal medication. (This had to be special order through Wal-green). Hopefully by the end of this next week the cough will be gone.
You may be wondering why he got the fungus. This is not at all uncommon in post lung transplant. The new lung is moist, not dry like our normal lungs are and he now has no immune system. His white cell count has been lowered to 2 (normal is 9) and that gives you some idea of how vulnerable he is. He only has to breathe the outside air and if the wind is carrying some microbial spores of fungi and it gets in his nose or mouth, then he has a perfect place in the moist, dark lung for it to multiply. So, as you can see, just being outdoors can be detrimental to Lee. We are gradually learning all the precautions that must be taken and more and more learning how important is is for his survival.
Other than that, he seems to feel o.k. Energy level is low right now. We were hoping to begin an exercise program in Hickory next week and will still try for that.
Meanwhile, the shopping, baking and wraping of gifts continues with all the joys of this very special Holiday season.
More Later......................................Brenda
Sunday, December 12, 2010
Monday, December 6, 2010
Long time, No Blog
As you can see, a lot of time has passed since I last blogged. I have been unbelievably frantic with so much to do during this season. It is so good to be home that I want you to know that I am not complaining, just out of time. Since Thanksgiving there has been the usual hustle and bustle of decorating the house, the trees, shopping and all those wonderful things we do for Christmas. This has been a little more difficult this year because I usually shop all year, beginning in January and last year did not allow that. So I did get behind in my shopping.
Lee is doing great. He still has some down days but they do not last long. He just can't seem to get rid of the cough that plagues him from time to time. He is enjoying leaving by himself and driving his truck wherever he wants to go. He still cannot do any work that he enjoys but that will come with time. He walks mostly with or without his cane and that is a good thing. His strength is not returning as fast as I would like to see, but then again, I must remember what his body has been through. We are leaving today for Durham for the routine monthly appointment and for the bronchoscopy. I really think he will be fine after that. His new lung just needs to be irrigated. Unfortunately it is part of this process to have mucuous to accumulate in the new lung the first year or until the lung finally begins to adjust.
So I have little time to write...........needed to touch base if you are still there. We are looking forward to seeing Dennis for a short while at the clinic and Jerry and Gloria have the same schedule. We will be at Duke Towers again. Will follow up when we return.
More later.............................Brenda
Brenda
Lee is doing great. He still has some down days but they do not last long. He just can't seem to get rid of the cough that plagues him from time to time. He is enjoying leaving by himself and driving his truck wherever he wants to go. He still cannot do any work that he enjoys but that will come with time. He walks mostly with or without his cane and that is a good thing. His strength is not returning as fast as I would like to see, but then again, I must remember what his body has been through. We are leaving today for Durham for the routine monthly appointment and for the bronchoscopy. I really think he will be fine after that. His new lung just needs to be irrigated. Unfortunately it is part of this process to have mucuous to accumulate in the new lung the first year or until the lung finally begins to adjust.
So I have little time to write...........needed to touch base if you are still there. We are looking forward to seeing Dennis for a short while at the clinic and Jerry and Gloria have the same schedule. We will be at Duke Towers again. Will follow up when we return.
More later.............................Brenda
Brenda
Friday, November 26, 2010
Plenty for Twenty
Thanksgiving was truly a wonderful holiday filled with plenty of good food, many of our family members and many blessing to be thankful for. Our day began early and the 20 lb turkey was in the oven by 6:30 a.m. The day began with a flurry of activities in the kitchen.
Doug was the first to arrive, followed by Todd. They both came early to help while their wives and children stayed at the other grandmother's helping her begin the preparations for the evening meal. Ours was to be a noon meal. The boys began by bringing our storage of prepared food from the lower level kitchen to the upper one. They were also the master carvers of the turkey and presented us with a tray fit for the finest chef. My tables were set for the expected 17. Within minutes, more family arrived and we were surprised to see our grandaughter, Rebekah and boyfriend Adam along with grandson Daniel. We did not think they would come since they usually go to the other grandparents for the noon meal. I quickly arranged the table to accomodate three more!
Around 11:30, the house began to fill as the rest of the family arrived. The girls all carried casseroles and more trays of food to add to the table while I held all the little children at bay as they entered the door. I was immediately surrounded by five little boys, ages ranging from 5 to 12, and two grandaughters ages 12 and 14. I explained to all that since they were school children, a purple mask must be worn to protect their grandaddy. They all complied and even seemed to enjoy wearing the purple "protection" for their grandaddy. Each time they entered a room in his presence, the mask came up. They were all especially thoughtful.
What a joy it was to once again be with our family and enjoy this holiday. We all gathered in a circle in the living room prior to eating and expressed our gratitude for having Grandaddy Lee with us again this year. This had marked exactly one year ago when he became ill. After feasting, I was able to relax while all the girls cleaned the tables, dishes, etc. I was truly blessed!
Later, Michaela(14) played the guitar and sang some of her songs and after the boys finished a game of tag football on the lawn I was able to convince them to play the piano for me. Max(5) played first and we named his beautiful song, "Running Waters", since he enjoyed rippling over the keys. Carson (9) followed with his recital piece and Chase(12) played his very own composed music. Truly a joy for his Nana!
Today as I talked to my brother Dennis, I learned that Betsy's mother died earlier this morning. She had a stroke two weeks ago and another one today. Please remember their family in your prayers. Betsy's Mom, Alice Newton was a wonderful, genteel lady and I will remember her with great fondness.
So good to be able to blog a little now. Lee continues to improve and is doing very well. Today he was able to drive his truck for the first time in about a year. He took it for a ride and had it inspected. He now walks mostly with a cane and is indeed enjoying his independence.
More Later...........................................Brenda
Doug was the first to arrive, followed by Todd. They both came early to help while their wives and children stayed at the other grandmother's helping her begin the preparations for the evening meal. Ours was to be a noon meal. The boys began by bringing our storage of prepared food from the lower level kitchen to the upper one. They were also the master carvers of the turkey and presented us with a tray fit for the finest chef. My tables were set for the expected 17. Within minutes, more family arrived and we were surprised to see our grandaughter, Rebekah and boyfriend Adam along with grandson Daniel. We did not think they would come since they usually go to the other grandparents for the noon meal. I quickly arranged the table to accomodate three more!
Around 11:30, the house began to fill as the rest of the family arrived. The girls all carried casseroles and more trays of food to add to the table while I held all the little children at bay as they entered the door. I was immediately surrounded by five little boys, ages ranging from 5 to 12, and two grandaughters ages 12 and 14. I explained to all that since they were school children, a purple mask must be worn to protect their grandaddy. They all complied and even seemed to enjoy wearing the purple "protection" for their grandaddy. Each time they entered a room in his presence, the mask came up. They were all especially thoughtful.
What a joy it was to once again be with our family and enjoy this holiday. We all gathered in a circle in the living room prior to eating and expressed our gratitude for having Grandaddy Lee with us again this year. This had marked exactly one year ago when he became ill. After feasting, I was able to relax while all the girls cleaned the tables, dishes, etc. I was truly blessed!
Later, Michaela(14) played the guitar and sang some of her songs and after the boys finished a game of tag football on the lawn I was able to convince them to play the piano for me. Max(5) played first and we named his beautiful song, "Running Waters", since he enjoyed rippling over the keys. Carson (9) followed with his recital piece and Chase(12) played his very own composed music. Truly a joy for his Nana!
Today as I talked to my brother Dennis, I learned that Betsy's mother died earlier this morning. She had a stroke two weeks ago and another one today. Please remember their family in your prayers. Betsy's Mom, Alice Newton was a wonderful, genteel lady and I will remember her with great fondness.
So good to be able to blog a little now. Lee continues to improve and is doing very well. Today he was able to drive his truck for the first time in about a year. He took it for a ride and had it inspected. He now walks mostly with a cane and is indeed enjoying his independence.
More Later...........................................Brenda
Friday, November 19, 2010
Preparations for the Holiday
Earlier this evening I had decided that I would not have the time to write this blog tonight. Writing, however, releases so much of my stress that I sometimes feel compelled to write. I have been very busy with food preparation for Thanksgiving and we are both looking forward to having our family gathering here once again. Today I made a carrot cake with some black walnuts that I had in the freezer. Later I was able to make the pie crusts for the traditional pumpkin pies. What a joy to be able to participate in the preparations for this Thanksgiving Holiday.
There were so many times during the past year that I doubted whether or not we would be able to have this celebration again. There were so many times that I was afraid we would lose Lee. As I write this blog I can share with you the good news that the husband who was with us last year for Thanksgiving is indeed here today and looking forward to seeing all the children and grandchildren next Thursday. I'm hoping he will once again be our master carver of the turkey.
Today was another good day for Lee. The lung transplant coordinator called and gave us the update on all his lab work that was done on Tuesday. We were told to lower his anti-rejection drug and that his potassium level is now within the normal range. That was good news. To date, Lee has not shown any signs of rejection and that was one of his main concerns. He has prayed that he would not reject his new lung. We walked at the Family Life Center walking track again this morning and then left to visit the Bill Canipe family @ noon. Please remember to pray for Debbie and Bill's son, Bradley. They are both going through the pain of loss of a loved one.
Once again, Lee decided to take a drive all by himself this afternoon. He now walks more and more with just the cane and is sometimes able to actually do a few small chores. I believe he is enjoying his new-found independence as much as I am!
I will be very busy with all sorts of preparations for the next few days and may not have time to visit with you on the blog. I'm glad some of you are still there and I look forward to writing to you again after the Thanksgiving Holiday. Enjoy your Turkey, your football games and your family.
More Later................................Brenda
There were so many times during the past year that I doubted whether or not we would be able to have this celebration again. There were so many times that I was afraid we would lose Lee. As I write this blog I can share with you the good news that the husband who was with us last year for Thanksgiving is indeed here today and looking forward to seeing all the children and grandchildren next Thursday. I'm hoping he will once again be our master carver of the turkey.
Today was another good day for Lee. The lung transplant coordinator called and gave us the update on all his lab work that was done on Tuesday. We were told to lower his anti-rejection drug and that his potassium level is now within the normal range. That was good news. To date, Lee has not shown any signs of rejection and that was one of his main concerns. He has prayed that he would not reject his new lung. We walked at the Family Life Center walking track again this morning and then left to visit the Bill Canipe family @ noon. Please remember to pray for Debbie and Bill's son, Bradley. They are both going through the pain of loss of a loved one.
Once again, Lee decided to take a drive all by himself this afternoon. He now walks more and more with just the cane and is sometimes able to actually do a few small chores. I believe he is enjoying his new-found independence as much as I am!
I will be very busy with all sorts of preparations for the next few days and may not have time to visit with you on the blog. I'm glad some of you are still there and I look forward to writing to you again after the Thanksgiving Holiday. Enjoy your Turkey, your football games and your family.
More Later................................Brenda
Thursday, November 18, 2010
He's on the Move!
Lee has had a phenomenal week! I can see his strength returning each day. He is now able to move about freely throughout the house without the aid of a walker or a cane. He does, however, use the walker first thing in the morning to navigate from the bedroom to the den.
Today we both had dental appointments for cleaning, x-ray and general check-up. Lee had not been to the dentist in over a year and we were concerned about some obvious staining of his teeth. We suspected that it was due to some of his medication and were afraid it might be permanent. Good news is that it is due to the oral nystatin (swish) that he must use four times a day. The hygienist was able to remove it all and he is now scheduled for cleanings every three months.
This afternoon Lee decided to go for a drive all by himself. When he left around 4:30 p.m. he told me he was making some special deliveries to some of the neighbors and not to expect him back until after dark. Wow! that was a surprise to me! It was a good feeling to watch him leave with just the cane and to be able to drive away. He was back around 6:00 and I have to confess that letting him go like that was akin to the first time one of my teen drivers left alone! You see, we have been practically "glued at the hip" for the past year and I have assumed a more responsible role in our relationship. It is good to finally see Lee developing more independence and releasing me. At the same time, I am having to wean myself from my more "parental" role that was imposed upon me due to his illness.
Even though I am filled with joy with Lee's progress, it is with sadness that we both had to experience the loss of our good friend, Bill Canipe today. Bill was anticipating the possibility of becoming a successful candidate for lungs @ Duke. Unfortunately he was too ill by the time he got there and had to be hospitalized. Please remember his wife Debbie and family in your prayers. Bill & Debbie were such great supporters for us during our entire time @ Durham. We will miss him very much.
My prayer is that each of you will enjoy your family this Thanksgiving. Cherish the time you have together and the memories you will be making. We plan to do the same.
More Later.................................Brenda
Today we both had dental appointments for cleaning, x-ray and general check-up. Lee had not been to the dentist in over a year and we were concerned about some obvious staining of his teeth. We suspected that it was due to some of his medication and were afraid it might be permanent. Good news is that it is due to the oral nystatin (swish) that he must use four times a day. The hygienist was able to remove it all and he is now scheduled for cleanings every three months.
This afternoon Lee decided to go for a drive all by himself. When he left around 4:30 p.m. he told me he was making some special deliveries to some of the neighbors and not to expect him back until after dark. Wow! that was a surprise to me! It was a good feeling to watch him leave with just the cane and to be able to drive away. He was back around 6:00 and I have to confess that letting him go like that was akin to the first time one of my teen drivers left alone! You see, we have been practically "glued at the hip" for the past year and I have assumed a more responsible role in our relationship. It is good to finally see Lee developing more independence and releasing me. At the same time, I am having to wean myself from my more "parental" role that was imposed upon me due to his illness.
Even though I am filled with joy with Lee's progress, it is with sadness that we both had to experience the loss of our good friend, Bill Canipe today. Bill was anticipating the possibility of becoming a successful candidate for lungs @ Duke. Unfortunately he was too ill by the time he got there and had to be hospitalized. Please remember his wife Debbie and family in your prayers. Bill & Debbie were such great supporters for us during our entire time @ Durham. We will miss him very much.
My prayer is that each of you will enjoy your family this Thanksgiving. Cherish the time you have together and the memories you will be making. We plan to do the same.
More Later.................................Brenda
Monday, November 15, 2010
Familiar sightings of home
As Lee and I were riding to the Family Life Center for our walking exercise, I was more aware of the familiar sightings along the way. Only in our country area of Vale can you find names of rural roads like "June Bug Lane, Cat Square and Hog Hill." Many of our rural roads are named after the families who either settled there first and laid claim to the area or they are named after that family because of the number of family members who currently reside there. Our road is named after two families, who at one time joined into marriage, thus the combined name of the road. Our roots here do not go deep enough to merit the naming of a road, however, when my brother wrote a book that included the geneology of my father's family, I learned that my roots in this county go back to the late 1700's. I have not to date found any roads named after the "Hermans" or the "Kanipes".
Exercise today was very good for Lee. He was able to walk for 30 minutes and I walked for 40 minutes. I met with a friend from church and she and I were able to catch-up on news in our absence. It is always easier to walk with a buddy. Afterwards there were the usual errands to run, then home for lunch followed by Lee's breathing treatment. This afternoon I decided to get a start on holiday baking and made two pecan pies. Later this evening a neighbor brought a freshly made pumpkin pie (with the pumpkin from his patch)......yum!
Since we have been home we have been the recipients of many home made goodies. We have Robert's famous sourdough rolls now residing in the freezer in anticipation of one of the holiday meals. Another friend from church brought a delicious pumpkin pie over last week. Margaret has given us some of her really good pimento cheese among other things. In addition, so many of Lee" farmer friends have been by to help feed the farm critters and cows and to always stop along the way to the convenience site. We are indeed blessed.
We did go to church on Sunday............only to our SS class. It was wonderful to see all of our old friends again. Lee wore a purple mask and a blue glove. Quite the dapper fellow! Everyone was very cautious to keep distance, to avoid hugs and handshakes. Lee spoke briefly to the class and reminded them that when he had to leave a year ago there were only about 12 people in our class. Sunday there were 28 and he reminded them that he did not want to have to go away again just to get new members in the class! We are so grateful to all of our friends for their support and prayers and the many vigils that were kept on our behalf. God's blessing to us.
This afternoon Lee's farm buddies came over and they had a "social hour" in Lee's "Man's room" in the basement. It is so good to see him able to return to some of his previous activities.
All in all, this has been another wonderful day in Vale. So good to be home!
More Later.........................................Brenda
Exercise today was very good for Lee. He was able to walk for 30 minutes and I walked for 40 minutes. I met with a friend from church and she and I were able to catch-up on news in our absence. It is always easier to walk with a buddy. Afterwards there were the usual errands to run, then home for lunch followed by Lee's breathing treatment. This afternoon I decided to get a start on holiday baking and made two pecan pies. Later this evening a neighbor brought a freshly made pumpkin pie (with the pumpkin from his patch)......yum!
Since we have been home we have been the recipients of many home made goodies. We have Robert's famous sourdough rolls now residing in the freezer in anticipation of one of the holiday meals. Another friend from church brought a delicious pumpkin pie over last week. Margaret has given us some of her really good pimento cheese among other things. In addition, so many of Lee" farmer friends have been by to help feed the farm critters and cows and to always stop along the way to the convenience site. We are indeed blessed.
We did go to church on Sunday............only to our SS class. It was wonderful to see all of our old friends again. Lee wore a purple mask and a blue glove. Quite the dapper fellow! Everyone was very cautious to keep distance, to avoid hugs and handshakes. Lee spoke briefly to the class and reminded them that when he had to leave a year ago there were only about 12 people in our class. Sunday there were 28 and he reminded them that he did not want to have to go away again just to get new members in the class! We are so grateful to all of our friends for their support and prayers and the many vigils that were kept on our behalf. God's blessing to us.
This afternoon Lee's farm buddies came over and they had a "social hour" in Lee's "Man's room" in the basement. It is so good to see him able to return to some of his previous activities.
All in all, this has been another wonderful day in Vale. So good to be home!
More Later.........................................Brenda
Saturday, November 13, 2010
Sweet Saturday
I call this "Sweet Saturday" because in trying to describe it that just seemed to fit. Lee and I began our Saturday with coffey and followed that with Lee's choice of pancakes with peaches. We still have lots of peaches in the freezer and these are the ones that came from Lee's small peach orchard behind the gazebo in our backyard. We both believed they were just the best we had tasted because they were cultivated and harvested by Lee in the Summer of 2009. We consumed this tasty breakfast with thankful hearts.
Our routine here is beginning to be more normal for the two of us. Our mornings are filled with personal care, breakfast, all the medications, exercises and the logging of all the activities and stats that are required by Duke. For me, of course, other chores must be sandwiched in between. The laundry must be done and the house kept tidy. By the time we have finished, it is time for lunch and more medication and more log ins of transactions. We really do not have any free time until the afternoons.
Currently our week is something like this:
Monday-Wednesday-Friday: To the Family Life Center @ church to walk and do weights
Tuesday -Thursday-Saturday: Focus on personal care other than routine baths
Sunday: Hopefully soon, church (not tomorrow since Lee's BP is too low and his K is too high!
All in all, this has been a day more similar to the way we "were". I washed windows and did a lot of laundry. Lee was able to take the golfcart to the shed and meet with a buyer for some of his farm equipment. He is on the phone often with business and other interest.
We encourage visitors to call and arrange a time in the afternoons between 1:00 & 5:00. We continue to limit visitor time and at the moment have decided that it is in Lee's best interest to have all visitors to mask when entering the house. At first we did not do this but in light of this being the flu and cold season from here through March, I feel that it is in Lee's best interest to do this. I have to admit that I have a certain degree of paranoia in regards to Lee catching something. I ask you to please be forgiving of me in that regard. After being in and out of hospitals for a year and being away for 5 straight months, I really do not want to have to leave again. I ask you to be patient with me because an illness for Lee means a return to Duke and a hospitalization once again. Wearing a mask and using hand sanitizer is a small request considering the consequences that may occur when this is not done.
I want to thank those of you who continue to follow me on this blog. It is a way for me to communicate and at the same time it allows me to experience the support that I know I have from all of you.
More Later...........................................Brenda
Our routine here is beginning to be more normal for the two of us. Our mornings are filled with personal care, breakfast, all the medications, exercises and the logging of all the activities and stats that are required by Duke. For me, of course, other chores must be sandwiched in between. The laundry must be done and the house kept tidy. By the time we have finished, it is time for lunch and more medication and more log ins of transactions. We really do not have any free time until the afternoons.
Currently our week is something like this:
Monday-Wednesday-Friday: To the Family Life Center @ church to walk and do weights
Tuesday -Thursday-Saturday: Focus on personal care other than routine baths
Sunday: Hopefully soon, church (not tomorrow since Lee's BP is too low and his K is too high!
All in all, this has been a day more similar to the way we "were". I washed windows and did a lot of laundry. Lee was able to take the golfcart to the shed and meet with a buyer for some of his farm equipment. He is on the phone often with business and other interest.
We encourage visitors to call and arrange a time in the afternoons between 1:00 & 5:00. We continue to limit visitor time and at the moment have decided that it is in Lee's best interest to have all visitors to mask when entering the house. At first we did not do this but in light of this being the flu and cold season from here through March, I feel that it is in Lee's best interest to do this. I have to admit that I have a certain degree of paranoia in regards to Lee catching something. I ask you to please be forgiving of me in that regard. After being in and out of hospitals for a year and being away for 5 straight months, I really do not want to have to leave again. I ask you to be patient with me because an illness for Lee means a return to Duke and a hospitalization once again. Wearing a mask and using hand sanitizer is a small request considering the consequences that may occur when this is not done.
I want to thank those of you who continue to follow me on this blog. It is a way for me to communicate and at the same time it allows me to experience the support that I know I have from all of you.
More Later...........................................Brenda
Wednesday, November 10, 2010
Warp Speed
Funny how much faster time seems to be moving since our return home to Vale! While in Durham, the days seemed to just drag by most of the time. Since returning, it seems that we leave one Wednesday only to be there again suddenly! I think a lot of that has to do with being so glad to be home again and also with the age we are now. As we get older, the time actually does move at "warp speed."
I thought I would share today with you and let you see for yourself just how well Lee is doing. Our day began early as we had to leave for the weekly bloodwork at our physician's office. Once again, Lee was given the V.I.P. treatment and we were finished within 20 minutes or so and were on our way to breakfast at Bojangles. It was there that we met our dear friend Robert and also met some friends of Lee's from long ago childhood years. After our meal, we went to the Family Life Center at our church to check out the walking tract above the gym and the weight room. Lee has decided to do his fitness exercises there because it is both convenient and crowd free. We have both decided to go on Monday, Wednesday and Friday. I will be joining him on the walks and the weights. We can become a physically fit "couple".
Our transplant lung coordinator called this evening and was quite pleased to get the results of all Lee's lab tests. She said they were all "perfect"! She asked how he was enjoying his time at home and said that since he was doing so well we only had to do the lab work every two weeks instead of each week.
Today was such a wonderful day! The weather was a perfect 72 degrees with lots of sunshine. Lee was able to take the golfcart out into the yard and pick up some of the pecans from the four pecan trees. After lunch I could not resist getting outside and cleaning some of my flower beds. After that I tackled some of the windows and topped the day off with a big supper of potroast with all the trimmings. We shared with Jennifer, Lee Jr and children. It was quite the "Walton" family gathering! So good to be back in my big kitchen enjoying cooking for family and able to see my backyard from my kitchen window (that is now sparkling clean!).
Tonight as I write, we are a typical couple enjoying after dinner time in our home. Lee has a football game on while he is reading the local newspaper and I am catching up on blogging and visiting with you for a short while. Our experience @ Duke seems in the past and we are looking forward to the good lifestyle that we are beginning to enjoy. We know that we will always be connected to Duke and it is indeed comforting to know they are there.
As we approach this Thanksgiving season we are reminded of our prayers of thankfulness for the gift of Lee's lung.
More Later................................Brenda
I thought I would share today with you and let you see for yourself just how well Lee is doing. Our day began early as we had to leave for the weekly bloodwork at our physician's office. Once again, Lee was given the V.I.P. treatment and we were finished within 20 minutes or so and were on our way to breakfast at Bojangles. It was there that we met our dear friend Robert and also met some friends of Lee's from long ago childhood years. After our meal, we went to the Family Life Center at our church to check out the walking tract above the gym and the weight room. Lee has decided to do his fitness exercises there because it is both convenient and crowd free. We have both decided to go on Monday, Wednesday and Friday. I will be joining him on the walks and the weights. We can become a physically fit "couple".
Our transplant lung coordinator called this evening and was quite pleased to get the results of all Lee's lab tests. She said they were all "perfect"! She asked how he was enjoying his time at home and said that since he was doing so well we only had to do the lab work every two weeks instead of each week.
Today was such a wonderful day! The weather was a perfect 72 degrees with lots of sunshine. Lee was able to take the golfcart out into the yard and pick up some of the pecans from the four pecan trees. After lunch I could not resist getting outside and cleaning some of my flower beds. After that I tackled some of the windows and topped the day off with a big supper of potroast with all the trimmings. We shared with Jennifer, Lee Jr and children. It was quite the "Walton" family gathering! So good to be back in my big kitchen enjoying cooking for family and able to see my backyard from my kitchen window (that is now sparkling clean!).
Tonight as I write, we are a typical couple enjoying after dinner time in our home. Lee has a football game on while he is reading the local newspaper and I am catching up on blogging and visiting with you for a short while. Our experience @ Duke seems in the past and we are looking forward to the good lifestyle that we are beginning to enjoy. We know that we will always be connected to Duke and it is indeed comforting to know they are there.
As we approach this Thanksgiving season we are reminded of our prayers of thankfulness for the gift of Lee's lung.
More Later................................Brenda
Sunday, November 7, 2010
Sunday Morning
Our second Sunday at home. This has been an uneventful week so far as being negative, but a very eventful week on the positive side. Lee continues to improve on the breathing test that we daily log. We are very encouraged because this test is the one that is most indicative of his progress and his recovery. Today I almost did a cheer because he had the highest level since his surgery on June 23! Now that is something to cheer about!
I can't tell you how good it feels to be able to reach our children, relatives, neighbors and friends in a short while. While we were in Durham, the three hour chiasm seemed much greater. Now we are minutes from those who are such a part of our daily lives. On the other hand, we miss our family in Raleigh whom we had become accustomed to calling and seeing almost on a daily basis. In spite of the unfortunate circumstances that contributed to our relocating to Durham, it offered me the wonderful opportunity to reunite with Roger & Genice, Dennis & Betsy and to Michele Sever. What a blessing to know that with just a phone call they were immediately accessible to us when needed. I felt especially blessed to be able to spend the time with my brother and his wife, Betsy. Our separation began many years ago when they became foreign missionaries to Colombia, South America and later to Quito, Ecuador. This separation continued over the span of 14 years. When they came back to the states, it was to live in a state other than N.C. to reside for 7 years. We were thrilled when they announced the move to Raleigh 12 years ago. For Dennis and me, my time in Durham was a time to reacquaint ourselves as siblings and to recapture so much of our long ago childhood.
As you can see, Lee and I are still transitioning to the move home. We are missing friends and family we had the five months in Durham and we are trying to recapture our lifestyle here with the changes that we are making. It is not quite the same, but it is very good and we know with time that we, too, will adjust.
Sunday morning.......................we would like to have been able to go back to our church today, however, our a.m. schedule is very busy and we would like to make sure it is safe this time for Lee to be in large crowds. Another lifestyle that we must not take lightly. As Lee becomes stronger, and when we feel it is safe we will venture out, especially on Sunday morning.
More Later..........................................Brenda
I can't tell you how good it feels to be able to reach our children, relatives, neighbors and friends in a short while. While we were in Durham, the three hour chiasm seemed much greater. Now we are minutes from those who are such a part of our daily lives. On the other hand, we miss our family in Raleigh whom we had become accustomed to calling and seeing almost on a daily basis. In spite of the unfortunate circumstances that contributed to our relocating to Durham, it offered me the wonderful opportunity to reunite with Roger & Genice, Dennis & Betsy and to Michele Sever. What a blessing to know that with just a phone call they were immediately accessible to us when needed. I felt especially blessed to be able to spend the time with my brother and his wife, Betsy. Our separation began many years ago when they became foreign missionaries to Colombia, South America and later to Quito, Ecuador. This separation continued over the span of 14 years. When they came back to the states, it was to live in a state other than N.C. to reside for 7 years. We were thrilled when they announced the move to Raleigh 12 years ago. For Dennis and me, my time in Durham was a time to reacquaint ourselves as siblings and to recapture so much of our long ago childhood.
As you can see, Lee and I are still transitioning to the move home. We are missing friends and family we had the five months in Durham and we are trying to recapture our lifestyle here with the changes that we are making. It is not quite the same, but it is very good and we know with time that we, too, will adjust.
Sunday morning.......................we would like to have been able to go back to our church today, however, our a.m. schedule is very busy and we would like to make sure it is safe this time for Lee to be in large crowds. Another lifestyle that we must not take lightly. As Lee becomes stronger, and when we feel it is safe we will venture out, especially on Sunday morning.
More Later..........................................Brenda
Thursday, November 4, 2010
"Clinic visit" in Lincolnton
I refer to it as a clinic visit because we are now able to see our family physician for Lee's routine blood work each week. Today was the first day for that. Lee was treated like the "Grand Duke of Wherever" by the entire staff. He was quickly ushered through a private entrance to a treatment room away from a highly trafficked area. There was no waiting.................each person, including his doctor was there to examine him, draw the blood and to do the nasal swab for the RSV test. Truly he had the "red carpet" treatment. Everyone seemed so happy to see him back again and we know that they were genuine in their expression of happiness. The words "Thank-you" seem inadequate, but we do thank-you all so much.
Afterwards, we went to Bo Jangles for breakfast and in spite of the cold rain it was good to be doing what most people are able to do all the time. For us it was a real treat because it was the first time in a year. From there we ran several errands and were back home by noon. This afternoon Lee was visited by his brothers and later his "social buddies" came by for a visit. There is so much motivation here for Lee to become more active. He walks freely throughout the house and this afternoon he walked downstairs and back up again..............that is a first and such good exercise for him. He has already told me that he plans to be able to drive his truck in the next two weeks!
I have been especially relieved to see daily that his breathing stats are staying very good. When those stats begin to drop it always means either fluid retention, infection or rejection. So far, his has been steadily higher! So far, coming home has been the best medicine, not just for Lee, but also for me. I am really enjoying having my own laundry area again. At the condo I could only use the laundry room after 5:00 pm except on week-ends. Now what used to be a chore has actually become a luxury!
We decided to end this chilly, drizzly November day with one of our favorite comfort foods for supper. Hot, oyster stew! We plan to have one more bowl before bedtime. The best sleeping medicine we know.
It is good to be writing again and so good to be writing joyfully. Once again, my cup is full and I am appreciative of the time we have at home with some of our family close by. Because of our experience this past year, we no longer take our time nor our lives for granted. Life and all it offers, is indeed, a gift.
More Later.....................................Brenda
More Later.............................................Brenda
Afterwards, we went to Bo Jangles for breakfast and in spite of the cold rain it was good to be doing what most people are able to do all the time. For us it was a real treat because it was the first time in a year. From there we ran several errands and were back home by noon. This afternoon Lee was visited by his brothers and later his "social buddies" came by for a visit. There is so much motivation here for Lee to become more active. He walks freely throughout the house and this afternoon he walked downstairs and back up again..............that is a first and such good exercise for him. He has already told me that he plans to be able to drive his truck in the next two weeks!
I have been especially relieved to see daily that his breathing stats are staying very good. When those stats begin to drop it always means either fluid retention, infection or rejection. So far, his has been steadily higher! So far, coming home has been the best medicine, not just for Lee, but also for me. I am really enjoying having my own laundry area again. At the condo I could only use the laundry room after 5:00 pm except on week-ends. Now what used to be a chore has actually become a luxury!
We decided to end this chilly, drizzly November day with one of our favorite comfort foods for supper. Hot, oyster stew! We plan to have one more bowl before bedtime. The best sleeping medicine we know.
It is good to be writing again and so good to be writing joyfully. Once again, my cup is full and I am appreciative of the time we have at home with some of our family close by. Because of our experience this past year, we no longer take our time nor our lives for granted. Life and all it offers, is indeed, a gift.
More Later.....................................Brenda
More Later.............................................Brenda
Wednesday, November 3, 2010
The Whistler
This afternoon I was downstairs doing laundry and I heard a familiar sound....................it was a whistle! Lee was whistling for me to get my attention. He was trying to tell me to answer the downstairs phone. I must explain how exciting it was to hear that whistle. You see, Lee has not been able to whistle since last November! His oxygen dependency only allowed for breathing. Since surgery he had so many complications that he was too weak to do anything but once again concentrate on breathing. And now................The Whistle! Strange how this simple method of communication can become a joyous response and measurement of Lee's progress.
In our relationship, the whistle had become an important part of our communication system. For instance, when I was mowing the lawn with him many years ago (two lawn mowers), he had to whistle to warn me that I was about to mow down his prize tree that he had just planted. Another time, he had to whistle to warn me that I was about to back into another vehicle. How could I forget the "wolf" whistle as I walked through the yard and did not know that he was anywhere close by. That was always a good whistle! Now you understand how important it was to hear that whistle!
Lee has also been practicing his driving here. He drives around the circle driveway and gets the paper. When the weather permits, he walks. I can already see more of his strength returning and he says that he feels stronger each day. His appetite is very good and he has begun to ask for "refills". Now he has not done that in a long time. Each afternoon we have gone for a drive, and Lee is amazed at the changes that have occured in just a year. I stopped by Belks in Lincolnton yesterday and felt like I was in a different store as they had changed it all around. Too bad for Belks............I did not buy as much because I could not find anything! I had not been there since last November.
Well............time to get into our routine.............blood sugar, insulin..........prepare supper....................
Another wonderful day on the farm!
More Later....................................Brenda
In our relationship, the whistle had become an important part of our communication system. For instance, when I was mowing the lawn with him many years ago (two lawn mowers), he had to whistle to warn me that I was about to mow down his prize tree that he had just planted. Another time, he had to whistle to warn me that I was about to back into another vehicle. How could I forget the "wolf" whistle as I walked through the yard and did not know that he was anywhere close by. That was always a good whistle! Now you understand how important it was to hear that whistle!
Lee has also been practicing his driving here. He drives around the circle driveway and gets the paper. When the weather permits, he walks. I can already see more of his strength returning and he says that he feels stronger each day. His appetite is very good and he has begun to ask for "refills". Now he has not done that in a long time. Each afternoon we have gone for a drive, and Lee is amazed at the changes that have occured in just a year. I stopped by Belks in Lincolnton yesterday and felt like I was in a different store as they had changed it all around. Too bad for Belks............I did not buy as much because I could not find anything! I had not been there since last November.
Well............time to get into our routine.............blood sugar, insulin..........prepare supper....................
Another wonderful day on the farm!
More Later....................................Brenda
Tuesday, November 2, 2010
Missing Blogging!
We are home in Vale and guess what? I am missing my communication with you bloggers! So.......because of my extreme loneliness for you guys I just have to continue blogging a little while longer!
What a trip home! Our sons, Doug and Todd arrived Friday @ 9:00 a.m. from Radford, Va. and Waxhaw, N.C. They began loading the truck, van and car immediately. Betsy came from Raleigh to help me finish packing and I just put her in the kitchen and the frig and said , "clear it all out!" Between the four of us, we were able to have everything loaded and were pulling out of the parking lot at Duke Towers by 10:15 a.m.
As we were entering the entrance ramp onto I-85, I noticed in my rear view mirror that Doug, the driver of Lee's truck had pulled over and Todd was stopping right behind. Lee also saw this in his side mirror. He told me to pull over because they might need our help. Now I ask you, what could this female driver do other than to continue driving and what could Lee do with his walker in his present condition?! That is exactly what I said to him along with letting him know that I was sure the boys could handle any problem. ( Always the parent, even when the "boys" are 41 and 43!) When we saw them later at the rest stop we learned that Lee's recliner moved as they were moving along and had to stop and reposition the chair. No problems the rest of the journey home.
Even though I have had boxes sitting in practically every room and much to do, it has been wonderful to be home again. Daughter Julia arrived this afternoon and in a whirlwind began unpacking and putting things away. In the space of two hours, things were in their place once again! She amazes me! At this time Durham seems far away even though we know that we will be going back frequently and as necessary. Truly this is a miracle to have Lee back. He looks so much better and I know that now that he is home he will continue to get stronger and stronger. He seems very happy. I know that I am very happy to be here with him. I am finally better and my cold is gone. I had it for three weeks. I went to the doctor yesterday at Lee's insistance even though I felt like it was gone. I am very, very tired. I know that I will recover but I felt like I was experiencing the fatigue of the past five months all at one time. I honestly do not know how I found the energy to pack and to drive home.
Since we have been home, we have both enjoyed sleeping long hours at night. The third night here, I slept 10 hours without waking and Lee did the same. Each night we sleep at least 8-9 hours and Lee usually has a nap during the afternoon. I suppose we are catching up after all those lost hours of sleep. That, too, has probably contributed to the fatigue. My doctor did lots of blood work and chest x-ray yesterday and today I received a very good report on all.
Thanks for being there again for me, especially. I have missed having you there to support me through all the difficult times. It would be selfish of me to not share the good times with you now so I will continue sharing the progress with you. If you wish, visit the blog two to three times a week and I will be there waiting for you.
More Later...................................Brenda
What a trip home! Our sons, Doug and Todd arrived Friday @ 9:00 a.m. from Radford, Va. and Waxhaw, N.C. They began loading the truck, van and car immediately. Betsy came from Raleigh to help me finish packing and I just put her in the kitchen and the frig and said , "clear it all out!" Between the four of us, we were able to have everything loaded and were pulling out of the parking lot at Duke Towers by 10:15 a.m.
As we were entering the entrance ramp onto I-85, I noticed in my rear view mirror that Doug, the driver of Lee's truck had pulled over and Todd was stopping right behind. Lee also saw this in his side mirror. He told me to pull over because they might need our help. Now I ask you, what could this female driver do other than to continue driving and what could Lee do with his walker in his present condition?! That is exactly what I said to him along with letting him know that I was sure the boys could handle any problem. ( Always the parent, even when the "boys" are 41 and 43!) When we saw them later at the rest stop we learned that Lee's recliner moved as they were moving along and had to stop and reposition the chair. No problems the rest of the journey home.
Even though I have had boxes sitting in practically every room and much to do, it has been wonderful to be home again. Daughter Julia arrived this afternoon and in a whirlwind began unpacking and putting things away. In the space of two hours, things were in their place once again! She amazes me! At this time Durham seems far away even though we know that we will be going back frequently and as necessary. Truly this is a miracle to have Lee back. He looks so much better and I know that now that he is home he will continue to get stronger and stronger. He seems very happy. I know that I am very happy to be here with him. I am finally better and my cold is gone. I had it for three weeks. I went to the doctor yesterday at Lee's insistance even though I felt like it was gone. I am very, very tired. I know that I will recover but I felt like I was experiencing the fatigue of the past five months all at one time. I honestly do not know how I found the energy to pack and to drive home.
Since we have been home, we have both enjoyed sleeping long hours at night. The third night here, I slept 10 hours without waking and Lee did the same. Each night we sleep at least 8-9 hours and Lee usually has a nap during the afternoon. I suppose we are catching up after all those lost hours of sleep. That, too, has probably contributed to the fatigue. My doctor did lots of blood work and chest x-ray yesterday and today I received a very good report on all.
Thanks for being there again for me, especially. I have missed having you there to support me through all the difficult times. It would be selfish of me to not share the good times with you now so I will continue sharing the progress with you. If you wish, visit the blog two to three times a week and I will be there waiting for you.
More Later...................................Brenda
Wednesday, October 27, 2010
DISCHARGED
Today Lee will be discharged from the hospital! Usually when he is discharged, he is discharged to remain here in Durham. This is THE discharge we have been waiting for. Lee is discharged to go home to VALE! We learned this yesterday and we have both been very excited, so much so that I had trouble sleeping last night.................just kept thinking about packing and moving back home. I finally found and old Spencer Tracy, black and white movie thinking it would lull me to sleep only to discover it was one of the best movies I have ever seen! After more milk and peanut butter & crackers & advil, I finally dozed off after midnight.
This morning I met Gloria in the courtyard for our last coffee as we reminesced about our journey here at Duke. It has been as amazing journey. When we arrived here on May 31st, with Doug and Todd to help us get moved and settled in, it was with mixed emotions that are to this day impossible for me to find the words to describe. After the boys left, I looked around our small living room and the two large cylinders of oxygen by the door, the twenty small cylinders in the corner by the sofa, the portable carrier for oxygen and all the tubes and accompanying paraphanalia for Lee to breathe. He had brought his large red leather recliner and the bedside table. The room was completely filled with unopened boxes. I began to fill my time with unpacking and creating more moveable space for us. It only took me about two hours to unpack and when I finished, the tears came. Once I started crying I just could not stop. Lee tried to comfort me, but there was no consoling at that time.
You have to understand that coming to Durham offered a 50/50 solution to Lee's problem. I knew that he stood as good a chance of dying as he did of recovering. We were now at that precipuce. We had made our decision to take that risk regardless of the consequences..................we knew that it was the only chance for Lee to be able to have his life back. And so I was crying because I knew now that we could possibly be closer to losing Lee. The reality had consumed me.
That was our first day and today I am giving you the last day. It is with great joy that I write this, the last blog. This has been a journey that has allowed us to experience every emotion that we have been endowed with. We have felt fear, physical and emotional pain, uncertainty, disappointment, and tribulations. We have also felt your support, your love, your encouragement, your prayers, your committment and the freely giving of your time to help us along the way. I truly believe that we could not have gone through this without all of you being there for us.
I am so grateful to have been introduced to this blog. I want to thank Julia and her husband Bo for their idea of the blog as a way to help me communicate to all of you. They were kind enough to establish the blog and Bo spent our last day before leaving teaching me how to use it.
In addition to connecting me to all of you, this blog has allowed me to place my journey for not only you to see but also for me to see. It has been in the daily writing that I have been able to see the day more clearly, thereby, being able to cope with what I have seen once it was written down. There is an amazing amount of healing in both writing and reading. Writing has helped me remove the persistant thoughts from my head and reading what I had written allowed some ensight as to how I would be able to either resolve or cope with each day along the way.
This journey has provided the opportunity for us to cross paths with so many amazing people. Fist of all, those who are part of Duke's transplant program are very caring and concerned about the recipients. It is their goal to assure that the Donor lung is treated with utmost respect in regards to the care of the recipient. At all times we have been encouraged to treat the gift of this lung as what it is...............The greatest gift one can receive from another family. Secondly, we have met many new friends who have shared their experiences, their history of the disease and through these brief acquaintance we have been drawn into a wonderful support group of those who were otherwise complete strangers. We feel that we have made lifetime friends of Wayne & Betty, Jerry & Gloria, Nancy & Veda, Justin & Suzzane, Ralph & Coleen, Larry & Martha. There are many others, but these have been especially special to us. We have learned that it is through adversity that we are able to become who we are and who we were meant to be. It is not the worst that comes out in us when we are struggling, quite the contrary, it is the best.
Lee and I have resolved to do everything in our power to take care of this gift. We realize that we will both have a change of our lifestyle. We also realize that we will have to ask our children, our grandchildren, our friends and neighbors to be a part of this change. Even though we will not be able to resume "business as usual", we can and will be able to enjoy our family and our friends. There will be limitations and changes, but we are excited about getting home and beginning our new life. The Holiday celebrations will have to be different, with small groups and gatherings with each at different times and with short visits, but we will still be able to enjoy our new types of celebrations. We are asking that you give us some time to adjust being at home, allow Lee time to get back into some physical therapy and to please call before visiting. Due to this being the cold and flu season, we will be asking you to mask during your visit, use the hand sanitizer and to limit your time until Lee gets settled in. Lee is looking forward to the "motivation" his home environment provides . He is looking forward to being able to drive his truck again and I believe just seeing it in the carport will be a big motivator. He had his license renewed when we were home last and it will be good to see him gradually getting back to his old lifestyle.
Today as I write, I look around the same room. There are NO oxygen tanks needed, No oxygen paraphanalia and I am relaxed knowing that Lee can breathe normally again. The old red recliner will return to Vale to reside in the downstairs office, "Man's Room" for Lee to once again enjoy ballgames on his big screen T.V. Even though he cannot return to the Panther's games, he can have his buddies over for football in his room and he is already making plans for his very own "Super Bowl" party with his buddies. What a contrast in today and May 31st! Today I am filled with joy, my cup is now full and not empty. Lee is alive and he can breathe, walk and once again enjoy this greatest gift that we all have. The gift of LIFE. Lee's final word: Thank The LORD!
I suppose you knew that when I began showing old Halloween photos and talking about Lee's cat that I must be running out of things to write. You were right! With that in mind, I will end the daily blog reports as of today. I will, however, continue a blog with updates on Lee's progress from time to time. We will be returning to Duke Clinic each month for the next three to four months and his time here will gradually be reduced. I would like to continue to keep you informed. So, you may want to check each month if you are still interested. Thank you for staying with us on this, " Our Incredible Journey."
More Later............................Brenda
This morning I met Gloria in the courtyard for our last coffee as we reminesced about our journey here at Duke. It has been as amazing journey. When we arrived here on May 31st, with Doug and Todd to help us get moved and settled in, it was with mixed emotions that are to this day impossible for me to find the words to describe. After the boys left, I looked around our small living room and the two large cylinders of oxygen by the door, the twenty small cylinders in the corner by the sofa, the portable carrier for oxygen and all the tubes and accompanying paraphanalia for Lee to breathe. He had brought his large red leather recliner and the bedside table. The room was completely filled with unopened boxes. I began to fill my time with unpacking and creating more moveable space for us. It only took me about two hours to unpack and when I finished, the tears came. Once I started crying I just could not stop. Lee tried to comfort me, but there was no consoling at that time.
You have to understand that coming to Durham offered a 50/50 solution to Lee's problem. I knew that he stood as good a chance of dying as he did of recovering. We were now at that precipuce. We had made our decision to take that risk regardless of the consequences..................we knew that it was the only chance for Lee to be able to have his life back. And so I was crying because I knew now that we could possibly be closer to losing Lee. The reality had consumed me.
That was our first day and today I am giving you the last day. It is with great joy that I write this, the last blog. This has been a journey that has allowed us to experience every emotion that we have been endowed with. We have felt fear, physical and emotional pain, uncertainty, disappointment, and tribulations. We have also felt your support, your love, your encouragement, your prayers, your committment and the freely giving of your time to help us along the way. I truly believe that we could not have gone through this without all of you being there for us.
I am so grateful to have been introduced to this blog. I want to thank Julia and her husband Bo for their idea of the blog as a way to help me communicate to all of you. They were kind enough to establish the blog and Bo spent our last day before leaving teaching me how to use it.
In addition to connecting me to all of you, this blog has allowed me to place my journey for not only you to see but also for me to see. It has been in the daily writing that I have been able to see the day more clearly, thereby, being able to cope with what I have seen once it was written down. There is an amazing amount of healing in both writing and reading. Writing has helped me remove the persistant thoughts from my head and reading what I had written allowed some ensight as to how I would be able to either resolve or cope with each day along the way.
This journey has provided the opportunity for us to cross paths with so many amazing people. Fist of all, those who are part of Duke's transplant program are very caring and concerned about the recipients. It is their goal to assure that the Donor lung is treated with utmost respect in regards to the care of the recipient. At all times we have been encouraged to treat the gift of this lung as what it is...............The greatest gift one can receive from another family. Secondly, we have met many new friends who have shared their experiences, their history of the disease and through these brief acquaintance we have been drawn into a wonderful support group of those who were otherwise complete strangers. We feel that we have made lifetime friends of Wayne & Betty, Jerry & Gloria, Nancy & Veda, Justin & Suzzane, Ralph & Coleen, Larry & Martha. There are many others, but these have been especially special to us. We have learned that it is through adversity that we are able to become who we are and who we were meant to be. It is not the worst that comes out in us when we are struggling, quite the contrary, it is the best.
Lee and I have resolved to do everything in our power to take care of this gift. We realize that we will both have a change of our lifestyle. We also realize that we will have to ask our children, our grandchildren, our friends and neighbors to be a part of this change. Even though we will not be able to resume "business as usual", we can and will be able to enjoy our family and our friends. There will be limitations and changes, but we are excited about getting home and beginning our new life. The Holiday celebrations will have to be different, with small groups and gatherings with each at different times and with short visits, but we will still be able to enjoy our new types of celebrations. We are asking that you give us some time to adjust being at home, allow Lee time to get back into some physical therapy and to please call before visiting. Due to this being the cold and flu season, we will be asking you to mask during your visit, use the hand sanitizer and to limit your time until Lee gets settled in. Lee is looking forward to the "motivation" his home environment provides . He is looking forward to being able to drive his truck again and I believe just seeing it in the carport will be a big motivator. He had his license renewed when we were home last and it will be good to see him gradually getting back to his old lifestyle.
Today as I write, I look around the same room. There are NO oxygen tanks needed, No oxygen paraphanalia and I am relaxed knowing that Lee can breathe normally again. The old red recliner will return to Vale to reside in the downstairs office, "Man's Room" for Lee to once again enjoy ballgames on his big screen T.V. Even though he cannot return to the Panther's games, he can have his buddies over for football in his room and he is already making plans for his very own "Super Bowl" party with his buddies. What a contrast in today and May 31st! Today I am filled with joy, my cup is now full and not empty. Lee is alive and he can breathe, walk and once again enjoy this greatest gift that we all have. The gift of LIFE. Lee's final word: Thank The LORD!
I suppose you knew that when I began showing old Halloween photos and talking about Lee's cat that I must be running out of things to write. You were right! With that in mind, I will end the daily blog reports as of today. I will, however, continue a blog with updates on Lee's progress from time to time. We will be returning to Duke Clinic each month for the next three to four months and his time here will gradually be reduced. I would like to continue to keep you informed. So, you may want to check each month if you are still interested. Thank you for staying with us on this, " Our Incredible Journey."
More Later............................Brenda
Tuesday, October 26, 2010
The Rest of The Story
On Monday, Margaret planned her day to take T.R. to the vet to be "fixed", wormed, anti-rabied, and anti-dystempered. While she was at the Animal Hospital she called me and the converstion went something like this. "Brenda, I think I have the wrong cat!" My response, " What do you mean you have the wrong cat?" Well, during the conversation we finally decided she did indeed have T.R. as there was no other female cat that size at our house. Let me tell you, T.R. did not go without a big cat fight. It seems that Margaret, Jennifer and John all have the battle scratches from Lee's precious T.R. She fought against being confined to the cage.
Margaret assured us not to worry because she had planned a " haven" of sorts for T.R. to rehabilitate at her house. T.R. would reside in the hall bath with her very own bed, litter box and food and water bowl. I relayed this to Lee. He said to tell them to return her to her natural habitat (the woodshed) because he did not want any more damage to Margaret or to her house. (This is one wild and scared cat!)
Any way, to make a long story (day for Margaret ) short...............T.R. is resting comfortably in a large dog carrier in the wood shed, Margaret, Jennifer and John are tending their wounds and Lee is happy that his cat is " fixed"! End of story..............................
I just returned from the hospital and Lee will be officially discharged from the hospital tomorrow. He is very excited about only one more night in the TENT, and that he has responded very favorably to the treatment.
More Later........................................Brenda
Margaret assured us not to worry because she had planned a " haven" of sorts for T.R. to rehabilitate at her house. T.R. would reside in the hall bath with her very own bed, litter box and food and water bowl. I relayed this to Lee. He said to tell them to return her to her natural habitat (the woodshed) because he did not want any more damage to Margaret or to her house. (This is one wild and scared cat!)
Any way, to make a long story (day for Margaret ) short...............T.R. is resting comfortably in a large dog carrier in the wood shed, Margaret, Jennifer and John are tending their wounds and Lee is happy that his cat is " fixed"! End of story..............................
I just returned from the hospital and Lee will be officially discharged from the hospital tomorrow. He is very excited about only one more night in the TENT, and that he has responded very favorably to the treatment.
More Later........................................Brenda
Monday, October 25, 2010
A Cat Tale
I don't think many of you know this but Lee has a CAT. This cat came to our house in August 2009 in a rather unusual way. One of Lee's farmer friends who lives about 10 miles from us, has over the years acquired a large number of cats. The cats live around his barn and his barnyard equipment. On a hot August afternoon, Lee's friend dropped by to visit and during the visit one of his cats had hitched a ride under his truck on the spare tire that was located there. After failed attempts to entice the cat back to the truck, Lee decided the cat could stay. For several days the cat could not be found and Lee began leaving food on his hay baler after seeing the cat there. After many weeks, Lee was able to gain the cat's trust and could pet her when he would feed her. I named the cat T.R. (at this time we had not determined the gender, so we dubbed her T.R. for "Truck Rider". Lee had become very fond of his new furry, feline friend.
It was during this unusual friendship that Lee became very ill and was away from his little friend from December until March. While we were home March - May, T.R. slept in front of Lee's bedroom because she had recognized his voice. From time to time she would greet him at the back door. At this time, he was the only person she would allow to pet her........for everyone else, she ran away. When we left May 31 to return to Duke, T.R. had just had her second litter of kittens. She had her first in October after she came to live with us. That is when we confirmed her gender.
When we went home Labor Day, T.R. had just had her third litter and Lee decided it was time to "fix" T.R..................that is where our good friend TGFM (Thank God for Margaret) comes in ................
Tune in tomorrow for the
Rest of the story!
By the way, Lee is doing very, very well! He is walking a lot and he says that he feels so good and strong. He is constantly on the phone for business, etc. He is getting excited about feeling so good and is now more motivated than I have ever seen him. We are both so excited about the prospects of getting closer to the time of discharge.
More Later.......................................Brenda
It was during this unusual friendship that Lee became very ill and was away from his little friend from December until March. While we were home March - May, T.R. slept in front of Lee's bedroom because she had recognized his voice. From time to time she would greet him at the back door. At this time, he was the only person she would allow to pet her........for everyone else, she ran away. When we left May 31 to return to Duke, T.R. had just had her second litter of kittens. She had her first in October after she came to live with us. That is when we confirmed her gender.
When we went home Labor Day, T.R. had just had her third litter and Lee decided it was time to "fix" T.R..................that is where our good friend TGFM (Thank God for Margaret) comes in ................
Tune in tomorrow for the
Rest of the story!
By the way, Lee is doing very, very well! He is walking a lot and he says that he feels so good and strong. He is constantly on the phone for business, etc. He is getting excited about feeling so good and is now more motivated than I have ever seen him. We are both so excited about the prospects of getting closer to the time of discharge.
More Later.......................................Brenda
Sunday, October 24, 2010
The Keys and I
Interesting title for today's blog because.....................I seem to have a problem with the house keys! I believe I shared with you earlier that I must feel safe here because when I got up Friday morning I discovered that my Keys were still outside in the lock. On Saturday while on my way to the hospital via shuttle, I related the same story to the shuttle driver, David. He cautioned me to be careful with that.
Imagine my surprise later that evening, while talking to Donna, I heard a knock on my door. I checked the view hole and saw that David was outside. When I opened the door, he pointed to my lock...............my keys were hanging there again and would have been there another night if David had not happened to walk by. The shuttle drivers here have a dual role. They are both drivers and security guards for the Duke Towers. It is indeed comforting to know they check on someone as absent-minded as I am.
Lee is doing very well. I try to spend two-to three hours a day with him, but do not want to pass any lingering "bugs" back to him at this point. When I am there I must wear the isolation gown and the mask so I am very uncomfortable while there. Lee is now independent enough to move about freely in the room to the bath, etc. He can come and go at will from his room to walk the hallway as long as he wears a mask. It is good to know that he does not have to wait for others to help him. He is also eating better and completely cleans his tray with each meal. So good to see him with his appetite returning.
He always enjoys Sunday afternoons because he has many football games back to back. I am sure he is watching one right now. Hopefully he will get to see one to the end before he has to go into the "Tent".
Good news here is that our neighbors, Gloria and Jerry have returned from a long week-end in Wilmington. Jerry has to have the nissen plication (stomach wrap) on Thursday. They will probably be here another 7-10 days.
To Julia..............thanks, daughter for the effort to come see us today and I would love for that to happen. Hope you don't mind that I talked you into staying home and resting yourself. Love you so much!
After tonight in the Tent, Lee will be more than half-way finished! Three down and two to go!
More Later...........................Brenda
Imagine my surprise later that evening, while talking to Donna, I heard a knock on my door. I checked the view hole and saw that David was outside. When I opened the door, he pointed to my lock...............my keys were hanging there again and would have been there another night if David had not happened to walk by. The shuttle drivers here have a dual role. They are both drivers and security guards for the Duke Towers. It is indeed comforting to know they check on someone as absent-minded as I am.
Lee is doing very well. I try to spend two-to three hours a day with him, but do not want to pass any lingering "bugs" back to him at this point. When I am there I must wear the isolation gown and the mask so I am very uncomfortable while there. Lee is now independent enough to move about freely in the room to the bath, etc. He can come and go at will from his room to walk the hallway as long as he wears a mask. It is good to know that he does not have to wait for others to help him. He is also eating better and completely cleans his tray with each meal. So good to see him with his appetite returning.
He always enjoys Sunday afternoons because he has many football games back to back. I am sure he is watching one right now. Hopefully he will get to see one to the end before he has to go into the "Tent".
Good news here is that our neighbors, Gloria and Jerry have returned from a long week-end in Wilmington. Jerry has to have the nissen plication (stomach wrap) on Thursday. They will probably be here another 7-10 days.
To Julia..............thanks, daughter for the effort to come see us today and I would love for that to happen. Hope you don't mind that I talked you into staying home and resting yourself. Love you so much!
After tonight in the Tent, Lee will be more than half-way finished! Three down and two to go!
More Later...........................Brenda
Saturday, October 23, 2010
The Tent
When I talked to Lee early this morning I could tell that he was either still sleepy or just beginning this day with just a bit of the "grouchies"! This was due to his having to sleep in a tent from 10:00 p.m. until about 5:00 a.m. I reassured him that at least he only had four more nights to go and the treatment would be finished. I did not get a very favorable response with that and assured him that I would be there shortly after lunch and would bring some snacks and a few othere things he requested.
I caught the shuttle to the hospital and finally arrived at Lee's room around 12:00. It was at this point that I could certainly understand why the "Tent" was not a good thing to try to sleep in. It is reminicent of the old oxygen tents of thr "dark ages" of medicine. It is made of plastic and hangs at the head of the bed from a type of metal T-bar. The T-bar extends longitudinally across the top of Lee's bed. Attached to this T-bar are metal rings connected to see-through plastic that may be extended the entire length if the T-tube in order to surround and enclose lee completely down to the middle of his body, thereby ensuring that his ventilation areas are covered. Hanging high enside the plastic tent is a huge air-exchange box that measures about 2x4 feet. This box does not go gently into the night as it is noisy. This is responsible for a continuous air exchange without loss of the medication that he has to enhale through a face mask! So in addition to the "Tent", he also has to wear a face mask that is connected to a pump that works like a nebulizer to administer the inhaling medication!
It is also during this time that he is receiving special I.V. medications (type of antibodies) that must be closely monitored.
IS IT ANY WONDER THAT HE CAN NOT GET ANY SLEEP?!!!
This has to be repeated each night for a total of five nights. One down and four to go..................so I am asking you to think of Lee tonight when you get all cozy in your beds to remember that he is one uncomfortable fellow. Please remember him in your prayers and pray for his ability to rest and perhaps get some sleep along the way.
More Later........................................Brenda
I caught the shuttle to the hospital and finally arrived at Lee's room around 12:00. It was at this point that I could certainly understand why the "Tent" was not a good thing to try to sleep in. It is reminicent of the old oxygen tents of thr "dark ages" of medicine. It is made of plastic and hangs at the head of the bed from a type of metal T-bar. The T-bar extends longitudinally across the top of Lee's bed. Attached to this T-bar are metal rings connected to see-through plastic that may be extended the entire length if the T-tube in order to surround and enclose lee completely down to the middle of his body, thereby ensuring that his ventilation areas are covered. Hanging high enside the plastic tent is a huge air-exchange box that measures about 2x4 feet. This box does not go gently into the night as it is noisy. This is responsible for a continuous air exchange without loss of the medication that he has to enhale through a face mask! So in addition to the "Tent", he also has to wear a face mask that is connected to a pump that works like a nebulizer to administer the inhaling medication!
It is also during this time that he is receiving special I.V. medications (type of antibodies) that must be closely monitored.
IS IT ANY WONDER THAT HE CAN NOT GET ANY SLEEP?!!!
This has to be repeated each night for a total of five nights. One down and four to go..................so I am asking you to think of Lee tonight when you get all cozy in your beds to remember that he is one uncomfortable fellow. Please remember him in your prayers and pray for his ability to rest and perhaps get some sleep along the way.
More Later........................................Brenda
Friday, October 22, 2010
A Good Friday
After a good nights rest I felt almost back to normal this morning. My cold seems to be responding to treatment and I finally feel all the pressure in my head leaving. Lee finally settled in around midnight last night at the hospital. It seems that his bed was "broken". He could not get any of the controls to function and it took a couple of hours to get another bed. He did get a decent nights sleep after that was resolved.
He looks really good. I was amazed at how strong and healthy he looked today. I don't know if I am making comparisons with how he looked the last time I saw him in a hospital bed or what, but he just looked much stronger and his color is very good. He is beginning to develop lost muscles in his chest, shoulders and arms and the leg muscles are beginning to show signs of developing again. This is one thing he will have to be especially careful about since he is back in the hospital. He must continue to walk, walk, and exercise. It is so easy to lose all with just a few days of inactivity.
I noticed when I walked down the hallway to Lee's room that there were about five other patients who are also on contact isolation. I was told that there are three other post-lung transplant patients there who have the same virus as Lee. It is my understanding that a common area is being investigated.
I have already begun throwing things out that could possibly recontaminate Lee on his return here. For example: His toothbrush, toothpaste, all breathing and inhaling equipment. We now realize how easy it is for him to get an infection. Hopefully we will all learn from this experience to be very concientious of Lee's vulnerability as he is trying to recuperate from this enormous change in his lifestyle. Most of all, Lee will have to take more responsibility in how he associates with others and to make good use of his own personal hand sanitizer and his mask. We have had many lengthy conversations in regards to that and this situation will probably help all of us to help Lee.
One thing that I have a problem with is that we should even have to explain why these precautions must be taken. It is not important so much as to the "whys", as to the fact that it is now a "must do". It is in this area that we will need your strongest support and understanding. I know that we have that because I have witnessed your love of Lee and of me. We both thank you for that.
It is very lonely here without Lee. however, I am using the time to get some much needed sleep and rest. I know that will help me be strong when he is able to return. I do not feel scared nor insecure here, quite the contrary, I do feel very safe. To make my point, after I got up this morning, I stepped outside my door briefly only to discover that I had left my house keys dangling in the lock all night! I will be more careful tonight.
More Later..........................................Brenda
He looks really good. I was amazed at how strong and healthy he looked today. I don't know if I am making comparisons with how he looked the last time I saw him in a hospital bed or what, but he just looked much stronger and his color is very good. He is beginning to develop lost muscles in his chest, shoulders and arms and the leg muscles are beginning to show signs of developing again. This is one thing he will have to be especially careful about since he is back in the hospital. He must continue to walk, walk, and exercise. It is so easy to lose all with just a few days of inactivity.
I noticed when I walked down the hallway to Lee's room that there were about five other patients who are also on contact isolation. I was told that there are three other post-lung transplant patients there who have the same virus as Lee. It is my understanding that a common area is being investigated.
I have already begun throwing things out that could possibly recontaminate Lee on his return here. For example: His toothbrush, toothpaste, all breathing and inhaling equipment. We now realize how easy it is for him to get an infection. Hopefully we will all learn from this experience to be very concientious of Lee's vulnerability as he is trying to recuperate from this enormous change in his lifestyle. Most of all, Lee will have to take more responsibility in how he associates with others and to make good use of his own personal hand sanitizer and his mask. We have had many lengthy conversations in regards to that and this situation will probably help all of us to help Lee.
One thing that I have a problem with is that we should even have to explain why these precautions must be taken. It is not important so much as to the "whys", as to the fact that it is now a "must do". It is in this area that we will need your strongest support and understanding. I know that we have that because I have witnessed your love of Lee and of me. We both thank you for that.
It is very lonely here without Lee. however, I am using the time to get some much needed sleep and rest. I know that will help me be strong when he is able to return. I do not feel scared nor insecure here, quite the contrary, I do feel very safe. To make my point, after I got up this morning, I stepped outside my door briefly only to discover that I had left my house keys dangling in the lock all night! I will be more careful tonight.
More Later..........................................Brenda
Thursday, October 21, 2010
RSV
RESPIRATORY SYNCYTIAL VIRUS. Maybe you have heard of it. It is usually a virus infection of the lungs that new Moms fear for their newborns. They are vulnerable because of their underdeveloped immune system. Most of us have it at some time and is sometimes referred to as a "cold" in healthy adults. For anyone with a compromised immune system, this virus can be very serious. Lee has this virus in his lung. We found out today when we had our clinic visit. The bronchoscopy that was done on Monday did show RSV. He was hospitilized immediately after leaving the clinic and is now on the 7th floor @ Duke.
He is on isolation and will be receiving special inhaling drugs along with antibodies to help fight the virus. The good news is that it was caught before he got into acute respiratory distress. We have been told that he should respond to the treatment in about 5 days.
After getting Lee settled into admissions, I had to leave him and go to Urgent Care Duke. I had been advised to be examined because I probably had the same virus and cought it from Lee. It is contagious so we are staying away from everyone. After seeing that I was already on a strong antibiotic to prevent bacterial bronchitis,etc. the doctor said to just leave it at that and use vaporizer, mucinex and the prednisone if I do not show good results by Sunday.
So................there you have it.................another exciting day in our life. Of course we are very concerned about this but at the same time hopeful that Lee will finally get rid of this persistant lung infection. At least we now know what we are dealing with. He never did respond for a long period of time when treated as a bacterial infection.
Thank goodness for Dennis. He came from Raleigh and took me to Urgent care. I was so tired! Lee and I had been at the hospital or clinic since 7:30 this a.m. We were both very tired. Speaking of that, I am ready to go to bed.
More Later......................................Brenda
He is on isolation and will be receiving special inhaling drugs along with antibodies to help fight the virus. The good news is that it was caught before he got into acute respiratory distress. We have been told that he should respond to the treatment in about 5 days.
After getting Lee settled into admissions, I had to leave him and go to Urgent Care Duke. I had been advised to be examined because I probably had the same virus and cought it from Lee. It is contagious so we are staying away from everyone. After seeing that I was already on a strong antibiotic to prevent bacterial bronchitis,etc. the doctor said to just leave it at that and use vaporizer, mucinex and the prednisone if I do not show good results by Sunday.
So................there you have it.................another exciting day in our life. Of course we are very concerned about this but at the same time hopeful that Lee will finally get rid of this persistant lung infection. At least we now know what we are dealing with. He never did respond for a long period of time when treated as a bacterial infection.
Thank goodness for Dennis. He came from Raleigh and took me to Urgent care. I was so tired! Lee and I had been at the hospital or clinic since 7:30 this a.m. We were both very tired. Speaking of that, I am ready to go to bed.
More Later......................................Brenda
Wednesday, October 20, 2010
Two masked "bandits:
Today as Lee and I were driving to the clinic I could only imagine the perception we gave to others as they passed us along the way. We both had on our blue masks and I jokingly said to Lee that maybe this would be a good time to attend a Halloween party.......after all, we were already dressed for the occasion. He didn't seem to think it was that funny...........probably because it was now 2:30 in the afternoon and all he had to eat this a.m. was some sugar-free peach jello and camomille tea.
Lee had his gastroscopy around 3:30 and we were on our way back tos the condo by 4:30. The good news is that there was no ulcer, just some gastritis and the gastrologist took a biopsy of that area. He does have a small hiatal hernia (not that unusual for his age) and a small diverticulum in the duodenum. There were 2 or 3 areas of small linear abrasion along the esophageal area and the stomach. Again, the doctor did not seem concerned. He said he did not see any evidence of reflux. We will have more identification when we get the pathology report that will be back in 10-14 days.
All in all, Lee tolerated the procedure well.............a little hung over from the fentenyl and versed. By the time we were settled into the condo he became hungry and ate a good meal. He has dozed off and on for the past several hours. Right now he has found a baseball game and seems to be enjoying that. He is always a happy fellow when he can find a good ballgame on the tube! I usually watch another something or movie in the bedroom. After all, one can only watch so many hundred ballgames! Lee never tires of them and will spend an entire day watching football. I am so glad that is available to him right now. When we went to his football college reunion the other week he was presented with a DVD of the winning game from one of his colleagues. He has watched it several times and I have enjoyed it too. One has to remember that it was filmed on a 16 MM projector in 1958-60 so the quality is lacking but the sentiment remains.
After tryin many different treatments for this stuffy head and nose, I finally decided to try the "Mother Method".......Steam with some vicks! It works! So, that, along with some soothing camomille tea will hopefully allow a better night with some sleep. We have another busy day again tomorrow. The clinic day has been moved from next Tuesday to Tomorrow! So, there will be an 8:00 x-ray at the hospital, then across the street to the clinic for the bloodwork, chest x-ray, pulmonary function tests and to see the doctor @ 2:30 p.m. I believe that will allow enough time to run back to the condo for a light lunch, meds, I.V. etc. We are very busy!
To my daughter Julia............thank you for sharing our good times and laughs with our bloggers! We love you!
More Later.............................Brenda
Lee had his gastroscopy around 3:30 and we were on our way back tos the condo by 4:30. The good news is that there was no ulcer, just some gastritis and the gastrologist took a biopsy of that area. He does have a small hiatal hernia (not that unusual for his age) and a small diverticulum in the duodenum. There were 2 or 3 areas of small linear abrasion along the esophageal area and the stomach. Again, the doctor did not seem concerned. He said he did not see any evidence of reflux. We will have more identification when we get the pathology report that will be back in 10-14 days.
All in all, Lee tolerated the procedure well.............a little hung over from the fentenyl and versed. By the time we were settled into the condo he became hungry and ate a good meal. He has dozed off and on for the past several hours. Right now he has found a baseball game and seems to be enjoying that. He is always a happy fellow when he can find a good ballgame on the tube! I usually watch another something or movie in the bedroom. After all, one can only watch so many hundred ballgames! Lee never tires of them and will spend an entire day watching football. I am so glad that is available to him right now. When we went to his football college reunion the other week he was presented with a DVD of the winning game from one of his colleagues. He has watched it several times and I have enjoyed it too. One has to remember that it was filmed on a 16 MM projector in 1958-60 so the quality is lacking but the sentiment remains.
After tryin many different treatments for this stuffy head and nose, I finally decided to try the "Mother Method".......Steam with some vicks! It works! So, that, along with some soothing camomille tea will hopefully allow a better night with some sleep. We have another busy day again tomorrow. The clinic day has been moved from next Tuesday to Tomorrow! So, there will be an 8:00 x-ray at the hospital, then across the street to the clinic for the bloodwork, chest x-ray, pulmonary function tests and to see the doctor @ 2:30 p.m. I believe that will allow enough time to run back to the condo for a light lunch, meds, I.V. etc. We are very busy!
To my daughter Julia............thank you for sharing our good times and laughs with our bloggers! We love you!
More Later.............................Brenda
Tuesday, October 19, 2010
Bikers!
Oh no! She found the bikers costumes! Too bad you cannot see Lee's long, blond pony tail in the back. That was the year that we had to go inside and do the hotdogs on the gas grill outside. The reason for this was because we were experiencing "gale-force winds" that evening. In the background is Lee Jr. as Superman. We just shooed the little ones to the downstairs and had all the rooms upstairs filled with adults. It was not the same, no hayride, no roasting outside.............but many, many laughs because it was one of those years with the best costumes! We did discover that regardless of the weather.....the annual party MUST go on!
Today has been one of those "I have a bad cold" day. I am trying desperately to keep Lee from getting it and am praying fervently that this will pass him by. Because I am now running a fever and the cough from my chest is not good, I called my family doctor and thank goodness he was kind enough to prescribe some antibiotics. Thank you, Thank you, Thank you!! I'm hoping by tomorrow I might begin to see some good results.
Lee was able to go to the Center for Living today even though he had to push himself to go. He is still feeling low from the new medication. The good news is that he is no longer coughing and that is a good thing. Tomorrow he will have a gastroscopy @ 3:00....just jello and clear liquids in the a.m. Thursday, more stomach x-rays.
This will have to be a short blog because I feel too lousy to be creative............please stay with me and I promise a better one Tomorrow. Meanwhile, Julia will keep you entertained!
More Later..................................Brenda
Today has been one of those "I have a bad cold" day. I am trying desperately to keep Lee from getting it and am praying fervently that this will pass him by. Because I am now running a fever and the cough from my chest is not good, I called my family doctor and thank goodness he was kind enough to prescribe some antibiotics. Thank you, Thank you, Thank you!! I'm hoping by tomorrow I might begin to see some good results.
Lee was able to go to the Center for Living today even though he had to push himself to go. He is still feeling low from the new medication. The good news is that he is no longer coughing and that is a good thing. Tomorrow he will have a gastroscopy @ 3:00....just jello and clear liquids in the a.m. Thursday, more stomach x-rays.
This will have to be a short blog because I feel too lousy to be creative............please stay with me and I promise a better one Tomorrow. Meanwhile, Julia will keep you entertained!
More Later..................................Brenda
Monday, October 18, 2010
All the costumes?!
I believe my daughter has found her stash of Halloween pictures and I am sure you will get a laugh at those. There is a story behind the "Pirate and the Treasure Chest". In October, 2009, I had just completed a year of several surgical procedures for reconstruction following the diagnosis of breast cancer. It just seemed appropriate to become a "treasure chest" and for Lee to be my dashing pirate!
Today was the day for Lee to have a bronchoscopy. As you have probably surmised by now, this is routine each month following lung transplants. We were at the hospital early, around 7:30 a.m. for his scheduled case @ 8:00. After explaining that I had a cold and probably needed to stay in an isolated area, I was quickly escorted to a second waiting room so I could be alone. I am wearing a mask as often as I can or staying in an other area separate from Lee. He was finished with the Bronk by 10:00 and I was able to talk to the doctor. I explained my concern about this lung infection and that Lee had to date, had four 2-week treatments with two different antibiotics. After the antibiotics are discontinued, he begins to feel tired, coughs and gets into a general malaise after about 3-5 days. The doctor, also expressed his concern with this past history and said that hopefully they would "get to the bottom of this".
Lee has spent most of the rest of this day recovering from the anesthesia, which means he has been sleeping a lot. Tomorrow he will have to resume his regular schedule at the Center for the Living and get back into his exercise program. Unfortunately, he has so many procedures on Wednesday and Thursday that this week will not be useful for rehabilitation.
Our neighbors from Wilmington are back and will probably be here for at least a couple of weeks. It is so good to have Gloria & Jerry just popping in and out again. We really missed them when they went home. Another couple from Roanoke is back for a clinic visit but my cold will prevent us from being able to spend time with them. One certainly does not want to pass this along to lung recepients! I'm just holding my breath and praying that Lee does not get it!
So, I will close with a warning to you................be prepared! I don't know what Julia will show you next!
More Later.......................................Brenda
Today was the day for Lee to have a bronchoscopy. As you have probably surmised by now, this is routine each month following lung transplants. We were at the hospital early, around 7:30 a.m. for his scheduled case @ 8:00. After explaining that I had a cold and probably needed to stay in an isolated area, I was quickly escorted to a second waiting room so I could be alone. I am wearing a mask as often as I can or staying in an other area separate from Lee. He was finished with the Bronk by 10:00 and I was able to talk to the doctor. I explained my concern about this lung infection and that Lee had to date, had four 2-week treatments with two different antibiotics. After the antibiotics are discontinued, he begins to feel tired, coughs and gets into a general malaise after about 3-5 days. The doctor, also expressed his concern with this past history and said that hopefully they would "get to the bottom of this".
Lee has spent most of the rest of this day recovering from the anesthesia, which means he has been sleeping a lot. Tomorrow he will have to resume his regular schedule at the Center for the Living and get back into his exercise program. Unfortunately, he has so many procedures on Wednesday and Thursday that this week will not be useful for rehabilitation.
Our neighbors from Wilmington are back and will probably be here for at least a couple of weeks. It is so good to have Gloria & Jerry just popping in and out again. We really missed them when they went home. Another couple from Roanoke is back for a clinic visit but my cold will prevent us from being able to spend time with them. One certainly does not want to pass this along to lung recepients! I'm just holding my breath and praying that Lee does not get it!
So, I will close with a warning to you................be prepared! I don't know what Julia will show you next!
More Later.......................................Brenda
Sunday, October 17, 2010
My Surprise!
I was just as surprised as you when I opened the blog to see that Halloween picture of Lee and me. I knew immediately that the culprit was probably daughter, Julia! She is the busy photographer always running around making sure she gets everyone's picture in these costumes............funny, we have very few of her be cause she is making pictures of others. Believe me, she has had some really funny ones too. So, Lee and I got a big laugh out of our surprise too. One of the memories I have about the Miss Kitty and Marshall Dillon costumes is that the g/children did not have a clue as to who we were. In fact, many of them would look at us, especially their grandaddy, and ask, "Who are you?"
I hope you got a laugh and some insight into the good life that we have with our family. We have many fond memories of all the things we celebrate together. I have albums for many of our celebrations and the children love looking through them from time to time. I have enjoyed watching Laura and Rebekah, the older girls share those special times with their friends when I happen to see them with the albums.
Today has been a slow day for us. Lee is still feeling some of the effects of the medication that made him so sleepy. I have been nursing one of the worst colds I have had in years. I have tried very hard to prevent that and my challenge now is to try not to pass it along to Lee. That is not easy in the confined space that we share. We both are wearing masks...... I wear mine almost all the time and Lee puts one on when we are in closer quarters or when I have to give him the I.V. and when we have to travel in the car together.
It's good that we have had a restful day because we will hit the floor running in the morning. That will continue for most of the upcoming week.
More Later.........................................Brenda
I hope you got a laugh and some insight into the good life that we have with our family. We have many fond memories of all the things we celebrate together. I have albums for many of our celebrations and the children love looking through them from time to time. I have enjoyed watching Laura and Rebekah, the older girls share those special times with their friends when I happen to see them with the albums.
Today has been a slow day for us. Lee is still feeling some of the effects of the medication that made him so sleepy. I have been nursing one of the worst colds I have had in years. I have tried very hard to prevent that and my challenge now is to try not to pass it along to Lee. That is not easy in the confined space that we share. We both are wearing masks...... I wear mine almost all the time and Lee puts one on when we are in closer quarters or when I have to give him the I.V. and when we have to travel in the car together.
It's good that we have had a restful day because we will hit the floor running in the morning. That will continue for most of the upcoming week.
More Later.........................................Brenda
Saturday, October 16, 2010
Awake............Finally!
Even though Lee was still a little "hung-over" from the reglan, I believe at this time he is finally fully awake! So far he has not had any naps and at the moment is enjoying watching a football game. Yesterday he just slept all the time!
Today began with the usual a.m. vitals for me to log on Lee. He seems to have lost the 4 or so pounds that he had gained. He now weighs 160 lbs. I suppose the good news is that at least he is not retaining fluid. That can sometimes be one of the signs of rejection. After Lee was settled in his recliner with his morning cup of coffee, I gathered the dirty clothes and headed to the laundry room before the maids came to work. After they arrive, it is impossible to get into the laundry room until after 5:00 p.m. It will be wonderful to have my own laundry area when we return home!
Lee was able to go to the Center for the Living this afternoon for a short session. That was good since he missed his time there on Friday. He will only be able to get two days in next week because of all the procedures that will be done.
We really miss being home on the farm this time of the year. Most of you know that Lee and I always give a Halloween party for our family. We usually have it the 2nd or 3rd week-end of October because the children have other plans closer to Halloween. We have always enjoyed having everyone come in costume and the children are always delighted to see that Nana and Grandaddy are also in costume. All of our adult children try to compete with each other for the most original costume and we never give a prize for the "best" because they are all "the Best"!
We gather in the backyard around the gazebo and just before dark the children, grandchildren, aunts and uncles all crawl into the big haywagon along with blankets for the hayride that Grandaddy Lee will take them on. Lee has been known to shock a few neighbors while driving in full costume! Example: a cheerleader, a cow, a pirate, or Juan Valdes complete with the dashing mustache. I believe the year he dressed as "Miss Kitty" from the old Matt Dillon show was the best!
When they return they are usually cold and hungry and those who remained behind have a warm fire glowing in the backyard. We roast weiners, have hot dogs, chips, etc... and have roasted marshmellows for S'mores. There is plenty of hot cider or hot chocolate to warm those little goblins. It is truly one of our best parties of the year!
So now you can understand why this month is especially meaningful to us. We will miss this annual gathering and we plan to continue again next year................it may be a little different, but still a lot of fun!
more later...........................................Brenda
Today began with the usual a.m. vitals for me to log on Lee. He seems to have lost the 4 or so pounds that he had gained. He now weighs 160 lbs. I suppose the good news is that at least he is not retaining fluid. That can sometimes be one of the signs of rejection. After Lee was settled in his recliner with his morning cup of coffee, I gathered the dirty clothes and headed to the laundry room before the maids came to work. After they arrive, it is impossible to get into the laundry room until after 5:00 p.m. It will be wonderful to have my own laundry area when we return home!
Lee was able to go to the Center for the Living this afternoon for a short session. That was good since he missed his time there on Friday. He will only be able to get two days in next week because of all the procedures that will be done.
We really miss being home on the farm this time of the year. Most of you know that Lee and I always give a Halloween party for our family. We usually have it the 2nd or 3rd week-end of October because the children have other plans closer to Halloween. We have always enjoyed having everyone come in costume and the children are always delighted to see that Nana and Grandaddy are also in costume. All of our adult children try to compete with each other for the most original costume and we never give a prize for the "best" because they are all "the Best"!
We gather in the backyard around the gazebo and just before dark the children, grandchildren, aunts and uncles all crawl into the big haywagon along with blankets for the hayride that Grandaddy Lee will take them on. Lee has been known to shock a few neighbors while driving in full costume! Example: a cheerleader, a cow, a pirate, or Juan Valdes complete with the dashing mustache. I believe the year he dressed as "Miss Kitty" from the old Matt Dillon show was the best!
When they return they are usually cold and hungry and those who remained behind have a warm fire glowing in the backyard. We roast weiners, have hot dogs, chips, etc... and have roasted marshmellows for S'mores. There is plenty of hot cider or hot chocolate to warm those little goblins. It is truly one of our best parties of the year!
So now you can understand why this month is especially meaningful to us. We will miss this annual gathering and we plan to continue again next year................it may be a little different, but still a lot of fun!
more later...........................................Brenda
Friday, October 15, 2010
And He Sleeps & Sleeps, etc....
This has been an unusual Friday. Normally we would have left around 12:30 to go to the Center for the Living, however, Lee just could not stay awake long enough to get ready to go. It seems that all he wanted to do was sleep, sleep, sleep. I had to wake him for everything! Breakfast, medicine, insulin, even the I.V. meds. He just said he was very, very tired. Whenever it was time to get ready to leave, he told me he could not do it. He said he was too weak to walk and that he just wanted to go back to bed. I agreed with him even though I knew it would be in his best interest to go on to the CFL.
After he fell asleep again, I decided to read the drug information again because yesterday he began taking two more new drugs. I realized that it was probably the reglan. I called our lung transplant coordinator and was delighted to reach her immediately. (Sometimes we have to leave messages and they return at their convenience). She agreed with me that it was probably the reglan and said she would call the doctor and get back with me. Within an hour she did call back and told me to discontinue the reglan. She also explained that this happens sometime and that everyone reacts differently.
So, now it is 4:10 in the afternoon, his last dose was @ 11:30 a.m. and he is finally beginning to wake up. He continues to have some weakness. He will be able to catch up at the CFL on Saturday as they have scheduled him to come on Saturdays to try to build his strength.
It has been quite chilly here in Durham in the mornings, but this afternoon has been beautiful. There is a lot of pollen in the air (my car was yellow instead of white) and I have this wicked sore throat from pollen. I have been wearing a mask around Lee just in case it is bacterial or viral.
Dennis dropped by briefly this morning with a box of goodies. He brought pinto beans, asian pears, blueberry cobbler with pecan crust, camomille tea for my throat and fresh lemon mint and rosemary. Lee and I enjoyed our pear, remembering that we have two of those special trees in our back yard. Having the beans inspired me to cook the greens that were withering in the frig.......so now the condo "stinks" as Lee said. We are looking forward to this meal with a big wedge of cornbread.
We found out today that Lee is scheduled next Wednesday for another x-ray of his stomach. This time they want to evaluate how slowly or quickly his stomach empties. He will have a very busy week next week............Monday, Bronchoscopy, Wednesday, Lab and x-ray, Thursday, Gastroscopy. The next week he will have clinic and Doctor's visit on Tuesday. Hopefully, we will get the results from all.
That is it for now...............just a lazy day, waiting for Lee to "wake up"!
More Later...............................................Brenda
After he fell asleep again, I decided to read the drug information again because yesterday he began taking two more new drugs. I realized that it was probably the reglan. I called our lung transplant coordinator and was delighted to reach her immediately. (Sometimes we have to leave messages and they return at their convenience). She agreed with me that it was probably the reglan and said she would call the doctor and get back with me. Within an hour she did call back and told me to discontinue the reglan. She also explained that this happens sometime and that everyone reacts differently.
So, now it is 4:10 in the afternoon, his last dose was @ 11:30 a.m. and he is finally beginning to wake up. He continues to have some weakness. He will be able to catch up at the CFL on Saturday as they have scheduled him to come on Saturdays to try to build his strength.
It has been quite chilly here in Durham in the mornings, but this afternoon has been beautiful. There is a lot of pollen in the air (my car was yellow instead of white) and I have this wicked sore throat from pollen. I have been wearing a mask around Lee just in case it is bacterial or viral.
Dennis dropped by briefly this morning with a box of goodies. He brought pinto beans, asian pears, blueberry cobbler with pecan crust, camomille tea for my throat and fresh lemon mint and rosemary. Lee and I enjoyed our pear, remembering that we have two of those special trees in our back yard. Having the beans inspired me to cook the greens that were withering in the frig.......so now the condo "stinks" as Lee said. We are looking forward to this meal with a big wedge of cornbread.
We found out today that Lee is scheduled next Wednesday for another x-ray of his stomach. This time they want to evaluate how slowly or quickly his stomach empties. He will have a very busy week next week............Monday, Bronchoscopy, Wednesday, Lab and x-ray, Thursday, Gastroscopy. The next week he will have clinic and Doctor's visit on Tuesday. Hopefully, we will get the results from all.
That is it for now...............just a lazy day, waiting for Lee to "wake up"!
More Later...............................................Brenda
Thursday, October 14, 2010
meds, meds and more meds
Today has been one of those days when I have had many phone calls in regards to Lee's medication. The reason for this is because the systems are interconnected. To explain: The lung transplant coordinator calls me or Lee and informs us what the changes or additions will be. This is followed by a call from both the pharmacy and the I.V. distribution center to let us know that the medication is ready or will be delivered. Next, we get a call from the delivery person announcing a time for the delivery. Sometimes there are calls concerning the results of Lee's lab reports, or calls to schedule either a lab visit or a clinic visit or another procedural appointment. Usually all of these do not occur on the same day, however, today they did.
I am anxious to get the medications started. The I.V. antibiotic will start @ bedtime and the nebulizer (an enhaler that is operated via an electric pump) with an antibiotic will begin in the a.m. He will continue to use this once each day for the remaining time here and possibly on the return home. I know that Lee will begin to feel better within 12 hours of the medication. He seems to have a very stubborn bacterial infection. I was concerned that he may have a megalovirus and was relieved to learn today that the test for that was NEGATIVE. GOOD!
Once again, we have been on this up and down roller-coaster. First, everthing is going very well and in a matter of two or three days, Lee has slipped into a brief period of fatigue or general malaise as compared to earlier. These latest ones have been treated from the home area without hospitilization and that is a huge advantage for both of us, especially Lee. We are so glad that these latest ones are very small "bumps" in the road as compared to those in July and August.
I have to admit that I am having withdrawal from my good friends, Gloria and Veda. Both have returned home permanently but will be back in a few weeks for some procedures. We had become a support group for each other, meeting in the courtyard and discussing any and all things in our daily lives as caregivers. It was always good to compare notes and learn from each other's experiences. In addition, there were times when we each gave to the other a good strong shoulder to cry on.
I know that those good strong shoulders are also available to me when we can return to our home through our many friends, family and our wonderful neighbors. For all of those, I am eternally grateful and look forward to our homecoming.
More Later......................................Brenda
I am anxious to get the medications started. The I.V. antibiotic will start @ bedtime and the nebulizer (an enhaler that is operated via an electric pump) with an antibiotic will begin in the a.m. He will continue to use this once each day for the remaining time here and possibly on the return home. I know that Lee will begin to feel better within 12 hours of the medication. He seems to have a very stubborn bacterial infection. I was concerned that he may have a megalovirus and was relieved to learn today that the test for that was NEGATIVE. GOOD!
Once again, we have been on this up and down roller-coaster. First, everthing is going very well and in a matter of two or three days, Lee has slipped into a brief period of fatigue or general malaise as compared to earlier. These latest ones have been treated from the home area without hospitilization and that is a huge advantage for both of us, especially Lee. We are so glad that these latest ones are very small "bumps" in the road as compared to those in July and August.
I have to admit that I am having withdrawal from my good friends, Gloria and Veda. Both have returned home permanently but will be back in a few weeks for some procedures. We had become a support group for each other, meeting in the courtyard and discussing any and all things in our daily lives as caregivers. It was always good to compare notes and learn from each other's experiences. In addition, there were times when we each gave to the other a good strong shoulder to cry on.
I know that those good strong shoulders are also available to me when we can return to our home through our many friends, family and our wonderful neighbors. For all of those, I am eternally grateful and look forward to our homecoming.
More Later......................................Brenda
Wednesday, October 13, 2010
A tiring day for Lee
Our day began by getting up @ 6:00 and rushing out the door @ 8:00. This included packing Lee's morning & noon meds to include all the insulin paraphanalia. He had to be at Duke North (hospital) @ 8:30 for another chest x-ray and a barium swallow (ugh!) While he was busy drinking the "stuff" and rolling around on the table for all the incredible positions for pictures of his GI tract, I was enjoying meeting new transplant potentials and their spouses in the waiting room.
As I have shared with you before, everywhere we go, we are introduced to new people and we listen to more amazing stories. Both of the couples I met today were from Atlanta. The husband began to develop a cough about two years ago and now he not only has pulmonary fibrosis, he also has fibrosis of the liver. He is being evaluated for a bilateral lung transplant and liver transplant. He appeared to be in his late 50's or early 60's. He looked very weak and sick and his color was pale yellow. The other was the wife and she had pulmonary fibrosis. She is 65 years old and her illness also appeared suddenly like Lee's did. We have been amazed at the number of people who have IPF. It seems as though two out of three are afflicted with this condition.
After the barium swallow, we went to the clinic for Lee to have blood work and to wait for the doctor's appointment @ 1:00. We arrived at the clinic around 11:00 and just had a snack in the waiting area. Lee was so full of barium that he had no appetite. I did have to check blood sugar and give him his insulin though.
When we finally saw the doctor around 2:30, we were given some additional information. It seems that the barium swallow showed two existing conditions:
1. Esophageal motility is sluggish
2. Possible gastric stress ulcer (from the prednisone)
He was given a prescription for Reglan to help the esophagus and he is now scheduled for a gastroscopy procedure next Wednesday afternoon.
He was also placed on a new anti-rejection medication and taken off another one.
He will have to go back on the I.V. antibiotic that will begin tomorrow.
Next week will be another busy week because he also has a bronchoscopy on Monday morning.
We were told that we would most likely be able to go home BEFORE Thanksgiving. So, looks like we are here for another month.
As you can see, no one goes home until Duke feels comfortable with their ability to be in the best possible condition. For that we are indeed grateful. Lee continues to need your prayers and so do I! We are, of course, terribly disappointed by not being able to return home earlier. Thank you for your loyal and faithful prayers and support.
More Later........................................Brenda
As I have shared with you before, everywhere we go, we are introduced to new people and we listen to more amazing stories. Both of the couples I met today were from Atlanta. The husband began to develop a cough about two years ago and now he not only has pulmonary fibrosis, he also has fibrosis of the liver. He is being evaluated for a bilateral lung transplant and liver transplant. He appeared to be in his late 50's or early 60's. He looked very weak and sick and his color was pale yellow. The other was the wife and she had pulmonary fibrosis. She is 65 years old and her illness also appeared suddenly like Lee's did. We have been amazed at the number of people who have IPF. It seems as though two out of three are afflicted with this condition.
After the barium swallow, we went to the clinic for Lee to have blood work and to wait for the doctor's appointment @ 1:00. We arrived at the clinic around 11:00 and just had a snack in the waiting area. Lee was so full of barium that he had no appetite. I did have to check blood sugar and give him his insulin though.
When we finally saw the doctor around 2:30, we were given some additional information. It seems that the barium swallow showed two existing conditions:
1. Esophageal motility is sluggish
2. Possible gastric stress ulcer (from the prednisone)
He was given a prescription for Reglan to help the esophagus and he is now scheduled for a gastroscopy procedure next Wednesday afternoon.
He was also placed on a new anti-rejection medication and taken off another one.
He will have to go back on the I.V. antibiotic that will begin tomorrow.
Next week will be another busy week because he also has a bronchoscopy on Monday morning.
We were told that we would most likely be able to go home BEFORE Thanksgiving. So, looks like we are here for another month.
As you can see, no one goes home until Duke feels comfortable with their ability to be in the best possible condition. For that we are indeed grateful. Lee continues to need your prayers and so do I! We are, of course, terribly disappointed by not being able to return home earlier. Thank you for your loyal and faithful prayers and support.
More Later........................................Brenda
Tuesday, October 12, 2010
TGFM
Thank God For Margaret! She was able to go to our house, locate the forgotten computer and take it to the UPS for overnight delivery. The computer arrived today around 10:30 a.m. I believe it has now become an appendage to my body..............I felt like it had been amputated!
We had a wonderful, wonderful week-end in Vale. On Friday morning, Lee was taken by his neighbor Bill, to get his driver's license renewed. It was due in May, however, Lee was too ill at that time to get it. Now that he has his license to drive he may become more independent. So far, I am still driving. We had some time to visit with many of our neighbors, family and friends. We were not able to see everyone but we will with time. I did some grocery shopping and prepared some meals in my kitchen. It is so good to get in my kitchen...........I did find that I had already forgotten where some untensils were located!
On Friday night, Lee was able to go to his college football reunion of the championship players. When we arrived at the country club we were surprised to see so many cars. We were under the impression that it would only be Lee's college year of champions and expected to visit with approximately 40-50 people. There were probably 300 people there! Fortunately for us, most of the people stayed in the main dining room away from us allowing Lee to visit in the smaller room. He did have to walk through the large room for recognition and I was somewhat uncomfortable with the large crowd. He was only there about 10 minutes when I motioned for him to LEAVE.................as we were exiting the room, the cheerleaders (from college years) found him..............hum?! Hard to keep them away!
Saturday was busy with visits again and I was busy preparing food for a visit from Dennis and Betsy who were coming for Greg's (son) piano concert. They arrived around 3:00 and after a quick meal, we hurridly dressed and left for the concert in Lenoir. We saw many of our friends and family at the civic center. It was good to discover that our seats were in a more isolated area. Unfortunately, our seats did not allow us a good view of our son playing the piano and neither did we have good sound from the piano. The orchestra overpowered the piano. After talking to many others, particularly in the mezzinine, I was happy to learn that the sound was very good there. We were honored to be the parents of our very talented son. Tonight he is having a repeat performance in Gaffney, S.C.
Sunday was a whirlwind of busyness to prepare to return to Durham. The ride home was uneventful (especially with my driving). It was hard to leave again but good to know that our time in Durham is coming to a close.
So.............there you have it..............our week-end. We are now settled back in Durham. Tomorrow morning Lee has a Barium swallow @ 9:00, followed by clinic and to see the doctor @ 1:00. He is also scheduled for a Bronchoscopy on Monday morning. Hopefully that will determine the cause of this persistant, productive cough that insists on staying with him.
Missed you all!
More Later....................................Brenda
We had a wonderful, wonderful week-end in Vale. On Friday morning, Lee was taken by his neighbor Bill, to get his driver's license renewed. It was due in May, however, Lee was too ill at that time to get it. Now that he has his license to drive he may become more independent. So far, I am still driving. We had some time to visit with many of our neighbors, family and friends. We were not able to see everyone but we will with time. I did some grocery shopping and prepared some meals in my kitchen. It is so good to get in my kitchen...........I did find that I had already forgotten where some untensils were located!
On Friday night, Lee was able to go to his college football reunion of the championship players. When we arrived at the country club we were surprised to see so many cars. We were under the impression that it would only be Lee's college year of champions and expected to visit with approximately 40-50 people. There were probably 300 people there! Fortunately for us, most of the people stayed in the main dining room away from us allowing Lee to visit in the smaller room. He did have to walk through the large room for recognition and I was somewhat uncomfortable with the large crowd. He was only there about 10 minutes when I motioned for him to LEAVE.................as we were exiting the room, the cheerleaders (from college years) found him..............hum?! Hard to keep them away!
Saturday was busy with visits again and I was busy preparing food for a visit from Dennis and Betsy who were coming for Greg's (son) piano concert. They arrived around 3:00 and after a quick meal, we hurridly dressed and left for the concert in Lenoir. We saw many of our friends and family at the civic center. It was good to discover that our seats were in a more isolated area. Unfortunately, our seats did not allow us a good view of our son playing the piano and neither did we have good sound from the piano. The orchestra overpowered the piano. After talking to many others, particularly in the mezzinine, I was happy to learn that the sound was very good there. We were honored to be the parents of our very talented son. Tonight he is having a repeat performance in Gaffney, S.C.
Sunday was a whirlwind of busyness to prepare to return to Durham. The ride home was uneventful (especially with my driving). It was hard to leave again but good to know that our time in Durham is coming to a close.
So.............there you have it..............our week-end. We are now settled back in Durham. Tomorrow morning Lee has a Barium swallow @ 9:00, followed by clinic and to see the doctor @ 1:00. He is also scheduled for a Bronchoscopy on Monday morning. Hopefully that will determine the cause of this persistant, productive cough that insists on staying with him.
Missed you all!
More Later....................................Brenda
How to Comment
This is Julia again, filling in for Mom. I've heard many of you say that you can't figure out a way to comment on the blog post. With my computer, the following steps work. Give it a try:
Click the word "comment" at the end of the post
Type your comment in the box
Click the drop down arrow beside of the words "comment as"
Select "name/URL"
Type in your name
Click "post comment"
Scroll down and click "post comment" a second time
(for some reason I always have to click this twice)
Best wishes, and thank you for all of the love and support that you have given to my parents over this past difficult year.
Click the word "comment" at the end of the post
Type your comment in the box
Click the drop down arrow beside of the words "comment as"
Select "name/URL"
Type in your name
Click "post comment"
Scroll down and click "post comment" a second time
(for some reason I always have to click this twice)
Best wishes, and thank you for all of the love and support that you have given to my parents over this past difficult year.
Monday, October 11, 2010
LEFT BEHIND
Hello bloggers! This is daughter --Julia, writing tonight's entry for Nana. In her hustle and bustle to pack from the farm and return to Durham -- she left her computer in Vale! They want you to know that they had an absolutely wonderful weekend at home, and she looks forward to "blogging" all of the details to you. They are very hopeful that their next trip home will be "for good". Then they won't have to worry any more about leaving anything behind. I believe that one of their incredible neighbors (Margaret) is going to ship the computer to Durham -- so hopefully by tomorrow night -- the blog entry will continue from Nana herself, instead of me (I'm definitely a very poor substitute). Until then...good night to all, and know that all is well. --Julia
Thursday, October 7, 2010
Edit to yesterday's post
On yesterday's blog I wrote examples of the precautions that must be taken now that Lee is ready to come home. Please allow me to be more detailed about the one concerning pregnant women:
One of the medications is for rejection. It is only a precaution to be taken around pregnant women under following circumstances:
1. THE MEDICATION IS BEING ADMINISTERED WITH THE CAPSULE BEING OPENED AND THE MEDICATION IS GIVEN UNDER THE TONGUE
2. A PREGNANT PERSON WOULD HAVE TO BE WITHIN 6 FEET OF THE PERSON TAKING THE DRUG
3. A PREGNANT PERSON MAY BE IN THE VICINITY WHILE WEARING A MASK
At this tine, Lee does NOT open the capsule and has never opened it except when in the hospital. During that time, anyone in the room had to mask.
I hope I have not alarmed you and rest assured if Lee ever has to open the capsule we will make sure it is in privacy with no one around.
Thanks,
Brenda
One of the medications is for rejection. It is only a precaution to be taken around pregnant women under following circumstances:
1. THE MEDICATION IS BEING ADMINISTERED WITH THE CAPSULE BEING OPENED AND THE MEDICATION IS GIVEN UNDER THE TONGUE
2. A PREGNANT PERSON WOULD HAVE TO BE WITHIN 6 FEET OF THE PERSON TAKING THE DRUG
3. A PREGNANT PERSON MAY BE IN THE VICINITY WHILE WEARING A MASK
At this tine, Lee does NOT open the capsule and has never opened it except when in the hospital. During that time, anyone in the room had to mask.
I hope I have not alarmed you and rest assured if Lee ever has to open the capsule we will make sure it is in privacy with no one around.
Thanks,
Brenda
Wednesday, October 6, 2010
Traveling Mercies
We are packed and ready to leave by 9:00 tomorrow! It will be so good to get home for a few days. This will be an especially good trip home because Lee is now able to do so many more things. He is so much stronger now and he is looking forward to becoming more actively involved in many of the things he did before he became ill.
Our home health nurse came by around 7:00 this evening to change the dressing on Lee's PICC line. (No, I am not allowed to do that). Anyway, we were talking about going home for a few days and as she was leaving she said, "Traveling Mercies". I did not know what she meant and she explained that in some areas, particularly in this area, it is said to wish you a "safe travel". Lee said he was familiar with the term but didn't use it and I, of course, if I had heard it, forgot it.
On the way back from the Center for the Living we talked to Julia and learned that many of our friends and family will be attending Greg's concert. We are looking forward not only to the performance but also to seeing so many of you there. Right now, Lee is planning on going. At first we thought it best to avoid the crowds but the doctor gave him a thumbs up to go. To put it in his words, "you have to continue to have a life. You just have to use good judgement and carry a mask and hand sanitizer with you. When you hear someone coughing, put the mask on and ALWAYS use the hand sanitizer after handshakes. It is best to avoid ALL HUGS and close contact." So with that in mind, we are sure whenever you are around Lee you will help us by remembering these things.
I am asking you to try not to find me a bit overbearing on the subject of "what we must do now". You have to understand that the closer we get to coming home the more I feel the responsibility to prepare everyone. We plan to continue to see our family and friends, to go to church and to attend other important events. We just have to keep "protection" always in our minds. There are so many issues that you just never think about until you are in that situation. For example: Lee cannot be around babies within three weeks of their vaccine. Babies receive "live vaccines" and there is a possibility that he could become infected just by being around the baby at that time. Some of the medication that Lee takes is dangerous for pregnant women and they should be careful when around Lee as long as he is on that medicine. This is one that he will probably be on the rest of his life.
Lee and I have had four months to adjust to accepting these standards. The post-lung transplant coordinators, doctors, therapists at the CFL are all excellent in keeping us informed and answering all questions we have. Another area of learning is in the sharing of information with other patients and their caregivers. It will take some time for everyone to adjust and then it will become normal for all.
We are anxious to leave and will leave as soon as we can tomorrow morning. Our plans are to try to be in Vale by 1-2:00.
Traveling Mercies.........
More Later................................................Brenda
Our home health nurse came by around 7:00 this evening to change the dressing on Lee's PICC line. (No, I am not allowed to do that). Anyway, we were talking about going home for a few days and as she was leaving she said, "Traveling Mercies". I did not know what she meant and she explained that in some areas, particularly in this area, it is said to wish you a "safe travel". Lee said he was familiar with the term but didn't use it and I, of course, if I had heard it, forgot it.
On the way back from the Center for the Living we talked to Julia and learned that many of our friends and family will be attending Greg's concert. We are looking forward not only to the performance but also to seeing so many of you there. Right now, Lee is planning on going. At first we thought it best to avoid the crowds but the doctor gave him a thumbs up to go. To put it in his words, "you have to continue to have a life. You just have to use good judgement and carry a mask and hand sanitizer with you. When you hear someone coughing, put the mask on and ALWAYS use the hand sanitizer after handshakes. It is best to avoid ALL HUGS and close contact." So with that in mind, we are sure whenever you are around Lee you will help us by remembering these things.
I am asking you to try not to find me a bit overbearing on the subject of "what we must do now". You have to understand that the closer we get to coming home the more I feel the responsibility to prepare everyone. We plan to continue to see our family and friends, to go to church and to attend other important events. We just have to keep "protection" always in our minds. There are so many issues that you just never think about until you are in that situation. For example: Lee cannot be around babies within three weeks of their vaccine. Babies receive "live vaccines" and there is a possibility that he could become infected just by being around the baby at that time. Some of the medication that Lee takes is dangerous for pregnant women and they should be careful when around Lee as long as he is on that medicine. This is one that he will probably be on the rest of his life.
Lee and I have had four months to adjust to accepting these standards. The post-lung transplant coordinators, doctors, therapists at the CFL are all excellent in keeping us informed and answering all questions we have. Another area of learning is in the sharing of information with other patients and their caregivers. It will take some time for everyone to adjust and then it will become normal for all.
We are anxious to leave and will leave as soon as we can tomorrow morning. Our plans are to try to be in Vale by 1-2:00.
Traveling Mercies.........
More Later................................................Brenda
Tuesday, October 5, 2010
Departures
It seems as though all the people who had their lung surgery about the same time as Lee have received their discharge notices and may return home! This is such good news because we are anticipating the same news when we have our next clinic appointment on October 13.
Our neighbors, Jerry and Gloria from Wilmington, Veda and Nancy from Oak Island, Larry and Martha from Georgia and others are now either at home or will be leaving during the next two to three days. Those who have resided here at Duke Towers along with us for the past four months will surely be missed. It will be sad to part, but so good to be going home! We are very happy for all of them and look forward to October 13 to see what the doctor says. He did tell us that if everything remained the same and there were no changes that Lee would probably be discharged then.
Today has been a very busy day....................especially for me. I don't think I have stopped for longer than five minutes since getting up this morning. There was much to do this morning and after I dropped Lee off at the Center for Living I had many errands to run. By the time I finished, it was time to return to the CFL, then back to the condo........supper to prepare, etc............................Finished in time to see who has to leave "Dancing with the Stars". Lee and I usually have "bets" on who stays or who goes. I love to watch it for the dancing................wonder what Lee watches it for?! Of Course!
At any rate, it is one that we usually follow to the end. Good to have some entertainment.
Lee continues to improve. Today he increased his laps by two................He is now walking 7 laps in addition to all the other activities. He has done so well that he was able to have a treat of sister Lennie's pound cake for his snack at the Living Center. Of course his blood sugar was over 200, but we just adjusted the insulin. After all, he needs to gain weight and what better way than with his favorite dessert!
We are so excited about leaving for home over the 8th, 9th and 10th. If you do not have a blog to read on Thursday, Friday, Saturday or Sunday.....................I will return on Sunday night.
More Later..........................................Brenda
Our neighbors, Jerry and Gloria from Wilmington, Veda and Nancy from Oak Island, Larry and Martha from Georgia and others are now either at home or will be leaving during the next two to three days. Those who have resided here at Duke Towers along with us for the past four months will surely be missed. It will be sad to part, but so good to be going home! We are very happy for all of them and look forward to October 13 to see what the doctor says. He did tell us that if everything remained the same and there were no changes that Lee would probably be discharged then.
Today has been a very busy day....................especially for me. I don't think I have stopped for longer than five minutes since getting up this morning. There was much to do this morning and after I dropped Lee off at the Center for Living I had many errands to run. By the time I finished, it was time to return to the CFL, then back to the condo........supper to prepare, etc............................Finished in time to see who has to leave "Dancing with the Stars". Lee and I usually have "bets" on who stays or who goes. I love to watch it for the dancing................wonder what Lee watches it for?! Of Course!
At any rate, it is one that we usually follow to the end. Good to have some entertainment.
Lee continues to improve. Today he increased his laps by two................He is now walking 7 laps in addition to all the other activities. He has done so well that he was able to have a treat of sister Lennie's pound cake for his snack at the Living Center. Of course his blood sugar was over 200, but we just adjusted the insulin. After all, he needs to gain weight and what better way than with his favorite dessert!
We are so excited about leaving for home over the 8th, 9th and 10th. If you do not have a blog to read on Thursday, Friday, Saturday or Sunday.....................I will return on Sunday night.
More Later..........................................Brenda
Monday, October 4, 2010
....Mostly Monday
In trying to describe today I asked Lee for a description of today..............since neither of us could really find a "catchy" phrase, we just decided it was mostly Monday.
I suppose by that we mean that:
1. We had to get out of bed a little earlier
2. There is always a busier schedule to begin the week
3. We are a little slower getting started than on the previous Friday or other week-days
4. We must be honest and admit.......some laziness
The good thing about Monday is that the weather here has been phenomenal! Crisp, clear mornings and temperature high was 68 degrees. After leaving Lee at the Center for the Living, I came back the condo and decided to read for a while. I have some really good books that I ordered from Barnes & Noble and today was the perfect time. I must have dozed off after the first page! Had a good 2 hours of rest!
When I returned to pick up Lee @ 4:00, he had finished a little early (this is good as it means he can now move through all the exercises faster). He was able to walk an extra lap today in addition to all the other exercises. He did seem a little more tired. Mondays are harder because he is not able to continue the intensive workout over the week-ends. Walking alone is not quite enough to maintain the strength and endurance that he acquires at the CFL.
Needless to say, within thirty minutes after returning to the condo, Lee was fast asleep in his recliner. He had a light snack of ICE CREAM first and was eager to relax for a while. Even though the ice cream was both sugar free and fat free, his blood sugar prior to supper was a whopping 200 +!
So, as you can see, it was just an uneventful day. How wonderful it is to have a day again that is just that...............a normal, mostly day. No high drama, no emergencies, it was Mostly Monday.
More Later.................................................Brenda
I suppose by that we mean that:
1. We had to get out of bed a little earlier
2. There is always a busier schedule to begin the week
3. We are a little slower getting started than on the previous Friday or other week-days
4. We must be honest and admit.......some laziness
The good thing about Monday is that the weather here has been phenomenal! Crisp, clear mornings and temperature high was 68 degrees. After leaving Lee at the Center for the Living, I came back the condo and decided to read for a while. I have some really good books that I ordered from Barnes & Noble and today was the perfect time. I must have dozed off after the first page! Had a good 2 hours of rest!
When I returned to pick up Lee @ 4:00, he had finished a little early (this is good as it means he can now move through all the exercises faster). He was able to walk an extra lap today in addition to all the other exercises. He did seem a little more tired. Mondays are harder because he is not able to continue the intensive workout over the week-ends. Walking alone is not quite enough to maintain the strength and endurance that he acquires at the CFL.
Needless to say, within thirty minutes after returning to the condo, Lee was fast asleep in his recliner. He had a light snack of ICE CREAM first and was eager to relax for a while. Even though the ice cream was both sugar free and fat free, his blood sugar prior to supper was a whopping 200 +!
So, as you can see, it was just an uneventful day. How wonderful it is to have a day again that is just that...............a normal, mostly day. No high drama, no emergencies, it was Mostly Monday.
More Later.................................................Brenda
Sunday, October 3, 2010
Happiness & Sadness
Another good day today! We were able to "visit" our church in Lincolnton via DVD today and were surprised to learn that our good friend Sonny H. was hospitilized @ Presbyterian in Charlotte. At the time, we did not know the circumstances.
Dennis and Betsy dropped by after going to church @ Duke chapel. We followed them to Raleigh to visit Roger and Genice.
Lee was able to walk at all times WITHOUT the assistance of his rolator! We had it in the car but he did not use it at all. That was so good!!!!!! He amazes me at the progress he continues to make. We had a delicious lunch, however; between the main course and prior to having Genices's famous cheesecake, I gave Lee his I.V. medication. In my excitement upon arriving at their beautiful home, I forgot to administer the medication that was due at that time. It isn't often that one interrupts everyone's meal with an I.V. administered at the table! (we may never get invited back!).
All in all, it was a good afternoon. We celebrated Dennis's birthday (which is tomorrow) and I am sure I am forgiven for the poor timing of the I.V. We were back at the condo by 4:00 and Lee watched the end of the Panther's game and part of another while I visited my friends here at the condo. While I was outside in the courtyard, Lee walked and also visited some of our neighbors here. It is good to watch his independence and his confidence returning.
When I checked my voice mail later, we were saddened to learn that our good friend Sonny H. had died the previous Thurs. or Friday and his funeral was today. We will remember his dear wife Evy in our prayers tonight. We are saddened that we could not be there for her.
So life goes on, doesn't it? Some days are filled with joy and others with some sadness entwined. Today was one of those days....................happiness with the visit with family members and sadness for losing a friend.
More Later................................................Brenda
Dennis and Betsy dropped by after going to church @ Duke chapel. We followed them to Raleigh to visit Roger and Genice.
Lee was able to walk at all times WITHOUT the assistance of his rolator! We had it in the car but he did not use it at all. That was so good!!!!!! He amazes me at the progress he continues to make. We had a delicious lunch, however; between the main course and prior to having Genices's famous cheesecake, I gave Lee his I.V. medication. In my excitement upon arriving at their beautiful home, I forgot to administer the medication that was due at that time. It isn't often that one interrupts everyone's meal with an I.V. administered at the table! (we may never get invited back!).
All in all, it was a good afternoon. We celebrated Dennis's birthday (which is tomorrow) and I am sure I am forgiven for the poor timing of the I.V. We were back at the condo by 4:00 and Lee watched the end of the Panther's game and part of another while I visited my friends here at the condo. While I was outside in the courtyard, Lee walked and also visited some of our neighbors here. It is good to watch his independence and his confidence returning.
When I checked my voice mail later, we were saddened to learn that our good friend Sonny H. had died the previous Thurs. or Friday and his funeral was today. We will remember his dear wife Evy in our prayers tonight. We are saddened that we could not be there for her.
So life goes on, doesn't it? Some days are filled with joy and others with some sadness entwined. Today was one of those days....................happiness with the visit with family members and sadness for losing a friend.
More Later................................................Brenda
Saturday, October 2, 2010
Walk, Walk and more Walk
Lee has done a lot of walking today! Since the doctor told him this past Wednesday that he could go home whenever he started "burning up the track" at the Center for Living, he has been walking around the walkway here at the condo. Of course having this wonderful cool weather has also been an inspiration to get outside and walk. Lee walked this morning and was gone for so long that I went outside to check on him. He was across the courtyard toward the back visiting with one of our neighbors. It is so good to watch him go about independently now. He leaves the condo WITHOUT ME, and walks and visits. That gives you some idea of how improved he has become in these past two weeks.
This afternoon we, along with our neighbors, Jerry and Gloria, rode to one of the shopping areas. This one was North Pointe. It is a small shopping area but had lots of good walking areas outside. Lee and Jerry walked while Gloria and I shopped at Bed, Bath and Beyond, Ross, and the Dollar Tree. The boys were able to enjoy each other's company and the girls were able to shop, shop, shop. Gloria and I laughed because mostly we just looked. We could not buy anything because our condos are so small that we do not have the storage space! A good way to curb spending is to live in small places!
Lee and I are doing well with the new antibiotic. I am doing well because it works very well around a good sleep schedule for the night. Lee is responding very well and seems to be feeling so much better. Before he began this new antibiotic he was coughing constantly in the mornings and had a productive cough. He even coughed off and on throughout the day. Within 12 hours of the 1st and 2nd doses of this drug, he began to stop coughing and he began to feel so much better. His appetite has improved and he has actually gained 4 pounds! I believe the infection was pulling him down. I still do not understand why it took so long to determine which antibiotic he was sensitive to. Six weeks is a long time to continue along with a lung infection.
We are excited to be getting ready to return home for a few days next week. Lee is planning to go to his football reunion for a couple of hours on Friday night. I have already given him the lecture on the "wearing of his mask" and to remember the purell hand sanitizer after handshakes. We have tried to encourage everyone to use "knukle bumps" instead of hand shakes. I try to remind everyone to remember NO HUGS & KISSES ( even though Lee will surely miss those from the Ladies)! We must all work together to try to prevent Lee from getting a lung infection again.
I am looking forward to Greg's concert on Saturday night........................hope to see some of you there!
It will be good to come home for a few days and eventually for good.
More Later................................................Brenda
This afternoon we, along with our neighbors, Jerry and Gloria, rode to one of the shopping areas. This one was North Pointe. It is a small shopping area but had lots of good walking areas outside. Lee and Jerry walked while Gloria and I shopped at Bed, Bath and Beyond, Ross, and the Dollar Tree. The boys were able to enjoy each other's company and the girls were able to shop, shop, shop. Gloria and I laughed because mostly we just looked. We could not buy anything because our condos are so small that we do not have the storage space! A good way to curb spending is to live in small places!
Lee and I are doing well with the new antibiotic. I am doing well because it works very well around a good sleep schedule for the night. Lee is responding very well and seems to be feeling so much better. Before he began this new antibiotic he was coughing constantly in the mornings and had a productive cough. He even coughed off and on throughout the day. Within 12 hours of the 1st and 2nd doses of this drug, he began to stop coughing and he began to feel so much better. His appetite has improved and he has actually gained 4 pounds! I believe the infection was pulling him down. I still do not understand why it took so long to determine which antibiotic he was sensitive to. Six weeks is a long time to continue along with a lung infection.
We are excited to be getting ready to return home for a few days next week. Lee is planning to go to his football reunion for a couple of hours on Friday night. I have already given him the lecture on the "wearing of his mask" and to remember the purell hand sanitizer after handshakes. We have tried to encourage everyone to use "knukle bumps" instead of hand shakes. I try to remind everyone to remember NO HUGS & KISSES ( even though Lee will surely miss those from the Ladies)! We must all work together to try to prevent Lee from getting a lung infection again.
I am looking forward to Greg's concert on Saturday night........................hope to see some of you there!
It will be good to come home for a few days and eventually for good.
More Later................................................Brenda
Friday, October 1, 2010
Our Thankful Hearts
This morning while Lee and I were watching The Morning Show we were able to see two families share their experience with a transplant. This particular program involved a heart transplant. The donor heart came from a 13 year-old daughter who had a skiing accident and was declared brain dead. The recipient was a 32 year-old mother of two who was dying of heart disease. Through a series of coincidinces and leads they were brought together. The mother of the child's donor heart listened to her child's heartbeat in the recipient. It was an extraodinary moment.
As we watched we were both moved to tears realizing once again this tremendous gift that was given to Lee. Without the donor lung, Lee would have died. The doctors have told us that he would not have lived through the Summer. As I type this blog, I look across the room at my husband who appears to be healthy and normal. He is now able to walk greater distances without the help of the rolator and even has a slight spring in his step. As he is sitting there, he is enjoying breaths of air that now enter the new lung without any struggle whatsoever. His color is nice and pink and he is now the picture of health. How grateful I am to the family of the donor lung! It is with thankful hearts that we offer this prayer of thanksgiving for the skill of the surgeons, the compassion of the caregivers both in the hospital and the clinic and for all our friends and family for accompanying us on this journey. Most of all, we thank the family of the donor lung for their generiosity in making a decision to help others during their own time of grief and sorrow.
The weather promises to be cool and lovely over the week-end. Tomorrow we plan to do a lot of walking practice and on Sunday we are looking forward to visiting neice, Genice and husband Roger for lunch in Raleigh. Dennis and Betsy plan to join us there. It is always a treat to be able to go places again.
We wish you all a wonderful Autumn week-end. Enjoy this lovely weather!
More Later..................................Brenda
As we watched we were both moved to tears realizing once again this tremendous gift that was given to Lee. Without the donor lung, Lee would have died. The doctors have told us that he would not have lived through the Summer. As I type this blog, I look across the room at my husband who appears to be healthy and normal. He is now able to walk greater distances without the help of the rolator and even has a slight spring in his step. As he is sitting there, he is enjoying breaths of air that now enter the new lung without any struggle whatsoever. His color is nice and pink and he is now the picture of health. How grateful I am to the family of the donor lung! It is with thankful hearts that we offer this prayer of thanksgiving for the skill of the surgeons, the compassion of the caregivers both in the hospital and the clinic and for all our friends and family for accompanying us on this journey. Most of all, we thank the family of the donor lung for their generiosity in making a decision to help others during their own time of grief and sorrow.
The weather promises to be cool and lovely over the week-end. Tomorrow we plan to do a lot of walking practice and on Sunday we are looking forward to visiting neice, Genice and husband Roger for lunch in Raleigh. Dennis and Betsy plan to join us there. It is always a treat to be able to go places again.
We wish you all a wonderful Autumn week-end. Enjoy this lovely weather!
More Later..................................Brenda
Thursday, September 30, 2010
Still Smiling!
I was so excited about the good news yesterday that I could not sleep last night! I was too busy packing in my mind. Today I have begun to settle a little..............still smiling though!
Lee had a very good day at The Center for the Living. I dropped him off at 12:30, returned to the condo, almost asleep as I was entertaining thoughts for a good nap. Moments after lying down, I remembered that Lee and I had not only forgotton to check his blood sugar before his lunch, he had not had his insulin! (We did have some interference because the nurse came and changed the dressing on his PICC line and we just became distracted.) Anyway, I gathered the monitor and the syringe and the insulin and headed back to the CFL.
Lee was on the floor doing the "floor exercises" and they use weights on their arms and legs. I waited until that session ended and proceeded to give him his insulin. I left immediately because this nap was still possible. I arrived at the condo only to remember that our neighbors wanted to share their supper and decided to make a pie. Nap was still on hold. By the time the pie was done, it was time to pick Lee up at the CFL @ 4:00.
When I got there he told me that during his walk, he did walk without the rolator, however; he just felt like his legs had weights on them. He continued walking and from there went to the stair for practice. He told the therapist that he was having some difficulty today because he just felt like he had weights on his legs. She promptly lifted his trousers and said, " Well, that is because you do have weights on your legs!" He had forgotten to remove his weights after the floor exercises! Guess I distracted him from his routine when I stopped in to give him his Insulin.
As you can see, it doesn't take much to distract us from our now very normal routines. I suppose age has a way of doing that to you. All in all, we manage very well and the light at the end of the tunnel is glowing brightly. YEAAAAAAAAH!!!!!!!
Never did get that nap...................tomorrow maybe............................
More Later......................................Brenda
Lee had a very good day at The Center for the Living. I dropped him off at 12:30, returned to the condo, almost asleep as I was entertaining thoughts for a good nap. Moments after lying down, I remembered that Lee and I had not only forgotton to check his blood sugar before his lunch, he had not had his insulin! (We did have some interference because the nurse came and changed the dressing on his PICC line and we just became distracted.) Anyway, I gathered the monitor and the syringe and the insulin and headed back to the CFL.
Lee was on the floor doing the "floor exercises" and they use weights on their arms and legs. I waited until that session ended and proceeded to give him his insulin. I left immediately because this nap was still possible. I arrived at the condo only to remember that our neighbors wanted to share their supper and decided to make a pie. Nap was still on hold. By the time the pie was done, it was time to pick Lee up at the CFL @ 4:00.
When I got there he told me that during his walk, he did walk without the rolator, however; he just felt like his legs had weights on them. He continued walking and from there went to the stair for practice. He told the therapist that he was having some difficulty today because he just felt like he had weights on his legs. She promptly lifted his trousers and said, " Well, that is because you do have weights on your legs!" He had forgotten to remove his weights after the floor exercises! Guess I distracted him from his routine when I stopped in to give him his Insulin.
As you can see, it doesn't take much to distract us from our now very normal routines. I suppose age has a way of doing that to you. All in all, we manage very well and the light at the end of the tunnel is glowing brightly. YEAAAAAAAAH!!!!!!!
Never did get that nap...................tomorrow maybe............................
More Later......................................Brenda
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