This has been an unusual Friday. Normally we would have left around 12:30 to go to the Center for the Living, however, Lee just could not stay awake long enough to get ready to go. It seems that all he wanted to do was sleep, sleep, sleep. I had to wake him for everything! Breakfast, medicine, insulin, even the I.V. meds. He just said he was very, very tired. Whenever it was time to get ready to leave, he told me he could not do it. He said he was too weak to walk and that he just wanted to go back to bed. I agreed with him even though I knew it would be in his best interest to go on to the CFL.
After he fell asleep again, I decided to read the drug information again because yesterday he began taking two more new drugs. I realized that it was probably the reglan. I called our lung transplant coordinator and was delighted to reach her immediately. (Sometimes we have to leave messages and they return at their convenience). She agreed with me that it was probably the reglan and said she would call the doctor and get back with me. Within an hour she did call back and told me to discontinue the reglan. She also explained that this happens sometime and that everyone reacts differently.
So, now it is 4:10 in the afternoon, his last dose was @ 11:30 a.m. and he is finally beginning to wake up. He continues to have some weakness. He will be able to catch up at the CFL on Saturday as they have scheduled him to come on Saturdays to try to build his strength.
It has been quite chilly here in Durham in the mornings, but this afternoon has been beautiful. There is a lot of pollen in the air (my car was yellow instead of white) and I have this wicked sore throat from pollen. I have been wearing a mask around Lee just in case it is bacterial or viral.
Dennis dropped by briefly this morning with a box of goodies. He brought pinto beans, asian pears, blueberry cobbler with pecan crust, camomille tea for my throat and fresh lemon mint and rosemary. Lee and I enjoyed our pear, remembering that we have two of those special trees in our back yard. Having the beans inspired me to cook the greens that were withering in the frig.......so now the condo "stinks" as Lee said. We are looking forward to this meal with a big wedge of cornbread.
We found out today that Lee is scheduled next Wednesday for another x-ray of his stomach. This time they want to evaluate how slowly or quickly his stomach empties. He will have a very busy week next week............Monday, Bronchoscopy, Wednesday, Lab and x-ray, Thursday, Gastroscopy. The next week he will have clinic and Doctor's visit on Tuesday. Hopefully, we will get the results from all.
That is it for now...............just a lazy day, waiting for Lee to "wake up"!
More Later...............................................Brenda
So glad they found out what was causing the sleepiness so quickly. I'm sure his body also needed the rest though. What a nice care package from Dennis and Betsy. That cobbler sounds like it could wake up anyone. Tell Grandaddy that he has to do Saturday detention at the CFL since he played hookie with those new drugs.
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