Hello, everyone. Brenda has asked that we share a link with everyone.
Duke Hospital has a free service allowing you to create a card over the internet and it will be hand delivered to his room. The card design appears to be generic, but your message will add the personal touch.
Here are the directions:
http://www.dukehealth.org/
and then select patients and visitors
then select " Send a card to a patient"
select " Duke University Hospital "
then fill out the information
Lee's room number right now is 3304
So, here is a way for us to get our messages of love and prayers to him.
Saturday, July 31, 2010
10-hour procedure
Last night Lee's cardiac doctor came to talk to me around 10:30 p.m.. Lee had been taken to the lab for the mapping procedure shortly after 12:00 noon. I had been told @ first to expect a 4-6 hour procedure and then when they came to get him, I was told that it would most likely take 6-8 hours and possibly longer. Well, it was the possibly longer one. Dennis, Betsy and I were able to literally "camp-out" in Lee's hospital room where we had reasonably comfortable furniture, a bathroom, the T.V. and even Lee's supper and snack. Nobody bothered us and we had privacy as we waited for each 2-hour period when a nurse would call and give us Lee's status. Throughout the procedure we were told that he was tolerating the procedure well.
A very tired doctor came to talk to us @ 10:30 p.m. He had been working with Lee for 10 hours. Good that he still looked young enough to endure a rough day like that. I understand that Lee was his second case of the day and that he had begun his day @ 7:00 a.m.
He explained that they mapped both the right and the left atrium of the heart. The right atrium was fairly easy to identify that part of the conduction system of the heart that was responsible for the flutter. This was able to be ablated within about 4 hours. Next they determined that they had to move to the left atrium. This is a bit more risky in that they must perforate the
upper septum to enter the left atrium. They were able to determine at least two main areas that were responsible for the atrial fibrillation. One area extended all the way over to the far left side of the left atrium where the pulmonary veins enter the heart. He explained that this is a common area of atrial fibrillation post lung transplant procedure, It usually corrects itself over a short period of time. It happens because of the way the pulmonary veins have to be sutured during the transplant procedure. In Lee's case there was no indication that it was going to be resolved with medication and it just kept getting worse with time.
The atrial fibrillation was weakening his heart and he was progressively getting weaker and weaker. In addition he was in chest pain and in time his new lung would begin to be affected by this irregularity. (It already had with the collection of fluid that he had earlier in the week )
Heart mapping is a very complicated procedure that requires very sophisticated equipment and they have to literally "map" the conduction pathways of the atrium. The doctor explained that they run in circles and the entire circle must be mapped. That is just one reason it is so time-consuming. Another thing they must do is cause Lee's heart to go into atrial fibrillation and then check the areas that are affected. It takes hours to do this.
The good news is that Lee tolerated the procedure very well and is in the ICU for safety precautions because of his transplant.I just now got a call from the ICU nurse and Lee is being transported out of ICU to his room in 3304. They are ordering his breakfast. She said he is doing great and is breathing room air and is wide awake and hungry! Now that is a good sign! Guess I better get ready to go over there.
More Later.............................................................Brenda
A very tired doctor came to talk to us @ 10:30 p.m. He had been working with Lee for 10 hours. Good that he still looked young enough to endure a rough day like that. I understand that Lee was his second case of the day and that he had begun his day @ 7:00 a.m.
He explained that they mapped both the right and the left atrium of the heart. The right atrium was fairly easy to identify that part of the conduction system of the heart that was responsible for the flutter. This was able to be ablated within about 4 hours. Next they determined that they had to move to the left atrium. This is a bit more risky in that they must perforate the
upper septum to enter the left atrium. They were able to determine at least two main areas that were responsible for the atrial fibrillation. One area extended all the way over to the far left side of the left atrium where the pulmonary veins enter the heart. He explained that this is a common area of atrial fibrillation post lung transplant procedure, It usually corrects itself over a short period of time. It happens because of the way the pulmonary veins have to be sutured during the transplant procedure. In Lee's case there was no indication that it was going to be resolved with medication and it just kept getting worse with time.
The atrial fibrillation was weakening his heart and he was progressively getting weaker and weaker. In addition he was in chest pain and in time his new lung would begin to be affected by this irregularity. (It already had with the collection of fluid that he had earlier in the week )
Heart mapping is a very complicated procedure that requires very sophisticated equipment and they have to literally "map" the conduction pathways of the atrium. The doctor explained that they run in circles and the entire circle must be mapped. That is just one reason it is so time-consuming. Another thing they must do is cause Lee's heart to go into atrial fibrillation and then check the areas that are affected. It takes hours to do this.
The good news is that Lee tolerated the procedure very well and is in the ICU for safety precautions because of his transplant.I just now got a call from the ICU nurse and Lee is being transported out of ICU to his room in 3304. They are ordering his breakfast. She said he is doing great and is breathing room air and is wide awake and hungry! Now that is a good sign! Guess I better get ready to go over there.
More Later.............................................................Brenda
Friday, July 30, 2010
procedure is over
The procedure for the mapping to get Lee out of Atrial fib is finally over. He went to the ET lab @ 12:00 noon and has just now returned to the intensive care unit. It has been a very long day for me, Dennis and Betsy. They have stayed with me since 1:30 this afternoon. We saw Lee briefly as they were bringing him through the hallway. We are now in the 3200 waiting room waiting for the cardiac doctor to talk to us about Lee's procedure. I will say that I was able to see his monitor for a brief period and he was definitely in a normal sinus rhythm. That is Good!
I will close for now until I hear from the doctor. I will have phone calls to make to the children and I will let you blog followers know what he says on tomorrows blog. The anesthesiologist just came by and he said the Lee was doing Great! Always good to hear that. Praise to God!
We are very tired and these three old people need to get some sleep.................so, (Dennis said to leave him out of that line.)
More Later..............................................Brenda
I will close for now until I hear from the doctor. I will have phone calls to make to the children and I will let you blog followers know what he says on tomorrows blog. The anesthesiologist just came by and he said the Lee was doing Great! Always good to hear that. Praise to God!
We are very tired and these three old people need to get some sleep.................so, (Dennis said to leave him out of that line.)
More Later..............................................Brenda
Thursday, July 29, 2010
Atrial fibrillation
Lee continues to have atrial fibrillation. Today was another one of those days when he began the day @ 1:00 a.m. with atrial fib. When I arrived @ 9:00 a.m. he was exhausted from having been awake most of the night. I helped him with his morning bath, etc. and fed him his breakfast. He is so weak and tired that he cannot even feed himself. As you can imagine, this is not the Lee Kanipe that we know, and one that I am beginning to become very concerned about. I asked the nurse to page the doctors and let them know that I really needed to talk to them.
Son, Todd arrived around 10:30 or 11:00 and shortly after, the pulmonary team of doctors came in. They, too had many concerns regarding the duration of the atrial fibrillation and felt that it was time to have the cardiac team talk to us. The cardiac team arrived after lunch and explained that they had decided it was in Lee's best interest to have the Atrial Ablation procedure. Later this evening, one of the doctors came to talk to us and explain all the risks, etc....
It was decided that Lee would have the procedure Friday morning. He will be the 2nd case and will probably be done around 11:00 a.m. or shortly therafter (depending on how long the first case takes). This is not a short procedure. It will take from four to six hours to accomplish the ablation. First they have to "map the heart". This is when they purposely induce flutter and when they identify the bad circuit then they use a special cautery to obliterate the circuit. Mapping takes a long time because they must be sure they have identified the correct circuit.
Anyway, Lee is ready to have this procedure done. This will be a long day for him and he will have to have a general anesthetic. I, of course, am very concerned that this is being done so soon after his having a lung transplant. The doctors have said that he does carry a greater risk than one who has not had the transplant. He is so very tired from the fibrillation that he wants it to be corrected. Please keep him in your prayers as I know you will.
Dennis and Betsy will be with me tomorrow. I thank God everyday for the closeness of family and friends.
More Later..............................Brenda \
Son, Todd arrived around 10:30 or 11:00 and shortly after, the pulmonary team of doctors came in. They, too had many concerns regarding the duration of the atrial fibrillation and felt that it was time to have the cardiac team talk to us. The cardiac team arrived after lunch and explained that they had decided it was in Lee's best interest to have the Atrial Ablation procedure. Later this evening, one of the doctors came to talk to us and explain all the risks, etc....
It was decided that Lee would have the procedure Friday morning. He will be the 2nd case and will probably be done around 11:00 a.m. or shortly therafter (depending on how long the first case takes). This is not a short procedure. It will take from four to six hours to accomplish the ablation. First they have to "map the heart". This is when they purposely induce flutter and when they identify the bad circuit then they use a special cautery to obliterate the circuit. Mapping takes a long time because they must be sure they have identified the correct circuit.
Anyway, Lee is ready to have this procedure done. This will be a long day for him and he will have to have a general anesthetic. I, of course, am very concerned that this is being done so soon after his having a lung transplant. The doctors have said that he does carry a greater risk than one who has not had the transplant. He is so very tired from the fibrillation that he wants it to be corrected. Please keep him in your prayers as I know you will.
Dennis and Betsy will be with me tomorrow. I thank God everyday for the closeness of family and friends.
More Later..............................Brenda \
Wednesday, July 28, 2010
Out of Danger
Lee appears to be out of imminent danger. His heart is no longer in atrial fibrillation and his blood pressure is holding @ 105/70. He does have a chest tube in again and it is draining well. Good to know that all that fluid has been drained away from the lung. He was able to take small bites of food @ breakfast and dinner and some fluids, though small amounts. He was taken for a walk in the hallway for one lap and barely tolerated that walk ( 300 feet ). By the time he returned to his room he was exhausted and profusely perspiring. He looked like he had tried to climb a mountain in 100 degree temp. He finally recoverd from the walk and was able to take a nap.
When I left him I told him that if he could make as much progress tonight as he did today, he would be like a new person tomorrow! The responsive look he gave was one of doubt. I'm sure he will try very hard whenever he gets some of his energy back and that will be determined by the heart. He knows that and he, more than anyone else, knows how his heart feels.
Speaking of fatigue, I too am feeling it and will close for now. I am looking forward to a warm bath, freshly made bed and a good night's sleep. I wish the same for each of you.
More later.....................................................................................Brenda
When I left him I told him that if he could make as much progress tonight as he did today, he would be like a new person tomorrow! The responsive look he gave was one of doubt. I'm sure he will try very hard whenever he gets some of his energy back and that will be determined by the heart. He knows that and he, more than anyone else, knows how his heart feels.
Speaking of fatigue, I too am feeling it and will close for now. I am looking forward to a warm bath, freshly made bed and a good night's sleep. I wish the same for each of you.
More later.....................................................................................Brenda
Post Script
Doug is with his Dad @ the hospital and I am having some stress-relief time. He just called and said that they had just completed the placement of a chest drainage tube and had removed over 1200cc fluid (over a quart). His breathing is much better and the oxygen has been removed. His oxygen level is now 96. The atrial fib is gone and his heart rhythm is regular. He was able to get about 6 hours sleep last night, even though it was not uninterrupted.
We have been assured that this is not unusual for those having the procedures that Lee had. Some have the complications early and some several months later. We are grateful for the proximity of Duke at this time. I am hoping and praying that Lee will be able to get back enough strength to resume the fight he continues to have before him. I will get more information to you later today or tonight............................Brenda
We have been assured that this is not unusual for those having the procedures that Lee had. Some have the complications early and some several months later. We are grateful for the proximity of Duke at this time. I am hoping and praying that Lee will be able to get back enough strength to resume the fight he continues to have before him. I will get more information to you later today or tonight............................Brenda
Tuesday, July 27, 2010
Accepting changes
Even though I title this blog as accepting, today has been anything but acceptance. This has been a very tough day for Lee and I must admit for me. Ever since he was hospitalized Sunday evening, he has been in atrial fibrillation on and off. Today he was in atrial fib constantly. There was no relief from it. His heart rate would jump from 112 to 156 and back to 120 and then 146 and on and on. I could look at his chest and see his heart beating through his shirt He is so very tired. Whenever he brushed his teeth he dropped his arms to his side and said he was just too tired to even do that. He appears to be exhausted.....to the point that he cannot even eat and I have to constantly encourage him to drink liquids. Everything is just too exhausting to do.
He has been seen by many doctors today. In addition, he has had an echo cardiogram and a cat scan of his lung. We do know that he has fluid around the lung. These are the options that are being considered:
1. Try another drug......digoxin
2. Increase the diuretic
3. Cardioversion via defibrillation
4. Atrial Ablation
5. Chest tube drainage
When I left tonight, the only ones of the above that had been implemented were the first two. Fortunately, the atrial fib was gone and the heart rate was regular. He still has the fluid but hopefully the diuretic will begin to work. If not, 3, 4, and 5, are options still on the board.
It has been difficult to write this blog. I am very concerned about Lee. This is the first time I have seen him lose his will to fight. He seems to have given up, it is just too tiring to fight anymore. He said it seemed like everytime he seemed to make progress he just gets knocked down again. I, too, am very sad and upset that Lee is having this set back. Please pray that Lee will regain his will to fight and that I can continue to be very supportive in helping him to overcome this big "bump in the road".
It is good to have Doug with us tonight and to have Betsy and Stephen who came by and took me to supper. I thank God for our family and for the many friends who are praying for us.
More later.........................................Brenda
He has been seen by many doctors today. In addition, he has had an echo cardiogram and a cat scan of his lung. We do know that he has fluid around the lung. These are the options that are being considered:
1. Try another drug......digoxin
2. Increase the diuretic
3. Cardioversion via defibrillation
4. Atrial Ablation
5. Chest tube drainage
When I left tonight, the only ones of the above that had been implemented were the first two. Fortunately, the atrial fib was gone and the heart rate was regular. He still has the fluid but hopefully the diuretic will begin to work. If not, 3, 4, and 5, are options still on the board.
It has been difficult to write this blog. I am very concerned about Lee. This is the first time I have seen him lose his will to fight. He seems to have given up, it is just too tiring to fight anymore. He said it seemed like everytime he seemed to make progress he just gets knocked down again. I, too, am very sad and upset that Lee is having this set back. Please pray that Lee will regain his will to fight and that I can continue to be very supportive in helping him to overcome this big "bump in the road".
It is good to have Doug with us tonight and to have Betsy and Stephen who came by and took me to supper. I thank God for our family and for the many friends who are praying for us.
More later.........................................Brenda
Monday, July 26, 2010
Hospitilized
After having a good nights sleep I believe I am more coherent in writing the blog. I returned to the hospital this morning only to discover that Lee was once again in atrial fibrillation. His chest pain was gone and he appeared to be resting comfortably. He said he was very hungry this a.m. and was able to eat a good breakfast. ( I think he said he had a western omelet ).
It seems that after I left him after his admission from the ER to the 3300 block ( this is the cardio-thoracic area---same as before only on the other side ) he went into atrial fibrillation that lasted off and on all night. The nurses had to reverse it with IV meds. Fortunately he did not have to be shocked. He was very tired.
I stayed with him until 2:00 this afternoon after having walked with him twice. He can only make three laps before becoming exhausted. I have to admit that I am very concerned about his extreme tiredness. All indications appear to point to his heart. The cardiac team is scheduled to see him later this afternoon after all his tests have been completed. At that time the course of treatment will be determined.
It is hard to imagine how tired Lee is. He looks so good now and it only when he has to walk or have any activity that I know how every bit of energy expended is a great effort on his part. I can tell that he is concerned that he cannot walk any further than he can. Some of the guys who just had surgery last week are walking circles around Lee. Even one who also had a double by-pass procedure.
I'm hoping we can get some answeres soon. Meanwhile, please continue to pray that Lee will be able to get his strength back and that his heart can return stronger . His lung appears to be doing very well. I will return later this afternoon and maybe I will have something more to report before bedtime. Hopefully it will be encouraging news.
More Later.........................................................Brenda
It seems that after I left him after his admission from the ER to the 3300 block ( this is the cardio-thoracic area---same as before only on the other side ) he went into atrial fibrillation that lasted off and on all night. The nurses had to reverse it with IV meds. Fortunately he did not have to be shocked. He was very tired.
I stayed with him until 2:00 this afternoon after having walked with him twice. He can only make three laps before becoming exhausted. I have to admit that I am very concerned about his extreme tiredness. All indications appear to point to his heart. The cardiac team is scheduled to see him later this afternoon after all his tests have been completed. At that time the course of treatment will be determined.
It is hard to imagine how tired Lee is. He looks so good now and it only when he has to walk or have any activity that I know how every bit of energy expended is a great effort on his part. I can tell that he is concerned that he cannot walk any further than he can. Some of the guys who just had surgery last week are walking circles around Lee. Even one who also had a double by-pass procedure.
I'm hoping we can get some answeres soon. Meanwhile, please continue to pray that Lee will be able to get his strength back and that his heart can return stronger . His lung appears to be doing very well. I will return later this afternoon and maybe I will have something more to report before bedtime. Hopefully it will be encouraging news.
More Later.........................................................Brenda
Too Late to write
It is very late and I am actually writing very early Monday morning. Unfortunately, Lee began to have chest pain aroun 1:00 on Sunday afternoon. This continued and he thought it was indigestion but was not relieved with usual means of alleviating indigestion. I called the post-lung transplant coordinator and took him to the ER @ 6:00. Long story short...................Chest pain is now down from a 7 to a 3 and he has been admitted at least for an overnight observation and tests in the a.m. to determine the problem if any. He was admitted @ midnight. He looks great, but is very tired and tires easily with activity. Will know more tomorrow...........................Brenda
Saturday, July 24, 2010
Gone Shopping!
When Lee left the Center for Living on Friday he was advised to continue walking over the week-end. The therapist told him not to walk outside in the heat but to find a good cool place to walk.
After lunch we decided it was time for an outing. We had decided to go to the new Harris Teeters on Guess Road. That is an area that is not overly developed and we were looking for a cool place that would most likely have the fewest patrons. Since Lee had also been advised to get a really good pair of shoes, we decided that would be the first stop of our shopping trip. After driving around and around looking for the name of the street, we finally found it. To explain further, we had been told it was located on 9th street and called 9th street sports shoes...............however, the address is Iredell Street. Let me tell you, Iredell street, after passing all of 9th street is a small insignificant residential street. We almost missed it, but as we followed along we finally crossed Markham and there it was! After having driven approximately 40 blocks or so, we discovered it was actually only about 3-5 blocks from the condo.....llittle did we know!
Anyway, Lee was able to go into the nice, cool store, have his feet evaluated for a good fit and found a really good pair of Brooks sports shoes. He was very pleased. After leaving the shoe store we wanted to be able to find the State Employees Credit Union so we turned on Markham, then Buchanan and finally to Guess Road. We finally found it and then decided to go to Harris Teeters (in that same area) for Lee to walk in a cool area and for me to pick up some more groceries. Lee did great!
Now we are back at the condo after refreshing ourselves with some ice cream. ( It is 101 degrees outside ). The groceries have been put away and Lee is napping. I can't tell you what a joy it is to be able to go shopping together again. Lee is getting stronger everyday. We both realize it will take a while yet but the good news is that we do see progress.
Another good thing about today is that he has not had an irregular pulse during the past 24 hours! We have been more concientious of his fluid intake and added more high protein, sugar free drinks. I am trying to make sure his electrolytes stay in balance because he is still on a high dose of diuretics.
Hope all you fellow bloggers are staying cool. We will certainly stay in the air-conditioning the remainder of this day and I might just join Lee for a nap!
Take Care.................................................More Later..................................Brenda
After lunch we decided it was time for an outing. We had decided to go to the new Harris Teeters on Guess Road. That is an area that is not overly developed and we were looking for a cool place that would most likely have the fewest patrons. Since Lee had also been advised to get a really good pair of shoes, we decided that would be the first stop of our shopping trip. After driving around and around looking for the name of the street, we finally found it. To explain further, we had been told it was located on 9th street and called 9th street sports shoes...............however, the address is Iredell Street. Let me tell you, Iredell street, after passing all of 9th street is a small insignificant residential street. We almost missed it, but as we followed along we finally crossed Markham and there it was! After having driven approximately 40 blocks or so, we discovered it was actually only about 3-5 blocks from the condo.....llittle did we know!
Anyway, Lee was able to go into the nice, cool store, have his feet evaluated for a good fit and found a really good pair of Brooks sports shoes. He was very pleased. After leaving the shoe store we wanted to be able to find the State Employees Credit Union so we turned on Markham, then Buchanan and finally to Guess Road. We finally found it and then decided to go to Harris Teeters (in that same area) for Lee to walk in a cool area and for me to pick up some more groceries. Lee did great!
Now we are back at the condo after refreshing ourselves with some ice cream. ( It is 101 degrees outside ). The groceries have been put away and Lee is napping. I can't tell you what a joy it is to be able to go shopping together again. Lee is getting stronger everyday. We both realize it will take a while yet but the good news is that we do see progress.
Another good thing about today is that he has not had an irregular pulse during the past 24 hours! We have been more concientious of his fluid intake and added more high protein, sugar free drinks. I am trying to make sure his electrolytes stay in balance because he is still on a high dose of diuretics.
Hope all you fellow bloggers are staying cool. We will certainly stay in the air-conditioning the remainder of this day and I might just join Lee for a nap!
Take Care.................................................More Later..................................Brenda
Friday, July 23, 2010
D N D ( Days in Durham)
Since today was a fairly normal day for us we thought we would share our daily routine with you. Keep in mind that our routines are controlled by Lee's medications and record-keeping.
6-6:30 a.m.: Wake - up (which is normally our wake up time anyway)
7:00 a.m.: Check Lee's blood pressure, pulse, temperature and weight and record
7:15 a.m.: Out of bed and personal hygiene
7:30 a.m. Lee checks his blood sugar, I record and give him his insulin (he gets insulin three times a day)
7:40 a.m. We have our first cup of coffee for the morning. Sometimes when I awake before Lee, I have already had my first and maybe second cup!
8-830 a.m. Breakfast followed by Lee's 19 pills
9:00 a.m. Lee takes his anti-rejection medication ( these are four pills and must be taken the same time each day, twice a day, 12 hours apart)
Lee usually rests for a while......maybe even has a short nap while I clean the kitchen.
10:00 This is usually the time for Lee to shower, shave and dress for the day
11:00 Lee checks his blood sugar, I give him insulin
11:30 Light lunch because we have to leave @ 12:00 for the Center for the Living
------------- I pack Lee's snack pak for him to take: Water, yogurt or banana, and candy in case of increased insulin.
12:00 We leave for the 20 minute drive to the Center for the Living
12:30 Lee stays and I leave
-------------I run errands, shop or just do whatever needs to be done at the apartment. Sometimes that will have a bonus like a short nap!
3:30 p.m. Lee finishes his sessions
3:40 p.m. Lee attends the required class (once weekly, I attend a support group class)
4:30 p.m. I pick Lee up to bring him back to the apartment
5:00 p.m. Arrive and Lee rests (He is usually exhausted )
5:30-6:00 Check Lee's blood sugar and give insulin
6-6:30 Lee takes four more large pills with his meal
9:00 p.m. Lee takes another dose of his anti-rejection meds ( at this point, Lee has taken a total of 37 pills in a 12 hour peroid.
I check his temperature, pulse and blood pressure
9:30 p.m. Usually lights out and we fall asleep by 10:00
So there you have it.............an exciting day in Durham! Just in case you thought we did not have anything to do Monday-Friday, we wanted you to know that we fill each minute of the day. Sometimes it is hard to find the time to do the necessary "paying of bills, etc". Even finding time to read books is almost impossible. If I read @ night, I usually falls asleep by the second or third page. Saturdays are nice to go at a slower pace; however, the medicine and stats schedule stays the same. Usually on the week-ends we welcome the children for a visit or if we have no visitors we go for a drive. As Lee gets stronger we will be able to get out more frequently over the week-ends.
In addition to all the schedules above during the week, Mondays are filled with the clinic. Lee must have blood tests, chest x-ray and breathing tests done in the morning and we always have a doctor's appointment in the afternoon. On Mondays, we have to miss rehab at The Center for the Living. Next Friday, July 30, Lee is scheduled for a Bronchoscopy @ 8:00 a.m. A biopsy will be done at that time. This is done to see if he is having any primary rejection of the lung. We have been told to anticipate his being very tired a couple of days following the procedure. His activity will be curbed somewhat at that time.
Today was another good day for Lee. He walked further and in a shorter amount of time. Now that is progress! He does however, continue to have short episodes in the morning with atrial fibrillation. Fortunately the Val-salv manuver continues to reverse it for him.
Well, just writing about all our activities here has made me extremely tired! Guess I'll close for now and go rest a while!
More Later.......................................................Brenda
6-6:30 a.m.: Wake - up (which is normally our wake up time anyway)
7:00 a.m.: Check Lee's blood pressure, pulse, temperature and weight and record
7:15 a.m.: Out of bed and personal hygiene
7:30 a.m. Lee checks his blood sugar, I record and give him his insulin (he gets insulin three times a day)
7:40 a.m. We have our first cup of coffee for the morning. Sometimes when I awake before Lee, I have already had my first and maybe second cup!
8-830 a.m. Breakfast followed by Lee's 19 pills
9:00 a.m. Lee takes his anti-rejection medication ( these are four pills and must be taken the same time each day, twice a day, 12 hours apart)
Lee usually rests for a while......maybe even has a short nap while I clean the kitchen.
10:00 This is usually the time for Lee to shower, shave and dress for the day
11:00 Lee checks his blood sugar, I give him insulin
11:30 Light lunch because we have to leave @ 12:00 for the Center for the Living
------------- I pack Lee's snack pak for him to take: Water, yogurt or banana, and candy in case of increased insulin.
12:00 We leave for the 20 minute drive to the Center for the Living
12:30 Lee stays and I leave
-------------I run errands, shop or just do whatever needs to be done at the apartment. Sometimes that will have a bonus like a short nap!
3:30 p.m. Lee finishes his sessions
3:40 p.m. Lee attends the required class (once weekly, I attend a support group class)
4:30 p.m. I pick Lee up to bring him back to the apartment
5:00 p.m. Arrive and Lee rests (He is usually exhausted )
5:30-6:00 Check Lee's blood sugar and give insulin
6-6:30 Lee takes four more large pills with his meal
9:00 p.m. Lee takes another dose of his anti-rejection meds ( at this point, Lee has taken a total of 37 pills in a 12 hour peroid.
I check his temperature, pulse and blood pressure
9:30 p.m. Usually lights out and we fall asleep by 10:00
So there you have it.............an exciting day in Durham! Just in case you thought we did not have anything to do Monday-Friday, we wanted you to know that we fill each minute of the day. Sometimes it is hard to find the time to do the necessary "paying of bills, etc". Even finding time to read books is almost impossible. If I read @ night, I usually falls asleep by the second or third page. Saturdays are nice to go at a slower pace; however, the medicine and stats schedule stays the same. Usually on the week-ends we welcome the children for a visit or if we have no visitors we go for a drive. As Lee gets stronger we will be able to get out more frequently over the week-ends.
In addition to all the schedules above during the week, Mondays are filled with the clinic. Lee must have blood tests, chest x-ray and breathing tests done in the morning and we always have a doctor's appointment in the afternoon. On Mondays, we have to miss rehab at The Center for the Living. Next Friday, July 30, Lee is scheduled for a Bronchoscopy @ 8:00 a.m. A biopsy will be done at that time. This is done to see if he is having any primary rejection of the lung. We have been told to anticipate his being very tired a couple of days following the procedure. His activity will be curbed somewhat at that time.
Today was another good day for Lee. He walked further and in a shorter amount of time. Now that is progress! He does however, continue to have short episodes in the morning with atrial fibrillation. Fortunately the Val-salv manuver continues to reverse it for him.
Well, just writing about all our activities here has made me extremely tired! Guess I'll close for now and go rest a while!
More Later.......................................................Brenda
Thursday, July 22, 2010
Support Group
Today Lee and I attended our first support group meeting at the Center for the Living. It was good to be part of the group that was on the recovering side and not on the preparing side. There were about 6 post-lung transplant people who received their lungs within a week of Lee's surgery. They all looked so good and were able to sit in class without oxygen and extra tanks. The classroom is filled with pre-lung transplant, post-lung transplant and caregivers. There were at least 20 people in the small classroom.
I was so proud of Lee. He was called on several times to share his experiences and to allay some of the fears and anxieties that those awaiting the surgery were expressing. There is such a contrast among the "haves and have nots" in that room. (Meaning those who now have their lung or lungs and those who need new lungs.) Those who have already undergone surgery and have lungs are more relaxed, chatting easily with one another. Those who are waiting are anxious, they have their oxygen tanks close by and are either breathing through masks or nasal cannulas. Their color is pale and gray. They appear exhausted all the time. Trying to carry on a conversation with them is difficult. They do not have any oxygen to spare for conversation because it takes all of it just to try to keep them going. Lee and I remember those times. Lee understands very well what they are feeling. They are like a drowning person trying to tread water. Those of us who have been fortunte enough to have never experienced that feeling are to count our blessings.
We are amazed at the diversity of the group. There are currently 5 or 6 young people there, all under the age of 30. Some have cystic fibrosis and others have pulmonary fibrosis. They are all struggling. Of the entire group, the men outnumber the women probably 3 or 4:1. It does seem to prodominately be a masculine afflication. We now have a better understanding of the reason this facility is called the Center for the Living. Those who are able to enter are indeed given an opportunity for living once again. The only way you can become an eligible candidate for lung transplant is to be able to enter through the doors of the Center for the Living...........walking. You may not enter via walker nor wheelchair. If you cannot walk, they cannot rehabilitae you enough to endure a procedure as difficult as the lung transplant.
Lee has made some great progress these past two days. He is now able to shower again. It is so much easier now that he does not have to shower before his oxygen tank empties! Now he just enjoys a slow shower. What a luxury!
Today for the first time, he was able to walk out of the Center for the Living and walk all the way to the car. This is a long walk (and it was 100 degrees F). He usually sits and rests several times along the way, but today he did not have to! That was progress!
I want to thank you for continuing to be our blog followers. It helps me to write and know that you are there listening (or reading)....almost like being there talking to you. We know that your prayers have carried both of us along this journey and that Lee's success stories have occurred because of the power of your prayers. We thank you for that.
More Later.....................................................Brenda
I was so proud of Lee. He was called on several times to share his experiences and to allay some of the fears and anxieties that those awaiting the surgery were expressing. There is such a contrast among the "haves and have nots" in that room. (Meaning those who now have their lung or lungs and those who need new lungs.) Those who have already undergone surgery and have lungs are more relaxed, chatting easily with one another. Those who are waiting are anxious, they have their oxygen tanks close by and are either breathing through masks or nasal cannulas. Their color is pale and gray. They appear exhausted all the time. Trying to carry on a conversation with them is difficult. They do not have any oxygen to spare for conversation because it takes all of it just to try to keep them going. Lee and I remember those times. Lee understands very well what they are feeling. They are like a drowning person trying to tread water. Those of us who have been fortunte enough to have never experienced that feeling are to count our blessings.
We are amazed at the diversity of the group. There are currently 5 or 6 young people there, all under the age of 30. Some have cystic fibrosis and others have pulmonary fibrosis. They are all struggling. Of the entire group, the men outnumber the women probably 3 or 4:1. It does seem to prodominately be a masculine afflication. We now have a better understanding of the reason this facility is called the Center for the Living. Those who are able to enter are indeed given an opportunity for living once again. The only way you can become an eligible candidate for lung transplant is to be able to enter through the doors of the Center for the Living...........walking. You may not enter via walker nor wheelchair. If you cannot walk, they cannot rehabilitae you enough to endure a procedure as difficult as the lung transplant.
Lee has made some great progress these past two days. He is now able to shower again. It is so much easier now that he does not have to shower before his oxygen tank empties! Now he just enjoys a slow shower. What a luxury!
Today for the first time, he was able to walk out of the Center for the Living and walk all the way to the car. This is a long walk (and it was 100 degrees F). He usually sits and rests several times along the way, but today he did not have to! That was progress!
I want to thank you for continuing to be our blog followers. It helps me to write and know that you are there listening (or reading)....almost like being there talking to you. We know that your prayers have carried both of us along this journey and that Lee's success stories have occurred because of the power of your prayers. We thank you for that.
More Later.....................................................Brenda
Wednesday, July 21, 2010
Another Good Day in Durham!
I asked Lee how he would title today's blog and he said, "Another good day in Durham!" I always accompany him into the Center for Living when we arrive because I like to visit a short while with some of the people who are either waiting for a lung transplant or with the ones who have had a lung transplant. What a joy it was to just look at Lee and his friends greeting one another with laughter and all looking so happy with smiling faces, no oxygen and nice pink color. One becomes accustomed to the lack of color in the faces of those who are struggling to breathe and trying so hard to become strong enough to be eligible for the transplant. It is only after they look normal again that you realize how dangerously close they came to either dying or being denied the opportunity because their condition had gotton so bad that surgery no longer would be an option. Fortunately, we have not had to see this happen to anyone we have met. So far, we have been witness to many success stories.
Lee had a really good day again @ the Center. He was able to complete all four sessions which include: floor exercises x 45 minutes, walking for 20 minutes, series of arm weights for 30 minutes and 20 minutes on the bike ( or pedaler). During this time the therapists are immediately available and assigned for each group guiding them through each session.Lee arrives @ the Center @ 12:30 each day. Check in and review of systems (blood pressure, blood sugars and/or any other stat). 1:00 begins the sessions and these continue until a class that usually begins @ 3:40. Lee did not have to attend today's class on Diabetes because he had already completed that one. He was able to leave early today. That was good because he is very tired by 3:30.
Betsy came over this afternoon and I now have a can opener that will work! She also brought a big container of pinto beans and some cornbread muffins. We are looking forward to supper! We have received so many meals and treats from Dennis and Betsy, Roger and Genice while here. Like Julia says, we have been treated like college kids with them making sure we have lots of food! Truly we have felt very blessed.
Update on some of our friends here @ Duke Towers. Nancy, the retired anthropologist professsor got her new lungs today. We were all getting concerned for her as her condition was deteriorating rapidly. Our other friend, Jerry is in ICU and doing Very well. For those who are recuperating and for those who are waiting we continue to ask that you remember them in your prayers.
Lee has received many cards these past few weeks and it is a joy to watch him read each one and he usually has a story to tell me about some of his old friends that he has not seen in a long time. He has heard from several high school classmates that he had not heard from in years. Thanks to all of you who have kept the cards coming. That has played a major role in his recovery!
More Later.....................................................................Brenda
Lee had a really good day again @ the Center. He was able to complete all four sessions which include: floor exercises x 45 minutes, walking for 20 minutes, series of arm weights for 30 minutes and 20 minutes on the bike ( or pedaler). During this time the therapists are immediately available and assigned for each group guiding them through each session.Lee arrives @ the Center @ 12:30 each day. Check in and review of systems (blood pressure, blood sugars and/or any other stat). 1:00 begins the sessions and these continue until a class that usually begins @ 3:40. Lee did not have to attend today's class on Diabetes because he had already completed that one. He was able to leave early today. That was good because he is very tired by 3:30.
Betsy came over this afternoon and I now have a can opener that will work! She also brought a big container of pinto beans and some cornbread muffins. We are looking forward to supper! We have received so many meals and treats from Dennis and Betsy, Roger and Genice while here. Like Julia says, we have been treated like college kids with them making sure we have lots of food! Truly we have felt very blessed.
Update on some of our friends here @ Duke Towers. Nancy, the retired anthropologist professsor got her new lungs today. We were all getting concerned for her as her condition was deteriorating rapidly. Our other friend, Jerry is in ICU and doing Very well. For those who are recuperating and for those who are waiting we continue to ask that you remember them in your prayers.
Lee has received many cards these past few weeks and it is a joy to watch him read each one and he usually has a story to tell me about some of his old friends that he has not seen in a long time. He has heard from several high school classmates that he had not heard from in years. Thanks to all of you who have kept the cards coming. That has played a major role in his recovery!
More Later.....................................................................Brenda
Tuesday, July 20, 2010
Be Careful
I'm sure you have heard "Be careful what you ask for, you might just get it!". Well, it seems we have some very sympathetic friends in Vale. Allow me to explain: On my blog this past Saturday, I lamented about our being so pitiful with no home grown tomatoes. My brother and his wife responded by giving the best of their lot and because we were still begging for good ole homegrown from Vale, Lee's sister took pity on us and brought some when she visited. Well let me tell you, the word is out in Vale. Today we received a BOX of beautiful homegrown tomatoes from our good friend and nurse who is a self-proclaimed "Midget Redneck". If you don't believe me..................read her blog for a good laugh. Thank you, Jo. We just laughed out loud when we opened the box! All the tomotoes arrived intact and with no bruises. Kudos to the U.S Postal priorty mailing! Now we are looking forward to sharing a few and eating the rest.
Lee is resting in his recliner after a grueling day @ the rehab. He was able to complete all the sessions again today and is really feeling the fatigue. He will probably have sore muscles tomorrow but he knows it will be worth the pain in the long run.
We had a visit from Dr. Stanley Spence, our pastor this a.m. Amazing that I was able to talk him here with my limited knowledge of the streets, etc. It worked! He arrived a little earlier than anticipated.....I'll leave it up to those of you who know him to ask HOW? We were able to have a good chat and prayer. We can't believe he drove all that way for the visit and then headed home to Lincolnton. Thank you Stanley!
Even though Lee is doing quite well and he looks great, he is still having some atrial fibrillation from time to time. This happens mostly late @ night and early morning. We talked to Dr. Steele about it yesterday while @ the clinic and he assured us that this was fairly normal following the heart procedure that Lee had. He asked what did we do when it happens......I explained that we just have him cough and bear down and that seems to work. I think it is called the val-sal maneuver. If it ever lasts more than an hour and does not reverse then I am to called the coordinator who will probably advise us to go to the E.R.
Right now he is asleep and seems to be very comfortable. I will close and decide which recipe to use for those delicious tomatoes that are just waiting to be enjoyed!
More Later.........................................................................Brenda
Lee is resting in his recliner after a grueling day @ the rehab. He was able to complete all the sessions again today and is really feeling the fatigue. He will probably have sore muscles tomorrow but he knows it will be worth the pain in the long run.
We had a visit from Dr. Stanley Spence, our pastor this a.m. Amazing that I was able to talk him here with my limited knowledge of the streets, etc. It worked! He arrived a little earlier than anticipated.....I'll leave it up to those of you who know him to ask HOW? We were able to have a good chat and prayer. We can't believe he drove all that way for the visit and then headed home to Lincolnton. Thank you Stanley!
Even though Lee is doing quite well and he looks great, he is still having some atrial fibrillation from time to time. This happens mostly late @ night and early morning. We talked to Dr. Steele about it yesterday while @ the clinic and he assured us that this was fairly normal following the heart procedure that Lee had. He asked what did we do when it happens......I explained that we just have him cough and bear down and that seems to work. I think it is called the val-sal maneuver. If it ever lasts more than an hour and does not reverse then I am to called the coordinator who will probably advise us to go to the E.R.
Right now he is asleep and seems to be very comfortable. I will close and decide which recipe to use for those delicious tomatoes that are just waiting to be enjoyed!
More Later.........................................................................Brenda
Monday, July 19, 2010
First post-op Clinic Day
Monday morning began with our first visit to the clinic since before Lee had surgery. His appointment was scheduled for 9:00 a.m. and we were told to arrive @ 8:30. We arrived at Clinic 2-F and he was taken back to the lab for routine post lung transplant bloodwork. From there we had to go down the hall and around the corner to the Radiology Clinic for a chest x-ray. After a loooooooooong wait, we were back to Clinic 2-F for another blood test......this one from arterial blood and a breathing test. To give you an example of how crowded these clinics are and how backed-up they are time-wise, there is a vendor pounding the halls with snacks and treats for a buck!
Our morning clinic finally ended around 11:30, so it was a quick trip back to the condo for lunch and rest (Lee rested while I ironed ). We had to return to the clinic @ 3:00 for a meeting with the dietician to discuss Lee's diabetic diet and with the nurse post-lung transplant coordinator and with the pulmonary doctor.
We managed to pass the time greeting acquaintances from the Living Center who were there for the same thing. One thing we have discovered here is that you find yourself becoming a part of "your team". By that, I mean, those who were @ the Center for Living pre-operatively, having their surgery within one-two-weeks of each other and returning both to rehab and the clinic. Because of this, there is always a familiar face to see and we discover more history of their condition each time.
We have been witness to so many medical stories. Fortunately, the ones so far have had successful endings. We are amazed at how many people have either pulmonary fibrosis, chronic obstructive lung disease and Cystic Fibrosis. Actually, there seem to be more people here with IPF (idiopathic pulmonary fibrosis). That has been very surprising to me. One of the friends we have met is a 31 year old Navy Seal who is awaiting to get on the LIST. He had leukemia and in the process of being treated, cured the leukemia but his immune system attacked his lungs and he now has advanced IPF. We ask that you remember him and his young wife in your prayers. Also wanted you to know that Jerry Woodell (the one I asked you to pray for) had his surgery @ 7:30 this a.m. and was still in the O.R. @ 4:30 p.m. I will probably hear from his wife tomorrow. Please continue to pray for them as I know you will.
Good news! All of Lee's tests today were within a normal range! There was only one change in his medication and that was to increase his 81mg. aspirin to 325. (that is what he was on prior to surgery). His chest x-ray and breathing tests were excellent! No primary rejection! All this was so good to hear. Lee wants you to know that he was also freed from all sutures and staples. Nothing holding him together now....he is on his own! One thing we were advised: He is not to fasten his seat belt across his shoulder. We had not been told this until today and we promptly followed his instructions on the way back to the condo. and arrived home around 5:30 p.m. It was a long and tiring day.
I just have to reiterate again how good Lee looks! He says he is feeling great and as soon as he gets the weakness out of his legs he will be as good as new. (That is what he just said). Right now he is on the phone talking about robbing the bee hives @ home. He is giving instructions to his friend about what to do and where all the supplies are. He continues his life here................So wonderful to hear him happily chatting away with his buddy , Hewitt. We are so blessed...............................more later......................Brenda
Our morning clinic finally ended around 11:30, so it was a quick trip back to the condo for lunch and rest (Lee rested while I ironed ). We had to return to the clinic @ 3:00 for a meeting with the dietician to discuss Lee's diabetic diet and with the nurse post-lung transplant coordinator and with the pulmonary doctor.
We managed to pass the time greeting acquaintances from the Living Center who were there for the same thing. One thing we have discovered here is that you find yourself becoming a part of "your team". By that, I mean, those who were @ the Center for Living pre-operatively, having their surgery within one-two-weeks of each other and returning both to rehab and the clinic. Because of this, there is always a familiar face to see and we discover more history of their condition each time.
We have been witness to so many medical stories. Fortunately, the ones so far have had successful endings. We are amazed at how many people have either pulmonary fibrosis, chronic obstructive lung disease and Cystic Fibrosis. Actually, there seem to be more people here with IPF (idiopathic pulmonary fibrosis). That has been very surprising to me. One of the friends we have met is a 31 year old Navy Seal who is awaiting to get on the LIST. He had leukemia and in the process of being treated, cured the leukemia but his immune system attacked his lungs and he now has advanced IPF. We ask that you remember him and his young wife in your prayers. Also wanted you to know that Jerry Woodell (the one I asked you to pray for) had his surgery @ 7:30 this a.m. and was still in the O.R. @ 4:30 p.m. I will probably hear from his wife tomorrow. Please continue to pray for them as I know you will.
Good news! All of Lee's tests today were within a normal range! There was only one change in his medication and that was to increase his 81mg. aspirin to 325. (that is what he was on prior to surgery). His chest x-ray and breathing tests were excellent! No primary rejection! All this was so good to hear. Lee wants you to know that he was also freed from all sutures and staples. Nothing holding him together now....he is on his own! One thing we were advised: He is not to fasten his seat belt across his shoulder. We had not been told this until today and we promptly followed his instructions on the way back to the condo. and arrived home around 5:30 p.m. It was a long and tiring day.
I just have to reiterate again how good Lee looks! He says he is feeling great and as soon as he gets the weakness out of his legs he will be as good as new. (That is what he just said). Right now he is on the phone talking about robbing the bee hives @ home. He is giving instructions to his friend about what to do and where all the supplies are. He continues his life here................So wonderful to hear him happily chatting away with his buddy , Hewitt. We are so blessed...............................more later......................Brenda
Sunday, July 18, 2010
Sunny Sunday
I have to say that this has been one of the best Sundays Lee and I can remember for quite a while. There are so many good things about today.
1. We both had a good night's sleep
2. We are becoming familiar and comfortable with our new routines
3. We do not have to be concerned about checking gauges on the oxygen tanks and making sure enough is available for any activity.
4. We had whole wheat pancakes with fruit for breakfast! Lee's favorite.
5. Lee is walking faster and with less difficulty. For a while there he had sea legs. Now they are getting stronger.
It was so good to have a leisurely breakfast and read the Sunday paper. So much of our routines are beginning to feel more normal. After breakfast and the mountainous volume of medications that Lee must take, we were able to enjoy the CD from First Baptist Church . It felt good to be able to see all of our friends there......not as good as being there but as close as we can get right now.
We had some good tomatoe sandwiches made from Lennie and Tom's garden, followed by her pound cake. They came for a visit yesteday and we are still reaping the rewards. Later, we decided to go for a drive, just to get out of the apartment for a while. It was so good to just pick up and go.................no oxygen to load into the car and no worry about how long we could be away. We just toured the area and finally went by the Walgreens to pick up some things. How glorius to have Lee in the car breathing normally again!
We are eternally grateful to the donor of his lung and to the medical commumity here that gives so much to make sure people like Lee can return to a good quality of life. We ask that you remember our new friends from Wilmington, Jerrry and Gloria Woodell. He is on the list and last night had a "dry run". They were very disappointed but know that their time will arrive. He, like Lee, must have a double heart by-pass and lung transplant. Please pray for them as well as another friend here named Nancy. She is a retired anthropologist, professor from Alabama.
It is storming now so will go before I lose my signal..............................more later.....................Brenda
1. We both had a good night's sleep
2. We are becoming familiar and comfortable with our new routines
3. We do not have to be concerned about checking gauges on the oxygen tanks and making sure enough is available for any activity.
4. We had whole wheat pancakes with fruit for breakfast! Lee's favorite.
5. Lee is walking faster and with less difficulty. For a while there he had sea legs. Now they are getting stronger.
It was so good to have a leisurely breakfast and read the Sunday paper. So much of our routines are beginning to feel more normal. After breakfast and the mountainous volume of medications that Lee must take, we were able to enjoy the CD from First Baptist Church . It felt good to be able to see all of our friends there......not as good as being there but as close as we can get right now.
We had some good tomatoe sandwiches made from Lennie and Tom's garden, followed by her pound cake. They came for a visit yesteday and we are still reaping the rewards. Later, we decided to go for a drive, just to get out of the apartment for a while. It was so good to just pick up and go.................no oxygen to load into the car and no worry about how long we could be away. We just toured the area and finally went by the Walgreens to pick up some things. How glorius to have Lee in the car breathing normally again!
We are eternally grateful to the donor of his lung and to the medical commumity here that gives so much to make sure people like Lee can return to a good quality of life. We ask that you remember our new friends from Wilmington, Jerrry and Gloria Woodell. He is on the list and last night had a "dry run". They were very disappointed but know that their time will arrive. He, like Lee, must have a double heart by-pass and lung transplant. Please pray for them as well as another friend here named Nancy. She is a retired anthropologist, professor from Alabama.
It is storming now so will go before I lose my signal..............................more later.....................Brenda
Saturday, July 17, 2010
First week-end out of the hospital--Super Saturday
What a joy to have a Saturday and not have to journey to the hospital or to the Center for Living. Even though we could sleep-in, Lee and I were both awake by 6:00 a.m. Old habits die hard, especially as we age. We were able to take our time with breakfast, etc. I mentioned to Lee that I never hear him snore anymore...........he said he had noticed that too. Amazing. It could be attributed to several things. I would suspect that losing 38 lbs , getting a new lung and also having a better functioning heart with the new by-pass are all responsible. I used to be able to judge whether or not he was asleep by his breathing (snoring). Not so now. This has been an added bonus to us both.
Lee says to tell you that he is doing great even though he has a "ways" to go. He says he will get there and that he will be home in Vale before you know it. We are all looking forward to that. We have spent a lot of time talking about things we are looking forward to doing even though we both realize that there will be some restrictions, limitations and precautions that must be adhered to. Nonetheless, Lee can continue to have a very good life and resume some of the things he has always enjoyed. We are both looking forward to a beach trip in the Fall. By that time, it will have been a year since being there. He is looking forward to a round of golf and maybe a little fishing with his buddy, Ted. It will all be according to how well he is doing at that time.
He is looking forward to a visit from Elizabeth shortly............she is going to cut his hair and he really needs that! This afternoon we will have a short visit from his sister Lennie and husband Tom. They are bringing some vegetables from their garden. We have only had one homegrown tomato and that was from my brother Dennis in Raleigh. ( He has a few plants along his sidewalk in the front of his house!) Hope she has some of her famous pound cake. I'll probably have to give Lee extra insulin because he will have to have a taste.
Here's hoping all you blog-followers have a cool and wonderful week-end. We plan to do the same.
More Later............................................Brenda
Lee says to tell you that he is doing great even though he has a "ways" to go. He says he will get there and that he will be home in Vale before you know it. We are all looking forward to that. We have spent a lot of time talking about things we are looking forward to doing even though we both realize that there will be some restrictions, limitations and precautions that must be adhered to. Nonetheless, Lee can continue to have a very good life and resume some of the things he has always enjoyed. We are both looking forward to a beach trip in the Fall. By that time, it will have been a year since being there. He is looking forward to a round of golf and maybe a little fishing with his buddy, Ted. It will all be according to how well he is doing at that time.
He is looking forward to a visit from Elizabeth shortly............she is going to cut his hair and he really needs that! This afternoon we will have a short visit from his sister Lennie and husband Tom. They are bringing some vegetables from their garden. We have only had one homegrown tomato and that was from my brother Dennis in Raleigh. ( He has a few plants along his sidewalk in the front of his house!) Hope she has some of her famous pound cake. I'll probably have to give Lee extra insulin because he will have to have a taste.
Here's hoping all you blog-followers have a cool and wonderful week-end. We plan to do the same.
More Later............................................Brenda
Friday, July 16, 2010
HEAT WAVE IN DURHAM
Boy, is it ever hot here! Today it reached 97 degrees and felt like 107 degrees. I suppose one reason it feels so hot is because Lee now has to be taken to The Living Center and I take him then return three hours later to pick him up. The car always sits in the sun between the rides and it really is about 200 degrees when I get in! Thank goodness for air-conditioning!
Lee was able to complete a modified version of all sessions in the rehab unit today. The good thing is.....it counts as a complete session. So, as of today, he has completed two of the required 23 sessions to graduate from the program! That is a good day. He looks so good! If you did not see him walk and just observed his appearance you would not surmise that he had such a huge operation three weeks ago. In fact, today after we were in the car, I looked over at him in his sunglasses and I asked, "Do you realize how good you look?" He answered, "No, I haven't seen myself yet!". I realized that he had not seen how he looks since surgery and I quickly had him look in the car mirror. "Wow," he said, "I don't look that bad!" So, there you go...............straight from the horses mouth!
Fortunately, he has a good appetite. I fixed chicken 'n dumplings last night for supper and shared them with our new friend who is awaiting a lung. Our friend was thrilled as his wife is a vegetarian and he used to love his Mom's chicken 'n dumplings. We all had them again tonight and they are always better heated over the following day. I've always heard that chicken soup is good for so many things so we'er hoping dumplings are good for new lungs.
Lee was able to complete a modified version of all sessions in the rehab unit today. The good thing is.....it counts as a complete session. So, as of today, he has completed two of the required 23 sessions to graduate from the program! That is a good day. He looks so good! If you did not see him walk and just observed his appearance you would not surmise that he had such a huge operation three weeks ago. In fact, today after we were in the car, I looked over at him in his sunglasses and I asked, "Do you realize how good you look?" He answered, "No, I haven't seen myself yet!". I realized that he had not seen how he looks since surgery and I quickly had him look in the car mirror. "Wow," he said, "I don't look that bad!" So, there you go...............straight from the horses mouth!
Fortunately, he has a good appetite. I fixed chicken 'n dumplings last night for supper and shared them with our new friend who is awaiting a lung. Our friend was thrilled as his wife is a vegetarian and he used to love his Mom's chicken 'n dumplings. We all had them again tonight and they are always better heated over the following day. I've always heard that chicken soup is good for so many things so we'er hoping dumplings are good for new lungs.
Thursday, July 15, 2010
Reentry to Rehab
Today Lee and I hit the floor running! The first thing we have to do is do the morning procedures. For example, I must check and record daily Lee's Blood pressure, temp, weight and his tidal volume of air that can be expired after a deep breath. Next his blood sugar must be checked and his routine dose of Insulin given. After the usual morning hygiene, we are able to enjoy a morning cup of coffee together. Next is breakfast followed by 20 or so pills for Lee take. We have to be very observant of the time for these medications because it is important that we stay on a strict regime. This is especially important for the three anti-rejection drugs.
We feel so blessed that Lee is able to take food easily. 80% of the people who have lung transplants have to have the Nissen -fundo-plication procedure (wrapping the upper part of the stomach around a stomach tube that exits through the abdominal wall). If Lee experiences any symptoms of GERD (gastric esophageal reflux disorder ), at any time ( and this could be during the coming year or later) he would have to have this done. Duke pulmonary doctors do not take any chances with reflux into the lungs. We were so happy to be able to leave the hospital with no I.V.'s. This is also unusual. So far, we have much to be grateful for.
Medications were due again @ 10:00 leaving little time for anything except baths, etc. After lunch, we had to leave @12:00 for Re-entry to The Center for Living post-op rehabilitation. Lee had to be evaluated by the respiratory therapist and the physical therapist. After an EKG, it was determined that he could begin the program today. I will tell you this was very hard for Lee. His legs are extremely weak and he tires rapidly. They assured him that this was nothing unusual post-op surgery, especially after a double heart by-pass and lung transplant. They expect him to be weak and they know exactly how to pace him.
Today he was able to walk a six minute walk and accomplish 300 feet of the 400 foot track. He rode the bike for 10 minutes. He only stayed 2 hours today but tomorrow he will have to stay for the full schedule. Whenever he completes 23 sessions he will be able to graduate from the post-op program.
Today was like a reunion because Lee and I were able to see so many friends who were there before the transplant and who now have their new lungs. They all enjoyed sharing transplant surgery stories and there was some laughter as they did. For example, one of the guys who had a single lung transplant the day before Lee had his shared this story. While he was lying on the table, before going to sleep, he was listening to a discussion between the lung team as to which lung they should use....the right or the left. With that, he raised his head and said, "Wait a minute, I'm here for a tonsillectomy!" He was quickly anesthetized! What a joy to see them all without oxygen and able to walk and talk and laugh with each other.
Lee and I offer up prayers of thanksgiving daily for this gift he has received. Continue to pray for those who are still waiting and hoping to be given an opportunity to once again enjoy the gift of breathing. This gift is not available to everyone, but Duke does an excellect job of trying to see that all get that chance.
More Later............................................Brenda
d
We feel so blessed that Lee is able to take food easily. 80% of the people who have lung transplants have to have the Nissen -fundo-plication procedure (wrapping the upper part of the stomach around a stomach tube that exits through the abdominal wall). If Lee experiences any symptoms of GERD (gastric esophageal reflux disorder ), at any time ( and this could be during the coming year or later) he would have to have this done. Duke pulmonary doctors do not take any chances with reflux into the lungs. We were so happy to be able to leave the hospital with no I.V.'s. This is also unusual. So far, we have much to be grateful for.
Medications were due again @ 10:00 leaving little time for anything except baths, etc. After lunch, we had to leave @12:00 for Re-entry to The Center for Living post-op rehabilitation. Lee had to be evaluated by the respiratory therapist and the physical therapist. After an EKG, it was determined that he could begin the program today. I will tell you this was very hard for Lee. His legs are extremely weak and he tires rapidly. They assured him that this was nothing unusual post-op surgery, especially after a double heart by-pass and lung transplant. They expect him to be weak and they know exactly how to pace him.
Today he was able to walk a six minute walk and accomplish 300 feet of the 400 foot track. He rode the bike for 10 minutes. He only stayed 2 hours today but tomorrow he will have to stay for the full schedule. Whenever he completes 23 sessions he will be able to graduate from the post-op program.
Today was like a reunion because Lee and I were able to see so many friends who were there before the transplant and who now have their new lungs. They all enjoyed sharing transplant surgery stories and there was some laughter as they did. For example, one of the guys who had a single lung transplant the day before Lee had his shared this story. While he was lying on the table, before going to sleep, he was listening to a discussion between the lung team as to which lung they should use....the right or the left. With that, he raised his head and said, "Wait a minute, I'm here for a tonsillectomy!" He was quickly anesthetized! What a joy to see them all without oxygen and able to walk and talk and laugh with each other.
Lee and I offer up prayers of thanksgiving daily for this gift he has received. Continue to pray for those who are still waiting and hoping to be given an opportunity to once again enjoy the gift of breathing. This gift is not available to everyone, but Duke does an excellect job of trying to see that all get that chance.
More Later............................................Brenda
d
Wednesday, July 14, 2010
He's Back!!!!!!!!!!!!
It is so good to look @ Lee's recliner and see him sitting there! Supper is cooking and the aroma of the meat loaf he requested drifts through the condo. Finally, we are back to some similarity of our former lifestyle. Lee is enjoying looking @ past Sunday's tape from First Baptist Church, Lincolnton. What a blessing to see him sitting there with no oxygen and not struggling to breathe. We were both very happy to return.
He had an appointment to return to the Living Center today @ 1:00. It just could not be done. The discharge from the hospital was not completed until 1:30 and we had to reschedule for Thursda @ 1:00. Both of us needed some down time and we both just crashed when we got here. Lee will have to do his walking around this area until tomorrow.
Lee's discharge nurse came by and her first greeting was, "Are you still mad @ me?". With that, Lee responded, "No, I want to give you a hug." So hugs were given and now all is well between them. She is an excellect nurse and probably played a big role in helping Lee get on the list. She always knew what a fighter he was and was the one who encouraged him when he left the hospital last March.
Lee wants all of you to know that it is so nice to be back @ the apartment in MY CARE. I'll try to remind him of that when I have frustrating days along with him. I suppose you could say this is the third chapter in our saga............actually mostly Lee's. He is the one who has suffered so much for so long. I have only been there for support and love. First Chapter was extremely difficult from December through first of March. Lee spent 67 days in four different hospitals with three different diagnosis. It was through your diligent watch with prayer, calls, cards, and visits that we survived.
The second chapter was when we did everything in our power to return to Duke and get a new lung for Lee. All the work in Vale with so many of you volunteering to help was our salvation. All we did was ask and you were always ready to drop anything you were doing to be there for us. Thank you seems so inadequate for that tremendous gift of love.
The third chapter was a new lung and an overhaul of his heart. This continues into rehabilitation and recovery. We know you are still there pulling for us, especially for Lee. God willing, and the prayers you continue to give up for him...............we will be coming home to Vale by the end of August of the first of September.
God's Blessings on all..................................more later...........................Brenda
He had an appointment to return to the Living Center today @ 1:00. It just could not be done. The discharge from the hospital was not completed until 1:30 and we had to reschedule for Thursda @ 1:00. Both of us needed some down time and we both just crashed when we got here. Lee will have to do his walking around this area until tomorrow.
Lee's discharge nurse came by and her first greeting was, "Are you still mad @ me?". With that, Lee responded, "No, I want to give you a hug." So hugs were given and now all is well between them. She is an excellect nurse and probably played a big role in helping Lee get on the list. She always knew what a fighter he was and was the one who encouraged him when he left the hospital last March.
Lee wants all of you to know that it is so nice to be back @ the apartment in MY CARE. I'll try to remind him of that when I have frustrating days along with him. I suppose you could say this is the third chapter in our saga............actually mostly Lee's. He is the one who has suffered so much for so long. I have only been there for support and love. First Chapter was extremely difficult from December through first of March. Lee spent 67 days in four different hospitals with three different diagnosis. It was through your diligent watch with prayer, calls, cards, and visits that we survived.
The second chapter was when we did everything in our power to return to Duke and get a new lung for Lee. All the work in Vale with so many of you volunteering to help was our salvation. All we did was ask and you were always ready to drop anything you were doing to be there for us. Thank you seems so inadequate for that tremendous gift of love.
The third chapter was a new lung and an overhaul of his heart. This continues into rehabilitation and recovery. We know you are still there pulling for us, especially for Lee. God willing, and the prayers you continue to give up for him...............we will be coming home to Vale by the end of August of the first of September.
God's Blessings on all..................................more later...........................Brenda
Tuesday, July 13, 2010
Busy Brenda!
Lee called me this morning and told me to pack his bag because he would be coming home today! (Home, being the condo). He had been able to walk the 20 laps the day before ( as he had been told, the ticket to discharge from the hospital) and the only thing standing in his path was the swallowing test scheduled this a.m. He was very excited to learn that he passed the swallowing test perfectly and that the stomach tube would be removed and breakfast would be ordered. He was one happy man!
You can imagine his disappointment when the post-lung transplant nurse arrived and announced that he would have to stay another day AND continue walking the 20 laps. Lee was so upset that the nurse said she could see his anger @ her but that was just the way it had to be. He needed to be in the hospital for the first meals to make sure he did not aspirate. If his glare could have killed, we would be minus one nurse tonight!
As the day wore on, he was rewarded by the stomach tube being removed and a drink of sprite and some applesauce! He had a big smile on his face when he got the treats. By the time I left @ 4:30 he had walked about 15 laps and had planned to walk the rest with Elizabeth. She sent me a picture of Lee with his tray of food and he seemed happy to finally be able to eat again! Remember, his last meal was lunch (pbj sandwich) on June 23.
I have been so busy since I left. I had to get home in time to catch the oxygen people who had come to take all the oxygen from the condo. There is NO OXYGEN anywhere! I wanted to make sure it was gone befoe Lee returns. I met my brother here who was returning my laundry that his wife Betsy is so lovingly doing for us. He and I left to pick up all 23 (yes 23) of Lee's new prescriptions. I checked them off with the pharmacist...each one....just to make sure they were all there. In addition, there were some other items to be picked up. After we left, Dennis and I stopped by the cafeteria and had a nice meal together. We splurged on the coconut cream pie that we shared. We stopped by whole foods for some groceries needed here and finally finished everything by 8:00.
Those of you who know me know that I run out of steam @ 9:00 p.m. and there is still much to do before then. Medicine charts to be made. Daily logs to be copied and medicines to be placed in proper containers. Now you understand the title of this blog! I am so excited that Lee is able to be discharged from the hospital. Please understand that he and I will need some time to adjust to our new schedules. Right now as his primary caregiver I am the one responsible for all his meds and logs. Because I have been with him daily I have become adapt @ recognizing some of his problems and for right now will have to stay with him constantly before having relief. Some of the things I have to be alert to are symptoms of rejection , symptoms of mucous or fluids in the lung. I have spent much time talking to the doctors and nurses, asking a lot of questions and I am comfortable with what I must do these first weeks ahead of me.
I do ask your prayers for both of us and we join all of you in giving thanksgiving for Lee's new lung and heart repairs. More later............................................Busy Brenda
You can imagine his disappointment when the post-lung transplant nurse arrived and announced that he would have to stay another day AND continue walking the 20 laps. Lee was so upset that the nurse said she could see his anger @ her but that was just the way it had to be. He needed to be in the hospital for the first meals to make sure he did not aspirate. If his glare could have killed, we would be minus one nurse tonight!
As the day wore on, he was rewarded by the stomach tube being removed and a drink of sprite and some applesauce! He had a big smile on his face when he got the treats. By the time I left @ 4:30 he had walked about 15 laps and had planned to walk the rest with Elizabeth. She sent me a picture of Lee with his tray of food and he seemed happy to finally be able to eat again! Remember, his last meal was lunch (pbj sandwich) on June 23.
I have been so busy since I left. I had to get home in time to catch the oxygen people who had come to take all the oxygen from the condo. There is NO OXYGEN anywhere! I wanted to make sure it was gone befoe Lee returns. I met my brother here who was returning my laundry that his wife Betsy is so lovingly doing for us. He and I left to pick up all 23 (yes 23) of Lee's new prescriptions. I checked them off with the pharmacist...each one....just to make sure they were all there. In addition, there were some other items to be picked up. After we left, Dennis and I stopped by the cafeteria and had a nice meal together. We splurged on the coconut cream pie that we shared. We stopped by whole foods for some groceries needed here and finally finished everything by 8:00.
Those of you who know me know that I run out of steam @ 9:00 p.m. and there is still much to do before then. Medicine charts to be made. Daily logs to be copied and medicines to be placed in proper containers. Now you understand the title of this blog! I am so excited that Lee is able to be discharged from the hospital. Please understand that he and I will need some time to adjust to our new schedules. Right now as his primary caregiver I am the one responsible for all his meds and logs. Because I have been with him daily I have become adapt @ recognizing some of his problems and for right now will have to stay with him constantly before having relief. Some of the things I have to be alert to are symptoms of rejection , symptoms of mucous or fluids in the lung. I have spent much time talking to the doctors and nurses, asking a lot of questions and I am comfortable with what I must do these first weeks ahead of me.
I do ask your prayers for both of us and we join all of you in giving thanksgiving for Lee's new lung and heart repairs. More later............................................Busy Brenda
Monday, July 12, 2010
A Challenge Conquered!
This morning when Lee's doctors made rounds, he was asked how many laps he had walked on Sunday. Lee answered, 12 laps. (I might add, he and I were mighty proud of those 12 laps!) To this, his doctor asked, And how many laps can you walk today? Lee answered that he thought he could do 16. The doctor responded with, "How about 20?!"
So, Bloggers, I am happy to report to you that by 6:00 this evening, Lee had completed 17 laps. The day is not over and who knows, he might just get those 20 laps in! Will let you know for sure by tomorrow. In case you are wondering how big a Lap is: One lap is a little more than 300 feet! 20 laps are equal to a little more than than a mile! ( believe 1 1/4 miles) is what is posted on the wall for all who are walking to see.
Lee looks really good! His oxygen level is holding @ 95-96 % all the time. His blood pressure is usually 110/70 in the mornings and goes higher in the late afternoons. That is why it is harder for him to walk in the mornings than in the evenings. Right now the only thing holding him back from being discharged from the hospital to the condo is the feeding tube and 20 laps. We were supposed to find out something today about the feeding tube with the results from the swallowing test. That test was not done because Lee was an add-on and their schedule was full. This will be done in the morning.
Right now I am anticipating his release sometime Wednesday or Thursday and he will be here at the condo again. This will be another big adjustment for both of us. The first week will be busy with the home health people making sure we have all the essentials necessary for Lee's care. This will be when I become very involved with his care. In addition to making sure he gets all the 15 or so medications once or twice daily, any IV meds, Dressing changes, daily hygiene, etc. there will be appointments for bloodwork, chest x-rays and the daily rehab at the Center for Living. In fact, one of his first appointments (Usually the next day) will be to return to the Center for Living and be evaluated for his return to the exercise and walking program. He will be required to attend 23 of these sessions which is six weeks. We know that we will be here through August with no unforseen complications we will be able to return to Vale!
I am very grateful that I am fortunate enough to have been a registered nurse most of my life. I have great admiration for these wives who have to learn how to administer meds, dressing changes, etc. and they are not nurses. One thing I have done while here is to offer any assistance to any of the others if they need my help during those first two weeks after they bring their loved one home or any situation that I might help with.. Sometimes God just places you in the right place at precisely the right time.
I have always heard it said and have observed it from experience that once patients start getting a little "grouchy" they are getting better.
I believe Lee is getting better....................................................More Later..................Brenda
PS: Just got a call from Elizabeth. She and Lee were walking the last of three laps! Lee met his challenge! He walked 20 laps today!!!! YEAAAAAAAAAAAAAAAAAAAA!!!
So, Bloggers, I am happy to report to you that by 6:00 this evening, Lee had completed 17 laps. The day is not over and who knows, he might just get those 20 laps in! Will let you know for sure by tomorrow. In case you are wondering how big a Lap is: One lap is a little more than 300 feet! 20 laps are equal to a little more than than a mile! ( believe 1 1/4 miles) is what is posted on the wall for all who are walking to see.
Lee looks really good! His oxygen level is holding @ 95-96 % all the time. His blood pressure is usually 110/70 in the mornings and goes higher in the late afternoons. That is why it is harder for him to walk in the mornings than in the evenings. Right now the only thing holding him back from being discharged from the hospital to the condo is the feeding tube and 20 laps. We were supposed to find out something today about the feeding tube with the results from the swallowing test. That test was not done because Lee was an add-on and their schedule was full. This will be done in the morning.
Right now I am anticipating his release sometime Wednesday or Thursday and he will be here at the condo again. This will be another big adjustment for both of us. The first week will be busy with the home health people making sure we have all the essentials necessary for Lee's care. This will be when I become very involved with his care. In addition to making sure he gets all the 15 or so medications once or twice daily, any IV meds, Dressing changes, daily hygiene, etc. there will be appointments for bloodwork, chest x-rays and the daily rehab at the Center for Living. In fact, one of his first appointments (Usually the next day) will be to return to the Center for Living and be evaluated for his return to the exercise and walking program. He will be required to attend 23 of these sessions which is six weeks. We know that we will be here through August with no unforseen complications we will be able to return to Vale!
I am very grateful that I am fortunate enough to have been a registered nurse most of my life. I have great admiration for these wives who have to learn how to administer meds, dressing changes, etc. and they are not nurses. One thing I have done while here is to offer any assistance to any of the others if they need my help during those first two weeks after they bring their loved one home or any situation that I might help with.. Sometimes God just places you in the right place at precisely the right time.
I have always heard it said and have observed it from experience that once patients start getting a little "grouchy" they are getting better.
I believe Lee is getting better....................................................More Later..................Brenda
PS: Just got a call from Elizabeth. She and Lee were walking the last of three laps! Lee met his challenge! He walked 20 laps today!!!! YEAAAAAAAAAAAAAAAAAAAA!!!
Sunday, July 11, 2010
Sunday,Sunday
Today reminds me of the song "Sunday, Sunday" popular in the '70's. From what I remember the song was about a good day and that is what Lee had today. In fact, to quote him, "I had a GREAT day!" It is indeed wonderful to hear him say that and these are the reasons why:
1. Lee walked 12 laps today!
2. Lee walked the 12 laps FAST!
3. Lee had NO pain today
4. Lee can walk around the room with ease and to the door to the walker!
5. He is able to take most of his medications by mouth!
6. He is swallowing better and better!
He really is looking better and stronger each day. He was weighed yesterday and his weight is now 174. One must remember that in December his weight was 212. I suspect he will continue to lose some more or at least stay at this weight because of his diet. That is a good thing. He will be much healthier with lower weight both for his heart and his new lung.
The doctors seemed pleased with Lee's progress and at this point are just encouraging him to walk, walk, walk. Walking helps his new lung to expand and fill the space of the new cavity. The lung must adapt to Lee's body because it is in an alien environment and walking will use the lung more and help it to adapt to the new space. The heart is doing very well. He has not had any more episodes of atrial fib nor arrhythmias. His blood pressure is holding without dropping too low. All of these good signs are allowing him to be able to get up and move around more and the effects are becoming obvious.
One thing we have learned is that Lee has to make a conscious effort to breathe correctly again. In walking you can see that he is only nose breathing, which becomes shallow breathing. This is how people breathe when they are on oxygen a long time. He has to focus on breathing in through his nose and blow out through his mouth. By nose breathing he is allowing carbon dioxide to build and that makes him light-headed. It also prevents the new lung from expanding which in turn causes more mucous which in turn creates a need for another bronchoscopy. Whew! The things we learn along the way!
In spite of all this.................It has been Sunday, Sunday...........A GREAT DAY!.....................more later.............Brenda
1. Lee walked 12 laps today!
2. Lee walked the 12 laps FAST!
3. Lee had NO pain today
4. Lee can walk around the room with ease and to the door to the walker!
5. He is able to take most of his medications by mouth!
6. He is swallowing better and better!
He really is looking better and stronger each day. He was weighed yesterday and his weight is now 174. One must remember that in December his weight was 212. I suspect he will continue to lose some more or at least stay at this weight because of his diet. That is a good thing. He will be much healthier with lower weight both for his heart and his new lung.
The doctors seemed pleased with Lee's progress and at this point are just encouraging him to walk, walk, walk. Walking helps his new lung to expand and fill the space of the new cavity. The lung must adapt to Lee's body because it is in an alien environment and walking will use the lung more and help it to adapt to the new space. The heart is doing very well. He has not had any more episodes of atrial fib nor arrhythmias. His blood pressure is holding without dropping too low. All of these good signs are allowing him to be able to get up and move around more and the effects are becoming obvious.
One thing we have learned is that Lee has to make a conscious effort to breathe correctly again. In walking you can see that he is only nose breathing, which becomes shallow breathing. This is how people breathe when they are on oxygen a long time. He has to focus on breathing in through his nose and blow out through his mouth. By nose breathing he is allowing carbon dioxide to build and that makes him light-headed. It also prevents the new lung from expanding which in turn causes more mucous which in turn creates a need for another bronchoscopy. Whew! The things we learn along the way!
In spite of all this.................It has been Sunday, Sunday...........A GREAT DAY!.....................more later.............Brenda
Saturday, July 10, 2010
EIGHT LAPS AND SMILING
Today was a better day than yesterday! No bronchoscopy! No Swallowing test! No arterial sticks for blood gases!
There was time for a good bed bath, shampoo and good personal care this morning without interruptions. It was good to see Lee relaxed early this a.m. In fact, He was able to walk with just me by 10:00. His blood pressure was good and he felt a lot better. It was easier to do the two laps. While he was walking his doctor came by and I could tell he was pleased to see Lee looking so much better and able to walk with more strength. He asked Lee how many walks were his goal for the day. Lee answered with 8 (EIGHT LAPS)! The doctor said he thought that was a reasonable goal.
So........10:00........................2 laps
12:00.......................2 laps
2:00........................2 laps
6:00........................2 laps
He met his goal for the day! Yeaaaaaaaaaaaaaaa!
I asked him later if he would like to convey a message on the blog and this is what he said:
"I want everyone to know that I will work very hard to reach the goals that are set for me!." And we know that he will.
Hope you enjoy the picture. Lee was sitting in his chair in front of the window. He has a good view of the hallway from this vantage point. One good thing about his room and all the rooms there is that all the doors have windows. He doesn't have to feel quite so isolated and can see what is on the other side of the door.
Monday or Tuesday will be an important day. The doctors will decide if Lee can begin to eat or if he needs to have the stomach feeding put directly into his stomach through another incision. We are hoping he can begin to eat. Please join me in prayer as we pray that Lee will not have to endure another procedure and that he will be able to begin his nourishment with table food. If, however, it is in his best interest to have the procedure then it is to be accepted.
More Later...................................................Brenda
There was time for a good bed bath, shampoo and good personal care this morning without interruptions. It was good to see Lee relaxed early this a.m. In fact, He was able to walk with just me by 10:00. His blood pressure was good and he felt a lot better. It was easier to do the two laps. While he was walking his doctor came by and I could tell he was pleased to see Lee looking so much better and able to walk with more strength. He asked Lee how many walks were his goal for the day. Lee answered with 8 (EIGHT LAPS)! The doctor said he thought that was a reasonable goal.
So........10:00........................2 laps
12:00.......................2 laps
2:00........................2 laps
6:00........................2 laps
He met his goal for the day! Yeaaaaaaaaaaaaaaa!
I asked him later if he would like to convey a message on the blog and this is what he said:
"I want everyone to know that I will work very hard to reach the goals that are set for me!." And we know that he will.
Hope you enjoy the picture. Lee was sitting in his chair in front of the window. He has a good view of the hallway from this vantage point. One good thing about his room and all the rooms there is that all the doors have windows. He doesn't have to feel quite so isolated and can see what is on the other side of the door.
Monday or Tuesday will be an important day. The doctors will decide if Lee can begin to eat or if he needs to have the stomach feeding put directly into his stomach through another incision. We are hoping he can begin to eat. Please join me in prayer as we pray that Lee will not have to endure another procedure and that he will be able to begin his nourishment with table food. If, however, it is in his best interest to have the procedure then it is to be accepted.
More Later...................................................Brenda
Friday, July 9, 2010
Fatigue with a capital F
For those of you who know Lee Kanipe, Fatigue is not part of his vocabulary, so when I tell you he says he is VERY TIRED............his fatigue must be exponential! Today was one of those days.
When I arrived shortly after 8:00 a.m. he was still sleeping peacefully in his bed. I crept slowly and quietly into the room and just sat in the chair beside his bed, hoping not to disturb him. I was able to sit and watch him breathe for 20 minutes. It was just amazing to watch him breath so normally and with NO oxygen! As I sat there I offered a prayer of thanksgiving for the gift of his lung. The lung is doing very well. It is his heart that is creating all the extreme feelings of no energy and his being very, very tired. This will improve with time, but it will be on the heart's time and cannot be rushed.
Once again he was awakened by the flurry of activity. Seems like everyone descends on him at precisely 9:00 each morning. Within a span of 15 minutes, three nurses had come in to begin their morning routines, the physical therapist announced that she would return in 5 minutes to go for his walk and the doctor entered to tell Lee that he would have to do another bronchoscopy after he finished his walk. All this and he is barely awake! Not to mention that no morning hygiene had been done. Nursing care has certainly changed since I was inducted into nursing eons ago. I must admit that it is with cautious restraint that I keep from jumping into my identity as a nurse. When an I.V. pump has continued beeping over 15 minutes I want to push the button that stops it.............especially after the light was turned on and I have gone to the desk to gently remind someone that the I.V. is out. Sometimes Lee must remind me that I do not need to make the bed, etc. I do help him with his personal hygiene as much as I can. Back in the "old days", personal hygiene, the bath and a clean fresh bed were the beginning of a day for patients. Today, it begins with whatever needs to be given or done at one's convenience. Oh well...........enough of that.....more to Lee.
He did have a rough morning. When the PT came to walk him, his blood pressure dropped out from under him and he just could not do it.............so back to the bed. This was followed by the bronchoscopy. That is so hard and tiring that it takes him about two hours to recoup. He was finally able to walk around 1:00 and then did 2 laps again @ 5:00 with me. I must say that the 5:00 walk was very good. He looked much stronger and better as he walked.
Monday will determine whether or not the stomach tube stays or goes........This week-end will be focusing on walking and getting stronger. Many cards came this evening and I can't wait to take them to Lee in the morning. THANK YOU SO MUCH! One of the highlights of the day was a visit from Doug and Elizabeth. Alex and Max had to wait in the hallway and boy was Grandaddy surprised when he was being returned from x-ray to see two little boys along the wall holding the signs they had made for their Grandaddy. Talk about a big smile from Lee! WOW! God's gift to us as we age....Grandchildren. More Later..........................................Brenda
When I arrived shortly after 8:00 a.m. he was still sleeping peacefully in his bed. I crept slowly and quietly into the room and just sat in the chair beside his bed, hoping not to disturb him. I was able to sit and watch him breathe for 20 minutes. It was just amazing to watch him breath so normally and with NO oxygen! As I sat there I offered a prayer of thanksgiving for the gift of his lung. The lung is doing very well. It is his heart that is creating all the extreme feelings of no energy and his being very, very tired. This will improve with time, but it will be on the heart's time and cannot be rushed.
Once again he was awakened by the flurry of activity. Seems like everyone descends on him at precisely 9:00 each morning. Within a span of 15 minutes, three nurses had come in to begin their morning routines, the physical therapist announced that she would return in 5 minutes to go for his walk and the doctor entered to tell Lee that he would have to do another bronchoscopy after he finished his walk. All this and he is barely awake! Not to mention that no morning hygiene had been done. Nursing care has certainly changed since I was inducted into nursing eons ago. I must admit that it is with cautious restraint that I keep from jumping into my identity as a nurse. When an I.V. pump has continued beeping over 15 minutes I want to push the button that stops it.............especially after the light was turned on and I have gone to the desk to gently remind someone that the I.V. is out. Sometimes Lee must remind me that I do not need to make the bed, etc. I do help him with his personal hygiene as much as I can. Back in the "old days", personal hygiene, the bath and a clean fresh bed were the beginning of a day for patients. Today, it begins with whatever needs to be given or done at one's convenience. Oh well...........enough of that.....more to Lee.
He did have a rough morning. When the PT came to walk him, his blood pressure dropped out from under him and he just could not do it.............so back to the bed. This was followed by the bronchoscopy. That is so hard and tiring that it takes him about two hours to recoup. He was finally able to walk around 1:00 and then did 2 laps again @ 5:00 with me. I must say that the 5:00 walk was very good. He looked much stronger and better as he walked.
Monday will determine whether or not the stomach tube stays or goes........This week-end will be focusing on walking and getting stronger. Many cards came this evening and I can't wait to take them to Lee in the morning. THANK YOU SO MUCH! One of the highlights of the day was a visit from Doug and Elizabeth. Alex and Max had to wait in the hallway and boy was Grandaddy surprised when he was being returned from x-ray to see two little boys along the wall holding the signs they had made for their Grandaddy. Talk about a big smile from Lee! WOW! God's gift to us as we age....Grandchildren. More Later..........................................Brenda
Thursday, July 8, 2010
Addition to today's Blog from Lee
Just got a call from Lee.............you know, the guy with the green tongue...........He just completed TWO complete laps..........that is over 600 feet! WOW! And.............the chest tube was removed. He sounded really upbeat. .....................Brenda
20 lap correction
Today I was able to talk to Lee's surgeon and I can say without hesitation and with correctness that Lee must walk 20 laps in A 24-HOUR period before he can leave the unit and come back to the condo. I was wrong about the 20 consecutive laps................that is what he will have to accomplish @ the Center for Living and will have six weeks to work on that. What a relief!!!
So.............how was today? Again, this morning was busy , busy, busy with workers from all different areas of the hospital. When I arrived, he was sitting up in bed and I was delighted to hear that he had a good night's sleep. He appeared more rested and his voice was stronger. It wasn't long after until the traffic began. First, the nurses came in and introduced one that was in training and would be working as a team for Lee. There was much activity with hanging of I.V's, meds and checking drainage tubes. Next, the physical therapist came and it was time for the walk. Lee had no sooner recovered from the walk when someone from x-ray department came to take him down for an x-ray. As soon as he returned, two workers with an ominus looking maching appeared and announced it was time to put a camera down his nose and make pictures of his swallowing mechanism.
At that point I was so tired just watching him get tired that I decided to opt out on that procedure. When I returned, I almost panicked when I saw how blue he was around his mouth. Being a nurse, my first impression was, "Oh, No, he is cyanotic!" A closer inspection revealed that his teeth were also blue! I then realized that a dye had been used during the procedure. After I settled my anxiety, I had him brush his teeth and rinse, rinse, rinse! He still has a now-green tongue but at least I know what it is. He just looks a little like a "smurf".
After a rest period of about an hour, it was time for another walk. His blood pressure was very low, but it was decided that he would still have to walk. As he began he was "light-headed" but seemed to improve as he walked. Near the end of the walk he asked to go back to his room. Unfortunately, he had gone into atrial fib again. After about 40 minutes he actually got back into a normal sinus rhythm but they gave him the medicine to regulate anyway.
His surgeon and one of the lung-transplant coordinators came in and he said that Lee could start taking thickened liquids all the time along with the stomach tube that is in for nutrition. He as been taking this with his medicine for the past two days. He also said the chest tube could be removed. Another leash unleashed!
I left earlier today because Doug arrived and will stay and help him walk two more times. I knew it was time for some relief and it was good to know he was there to help his Dad. I can rest easy away from him this evening.
Today was a better day..........................Still a long way to go but at least PROGRESS! Those prayers are working.............keep them coming!.................More later..........................Brenda
So.............how was today? Again, this morning was busy , busy, busy with workers from all different areas of the hospital. When I arrived, he was sitting up in bed and I was delighted to hear that he had a good night's sleep. He appeared more rested and his voice was stronger. It wasn't long after until the traffic began. First, the nurses came in and introduced one that was in training and would be working as a team for Lee. There was much activity with hanging of I.V's, meds and checking drainage tubes. Next, the physical therapist came and it was time for the walk. Lee had no sooner recovered from the walk when someone from x-ray department came to take him down for an x-ray. As soon as he returned, two workers with an ominus looking maching appeared and announced it was time to put a camera down his nose and make pictures of his swallowing mechanism.
At that point I was so tired just watching him get tired that I decided to opt out on that procedure. When I returned, I almost panicked when I saw how blue he was around his mouth. Being a nurse, my first impression was, "Oh, No, he is cyanotic!" A closer inspection revealed that his teeth were also blue! I then realized that a dye had been used during the procedure. After I settled my anxiety, I had him brush his teeth and rinse, rinse, rinse! He still has a now-green tongue but at least I know what it is. He just looks a little like a "smurf".
After a rest period of about an hour, it was time for another walk. His blood pressure was very low, but it was decided that he would still have to walk. As he began he was "light-headed" but seemed to improve as he walked. Near the end of the walk he asked to go back to his room. Unfortunately, he had gone into atrial fib again. After about 40 minutes he actually got back into a normal sinus rhythm but they gave him the medicine to regulate anyway.
His surgeon and one of the lung-transplant coordinators came in and he said that Lee could start taking thickened liquids all the time along with the stomach tube that is in for nutrition. He as been taking this with his medicine for the past two days. He also said the chest tube could be removed. Another leash unleashed!
I left earlier today because Doug arrived and will stay and help him walk two more times. I knew it was time for some relief and it was good to know he was there to help his Dad. I can rest easy away from him this evening.
Today was a better day..........................Still a long way to go but at least PROGRESS! Those prayers are working.............keep them coming!.................More later..........................Brenda
Wednesday, July 7, 2010
Goal Post Criteria
Found out today that Lee must walk 20 consecutive laps before he can leave this unit. Twenty laps equal a little over a mile. Today he walked a little over one lap three different times and will do another lap before bedtime. And he thought football was tough!
I arrived at the hospital around 8:15 and was surprised to find Lee having difficulty breathing. He had not been up to walk and when he returned from the bathroom around 11:00 he was in some respiratory distress. I called for the nurse and she in turn called for the doctor. Within a matter of minutes it was decided that they had to do a bronchoscopy. This is a very uncomfortable procedure. It is done in his bed with NO anesthesia except for some lidocaine (numbing) spray into the back of the throat. A bronchoscopy is a procedure where a small tube with a camera and suction is passed through the nose into the upper part of the lung (bronchus). They were able to visualize the bronchus and to suction and remove a mucous plug. After this he was able to breathe freely and with no difficulty. He said the procedure was very painful and extremely uncomfortable.
The morning was filled with educators such as the pharmacist, the diabetic teacher, the speech therapist, the physical therapist, and the post-lung coordinator. Each person required at least 30 minutes or more and Lee and I were to pay close attention. During this time, the nurse would enter intermittantly to hang more meds in the I.V. or add something to the stomach tube. The aide would enter for vital signs and urine calculations. Lee could not get any rest at all. He was sitting in the chair before and after the bronchoscopy.
Around 2:00 he finally had his first walk of the day and was able to go one round before becoming exhausted. He walked again @ 4:30 and once more @ 5:45. When I left him around 6:00 , he was ready to be left alone. I was exhaused from just watching what he had to do. I cannot begin to imagine the fatigue he was experiencing.
On a good note. Todd, Donna and the boys stopped by on their way home from the beach. It was a bright spot to Grandaddy as he was walking when he saw his two grandsons waving from the small waiting room. We were glad that the grandsons could see their Grandaddy from their vantage point.
Thanks you for all the cards that are arriving by the tens........Lee gives me a big smile when I tell him he has more cards! We ask for your prayers......this is a very challenging time now.....much harder on Lee than either of us had anticipated. Two major operations like this at one time has been very hard on Lee and for the very first time I have seen him discouraged. Pray that God will strengthen him and give him the endurance to walk, walk, walk.......................that will be the key to his success.......no walking will be a complete failure. Thank you for your prayers................More Later.........................Brenda
I arrived at the hospital around 8:15 and was surprised to find Lee having difficulty breathing. He had not been up to walk and when he returned from the bathroom around 11:00 he was in some respiratory distress. I called for the nurse and she in turn called for the doctor. Within a matter of minutes it was decided that they had to do a bronchoscopy. This is a very uncomfortable procedure. It is done in his bed with NO anesthesia except for some lidocaine (numbing) spray into the back of the throat. A bronchoscopy is a procedure where a small tube with a camera and suction is passed through the nose into the upper part of the lung (bronchus). They were able to visualize the bronchus and to suction and remove a mucous plug. After this he was able to breathe freely and with no difficulty. He said the procedure was very painful and extremely uncomfortable.
The morning was filled with educators such as the pharmacist, the diabetic teacher, the speech therapist, the physical therapist, and the post-lung coordinator. Each person required at least 30 minutes or more and Lee and I were to pay close attention. During this time, the nurse would enter intermittantly to hang more meds in the I.V. or add something to the stomach tube. The aide would enter for vital signs and urine calculations. Lee could not get any rest at all. He was sitting in the chair before and after the bronchoscopy.
Around 2:00 he finally had his first walk of the day and was able to go one round before becoming exhausted. He walked again @ 4:30 and once more @ 5:45. When I left him around 6:00 , he was ready to be left alone. I was exhaused from just watching what he had to do. I cannot begin to imagine the fatigue he was experiencing.
On a good note. Todd, Donna and the boys stopped by on their way home from the beach. It was a bright spot to Grandaddy as he was walking when he saw his two grandsons waving from the small waiting room. We were glad that the grandsons could see their Grandaddy from their vantage point.
Thanks you for all the cards that are arriving by the tens........Lee gives me a big smile when I tell him he has more cards! We ask for your prayers......this is a very challenging time now.....much harder on Lee than either of us had anticipated. Two major operations like this at one time has been very hard on Lee and for the very first time I have seen him discouraged. Pray that God will strengthen him and give him the endurance to walk, walk, walk.......................that will be the key to his success.......no walking will be a complete failure. Thank you for your prayers................More Later.........................Brenda
Tuesday, July 6, 2010
A different environment
Lee is going through the weaning process of having a nurse constantly @ his bedside, knowing that he was the only one being cared for, to having to share his nurse with two to three other patients. Quite a difference! He is now getting out of bed or out of the chair to walk to the bathroom. Even though he is still connected to I.V.'s , a chest tube to drainage, feeding line, antibiotics etc... he now has to assume more independence. I have learned that he now needs me to be there for most of the day. As long as he was in the ICU I was mostly in the way when I visited. Now I need to be there to help him. My plan now is to make sure I am there by 8:30 and stay until around 5:30. These are the hours when he needs the most help. He usually walks around 8:00, 1:00, 5:00 and again around 9:00.
Lee walked 300 feet three times today and will walk again @ 9:00. He is expected to eventually walk 1200 feet with no rest. That, along with other determining factors will be the criteria for his discharge from the unit. We were visited by his surgeon today along with a long visit with the transplant discharge coordinator. She reiterated pretty much what I wrote on my blog yesterday. She emphasized that the next three months were the most critical months when Lee has to be monitored (by me) for any signs of rejection. She was very specific about all the stats that must be checked and recorded along with all the medications that must be given @ specific times. He will have his pic line in for a long time, determined by one of his I.V. meds that is used in case of rejection symptoms.
She did tell us (after learning that we lived in a rural area and that Lee is a farmer) that the highest rejection rates which are usually due to fungus infection has to date been from lung recipients who have lived in rural areas or were on farms. That is where you find the highest incidence of fungi counts along with a host of other infectious agents. Pretty Scary stuff. This was hard for Lee to hear considering this IS his lifestyle. Going to church is another issue. We were advised to consider times when the church is LESS crowded and to not be in small rooms with lots of people............that too is hard for us to hear.
Lee has been through so much during the past seven months that we will have to work with him to ensure that his exposure is very small and limited. I would hate to see him come this far and lose everything over something we all consider simple but to him it is catastrophic.
To some, I may sound like a "doomsday prophet" but I am only being an advocate for Lee. I have witnessed on a daily basis the suffering he has had to endure. I pray that I, along with everyone else, will be able to help him enjoy the life he has been given through the gift that was given from a family who lost the life of one they loved. More Later..............................Brenda
Lee walked 300 feet three times today and will walk again @ 9:00. He is expected to eventually walk 1200 feet with no rest. That, along with other determining factors will be the criteria for his discharge from the unit. We were visited by his surgeon today along with a long visit with the transplant discharge coordinator. She reiterated pretty much what I wrote on my blog yesterday. She emphasized that the next three months were the most critical months when Lee has to be monitored (by me) for any signs of rejection. She was very specific about all the stats that must be checked and recorded along with all the medications that must be given @ specific times. He will have his pic line in for a long time, determined by one of his I.V. meds that is used in case of rejection symptoms.
She did tell us (after learning that we lived in a rural area and that Lee is a farmer) that the highest rejection rates which are usually due to fungus infection has to date been from lung recipients who have lived in rural areas or were on farms. That is where you find the highest incidence of fungi counts along with a host of other infectious agents. Pretty Scary stuff. This was hard for Lee to hear considering this IS his lifestyle. Going to church is another issue. We were advised to consider times when the church is LESS crowded and to not be in small rooms with lots of people............that too is hard for us to hear.
Lee has been through so much during the past seven months that we will have to work with him to ensure that his exposure is very small and limited. I would hate to see him come this far and lose everything over something we all consider simple but to him it is catastrophic.
To some, I may sound like a "doomsday prophet" but I am only being an advocate for Lee. I have witnessed on a daily basis the suffering he has had to endure. I pray that I, along with everyone else, will be able to help him enjoy the life he has been given through the gift that was given from a family who lost the life of one they loved. More Later..............................Brenda
Monday, July 5, 2010
STEP-DOWN
Today Lee was transferred to the step-down unit. This is still an intensive care unit but the difference is that he will not have one on one nursing. It will be more like 1:3. He is still connected to monotoring for his heart and his oxygen and he is still receiving tube feedings. They started today having him swallow a couple of his pills with a small amount of thickened juice. He will have thickened liquids gradually until he will eventually get to have the stomach tube removed. That will not happen quickly though, this could go on for several more weeks. He walked 200 feet again today and the goal will be to make four rounds in that area before he will be moved here. We anticipate that he will be in that unit one to two weeks. Visitors are still limited to short periods and family only. No children under the age of 12 are allowed in that area.
I know that many of you would like to visit with Lee and we both look forward to the time when that will be done eventually. I want you to understand and to realize that visits should be planned prior to coming. When he gets back to the condo, visits must be limited and no more that 2 or 3 for short periods of time. He still tires easily and as he gets stronger I am sure he will welcome more visits. He has come a long way and we are still in the first critical 30-day period when he is being carefully monitored for primary lung rejection. We will have to take many precautions to prevent anything that might contribute to that condition. We will be asking you to do the following:
1. Call and schedule a visit after the 30 day critical period
2. Be prepared to use hand sanitizer
3. You may be asked to wear a mask
4. Limit your visit to 20 - 30 minutes , depending on how many visits he has that day
Our condo is very small and we have been advised to keep the number of people in one area to no more that 2-3 persons @ one time. Whenever he returns to the condo, his mornings will be busy with medications and home health care. There will be weekly scheduled visits to the clinic for blood tests, chest x-rays and a doctor visit. Bronchoscopies will be done frequently. He will also be reevaluated for the Center for the Living and rehabilitation will begin five days a week for 23 sessions, and these will be from 12:30 -4:00. As you can see, his week-days will be full.
I want to thank you for being understanding and cooperative during the next critical months of Lee's recovery. We just have to remember that he is on medications that lower his immune system to keep him from rejecting the lung but it also makes him extremely susepticle to any other germ or organism. Lee is a very personable person and has always been comfortable with displaying affection, especially with our children and grandchildren. Hugs and kisses have to be given from a distance for the time being, so we are teaching our kids to blow kisses and let Grandaddy know how much they love him in some different ways.
More Later..................................Brenda
I know that many of you would like to visit with Lee and we both look forward to the time when that will be done eventually. I want you to understand and to realize that visits should be planned prior to coming. When he gets back to the condo, visits must be limited and no more that 2 or 3 for short periods of time. He still tires easily and as he gets stronger I am sure he will welcome more visits. He has come a long way and we are still in the first critical 30-day period when he is being carefully monitored for primary lung rejection. We will have to take many precautions to prevent anything that might contribute to that condition. We will be asking you to do the following:
1. Call and schedule a visit after the 30 day critical period
2. Be prepared to use hand sanitizer
3. You may be asked to wear a mask
4. Limit your visit to 20 - 30 minutes , depending on how many visits he has that day
Our condo is very small and we have been advised to keep the number of people in one area to no more that 2-3 persons @ one time. Whenever he returns to the condo, his mornings will be busy with medications and home health care. There will be weekly scheduled visits to the clinic for blood tests, chest x-rays and a doctor visit. Bronchoscopies will be done frequently. He will also be reevaluated for the Center for the Living and rehabilitation will begin five days a week for 23 sessions, and these will be from 12:30 -4:00. As you can see, his week-days will be full.
I want to thank you for being understanding and cooperative during the next critical months of Lee's recovery. We just have to remember that he is on medications that lower his immune system to keep him from rejecting the lung but it also makes him extremely susepticle to any other germ or organism. Lee is a very personable person and has always been comfortable with displaying affection, especially with our children and grandchildren. Hugs and kisses have to be given from a distance for the time being, so we are teaching our kids to blow kisses and let Grandaddy know how much they love him in some different ways.
More Later..................................Brenda
Sunday, July 4, 2010
Oops!
Forgot to mention that my grandson, John was also here for the fourth of July celebration. I know he reads my blog and don't want him to think I missed him........just a typo and could not get back into blog to correct!
TURN LEFT
Today Lee had a new physical therapist. He had walked earlier this a.m. with a therapist that he was familiar with and with that one he had become accustomed to leaving his room and turning right down a small hallway that was approximately 50-60 feet long. With the new therapist he was told to "Turn Left". In case you are wondering why this is being emphasized, it is because this hallway is at least 200 feet long and Lee was being encouraged to complete the entire length. I followed along with the chair and sure enough, when he had gone about 75 feet he had to sit. This continued on with two more intervals of rest, but he did complete the long walk of 200 feet!
After the walk he went to bed and had to have something for pain and a little oxygen. His heart did go into an arrythmia but the nurse quickly corrected it to a normal sinus rhythm with medication. To date, he has not had to be shocked for Atrial Fib in the past three days. If he has a good night after another long walk, he may get to step-down into the next unit where the concentration will be on walking and endurance.
Good news is that the wires and tubes are about half gone and as they diminish in numbers he will have more freedom to move around. Right now he is still "Wired". Lee's spirits have been much better these past two days and he was delighted with all the cards I took him today. He read every word on each card and every written note. Thank you for helping to lift his spirits!
A great surprise for me today was a visit from Lee Jr. , Jennifer and Laura. All of us, along with my brother, Dennis and wife Betsy, Neice Genice and husband Roger gathered under the gazebo beside the pool for sub sandwiches and homemade peach ice cream. If only Lee could have joined us! With time, he will and we will maybe have either my birthday or a Labor Day celebration! He was missed by all!
Doug was here yesterday and earlier today with gifts for me from Elizabeth and an album of pictures of his boys for both of us. So many treasures from our children and family. We are truly blessed. Lee Jr., Jennifer and children are staying in an apartment here @ Duke Tower for the night. That is what is so good about staying here. One can rent a furnished apartment for one day if needed and the price is great. In addition, there is a great pool and the courtyard is conducive for family gatherings. There are several gatherings here this evening as I write. Truly lots of festivities for the fourth of July.
Thank you again for your cards and all your prayers. I look forward to the time when we can once again be home with our family and friends. Love to all..................More Later....................Brenda
After the walk he went to bed and had to have something for pain and a little oxygen. His heart did go into an arrythmia but the nurse quickly corrected it to a normal sinus rhythm with medication. To date, he has not had to be shocked for Atrial Fib in the past three days. If he has a good night after another long walk, he may get to step-down into the next unit where the concentration will be on walking and endurance.
Good news is that the wires and tubes are about half gone and as they diminish in numbers he will have more freedom to move around. Right now he is still "Wired". Lee's spirits have been much better these past two days and he was delighted with all the cards I took him today. He read every word on each card and every written note. Thank you for helping to lift his spirits!
A great surprise for me today was a visit from Lee Jr. , Jennifer and Laura. All of us, along with my brother, Dennis and wife Betsy, Neice Genice and husband Roger gathered under the gazebo beside the pool for sub sandwiches and homemade peach ice cream. If only Lee could have joined us! With time, he will and we will maybe have either my birthday or a Labor Day celebration! He was missed by all!
Doug was here yesterday and earlier today with gifts for me from Elizabeth and an album of pictures of his boys for both of us. So many treasures from our children and family. We are truly blessed. Lee Jr., Jennifer and children are staying in an apartment here @ Duke Tower for the night. That is what is so good about staying here. One can rent a furnished apartment for one day if needed and the price is great. In addition, there is a great pool and the courtyard is conducive for family gatherings. There are several gatherings here this evening as I write. Truly lots of festivities for the fourth of July.
Thank you again for your cards and all your prayers. I look forward to the time when we can once again be home with our family and friends. Love to all..................More Later....................Brenda
Saturday, July 3, 2010
ONE STEP AT A TIME
I suppose "One step at a time" is our mantra now. Lee is definitely taking it seriously. Today he walked twice in the hallway and each time he walks he moves further along with more steps. He can now walk to the nurses station and beyond. This is usually a total of about 60 feet. You should see all the paraphanalia it takes to keep him moving! Everything that he is still connected to goes right along with him down the hallway. These nurses have it down to a fine art. The entire monitoring system is removed from the stationary one and becomes a portable that is hung onto the swedish walker he uses when he walks. He literally looks like a project from Frankenstien's lab. He is walking while connected to his chest tube, foley catheter bag & tubing, pic-line with all 6 connections in one arm and another I.V. line with 6 connections in the other. There are also the I.V. bags that are carried along in addition to the tube feeding that has become a part of his nose at the moment. ( Hopefully this will be removed Mon. or Tues.) Hard to believe that about half of his connections have already been removed! A family member follows along behind in a wheeling chair just in case he has a problem and needs to sit. This is no ordinary small chair, this is a rolling recliner! From this description you can just imagine that we make quite the parade!
Lee did all this very well today! His blood pressure remained stable and his heart did not get out of rhythm. It has now been over 72 hours since he has had Atrial Fib. He recovered very quickly. Each time he walks he will get stronger and stronger. He continues to have pain but the nurses are very good about seeing that he is relieved of his discomfort. Usually after the walk, he will sit up in the chair for a couple of hours and if he becomes too uncomfortable the pain medication is given so he can rest a while.
Isn't it wonderful to know that all this activity is with NO oxygen!? The lung is still functioning beautifully. Just need to keep the heart strong.
Today was such a beautiful day in Durham. Doug stayed all day with his Dad and my brother Dennis took me through Duke Gardens and we enjoyed a picnic by the water. It was a good respite for me. I want to thank you for responding with comments and for all the wonderful cards you sent to Lee. You are great BLOG followers! Thank you for your prayers and all your love.........more later........Brenda
Lee did all this very well today! His blood pressure remained stable and his heart did not get out of rhythm. It has now been over 72 hours since he has had Atrial Fib. He recovered very quickly. Each time he walks he will get stronger and stronger. He continues to have pain but the nurses are very good about seeing that he is relieved of his discomfort. Usually after the walk, he will sit up in the chair for a couple of hours and if he becomes too uncomfortable the pain medication is given so he can rest a while.
Isn't it wonderful to know that all this activity is with NO oxygen!? The lung is still functioning beautifully. Just need to keep the heart strong.
Today was such a beautiful day in Durham. Doug stayed all day with his Dad and my brother Dennis took me through Duke Gardens and we enjoyed a picnic by the water. It was a good respite for me. I want to thank you for responding with comments and for all the wonderful cards you sent to Lee. You are great BLOG followers! Thank you for your prayers and all your love.........more later........Brenda
Friday, July 2, 2010
A BETTER DAY
I suppose you could say a better day for both of us. Lee looked so good when I saw him this morning. He was also ready for a shave and the toothbrush! Someone had washed and combed his hair earlier and it was so fluffy it almost looked like a wig or an Einstein look......I said perhaps some of the medicine was causing new hair growth! Anyway, after I combed it, he looked more like himself and seemed to be doing better in general.
He continues to have blood pressure problems and it appears to be orthostatic in that it drops whenever he changes from sitting to standing. While he is sitting his blood pressure may be 130/70 and as soon as he stands it drops to 50 or 60/?......so low that he can lose consciousness. The good thing is that today he was able to sit and stand and did not lose consiousness. His BP still drops, but not as low.
He had to have a unit of blood today because his Hematocrit was 43 (normal =48). I asked if they thought he had some bleeding and the answer was no, just all the surgery he has had. During and immediately after surgery he had been given 4 units of blood, 4 units of plasma and 1 unit of packed cells. Today was the first time for another transfusion since then. So far he has not had atrial fib. in the past 48 hours. That is good! I need to tell you that atrial fib happens in about 30 to 40 % of CABG (coronary artery bypass grafts), especially past 65. We are hoping that the atrial fib is finally under control.
Found out today where his grafts are in his heart. One graft taken from the mammary artery is connected to the left carotid and bypasses the blockage on the left descending artery. The other graft is from the left femoral vein and bypasses the right coronary artery. I don't know how I will ever be able to keep up with him once we get home............he now has new knees, a new shoulder, a new lung and now a rebuilt heart. He will be a hard man to keep down! Truly the Bionic man!
Seriously, he has had a better day and when he has a better day, I have a better day. Please feel free to leave comments to Lee. He loves to hear from you. More Later...........................Brenda
He continues to have blood pressure problems and it appears to be orthostatic in that it drops whenever he changes from sitting to standing. While he is sitting his blood pressure may be 130/70 and as soon as he stands it drops to 50 or 60/?......so low that he can lose consciousness. The good thing is that today he was able to sit and stand and did not lose consiousness. His BP still drops, but not as low.
He had to have a unit of blood today because his Hematocrit was 43 (normal =48). I asked if they thought he had some bleeding and the answer was no, just all the surgery he has had. During and immediately after surgery he had been given 4 units of blood, 4 units of plasma and 1 unit of packed cells. Today was the first time for another transfusion since then. So far he has not had atrial fib. in the past 48 hours. That is good! I need to tell you that atrial fib happens in about 30 to 40 % of CABG (coronary artery bypass grafts), especially past 65. We are hoping that the atrial fib is finally under control.
Found out today where his grafts are in his heart. One graft taken from the mammary artery is connected to the left carotid and bypasses the blockage on the left descending artery. The other graft is from the left femoral vein and bypasses the right coronary artery. I don't know how I will ever be able to keep up with him once we get home............he now has new knees, a new shoulder, a new lung and now a rebuilt heart. He will be a hard man to keep down! Truly the Bionic man!
Seriously, he has had a better day and when he has a better day, I have a better day. Please feel free to leave comments to Lee. He loves to hear from you. More Later...........................Brenda
Thursday, July 1, 2010
R & R DAY
You know what happens the day after a marathon?! You must recuperate and regroup. That is what Lee has had to do today. All that walking took the "wind out of his sails" yesterday. When I left him about an hour after the walk, unfortunately he went into atrial fib again and had to be shocked. The decision for today was to slow down a bit, just get him up to the chair and eliminate the walk. When I got there at 12:00, he had been in the chair since about 10:00. At 1:00, they decided to get him out of the chair and have him take several steps to the bed. There were two small nurses helping him, holding him under each arm. I was handed something to hang to hold. I heard him say "Please hurry" and the next thing we knew, the BP dropped out from under him and his knees buckled to the floor. The nurses held on and were able to get him back into the bed. He was out for a few seconds, but did not go into atrial fib and his blood pressure quickly recovered when he was lying flat. WHEW!!!!
As you can see, each day and each part of the day can be very different. His condition is stable most of the time but can still rapidly go into an unstable situation. That is why he is still in the critical intensive care unit and has not been allowed to step-down into the intensive care that focuses on walking at this time.
I want you to know that he appears very discouraged at this time because he has not progressed as fast as he had anticipated. He continues to have some pain and had to have some medication for that today. I reminded him that he moved ahead so quickly prior to surgery that he is still ahead of the game. He has plenty of time to get over the operative procedures and time to allow his heart to adjust to all the trauma to his body. His lung is functioning beautifully. He does not need any oxygen. They do, however put the nasal cannula in when they get him up to hopefully prevent the faint. Usually it is only 0.5-1 liter. Very little!
Lee loves to receive mail, card, ets.....I am asking that you continue to send some cards. He really enjoys that and it always brings a smile to his face when he gets them. He doesn't get many now and I'm hoping my blog has not caused that to happen. Please send to:
Duke Tower Condos
807 W Trinity Avenue
Durham, N. C. 27701
He needs cheering up right now and I know I can count on all of you to help with that. Thank you again for your loyalty , your prayers and your committment to both of us during this difficult time in our lives.
More Later.................................Brenda
As you can see, each day and each part of the day can be very different. His condition is stable most of the time but can still rapidly go into an unstable situation. That is why he is still in the critical intensive care unit and has not been allowed to step-down into the intensive care that focuses on walking at this time.
I want you to know that he appears very discouraged at this time because he has not progressed as fast as he had anticipated. He continues to have some pain and had to have some medication for that today. I reminded him that he moved ahead so quickly prior to surgery that he is still ahead of the game. He has plenty of time to get over the operative procedures and time to allow his heart to adjust to all the trauma to his body. His lung is functioning beautifully. He does not need any oxygen. They do, however put the nasal cannula in when they get him up to hopefully prevent the faint. Usually it is only 0.5-1 liter. Very little!
Lee loves to receive mail, card, ets.....I am asking that you continue to send some cards. He really enjoys that and it always brings a smile to his face when he gets them. He doesn't get many now and I'm hoping my blog has not caused that to happen. Please send to:
Duke Tower Condos
807 W Trinity Avenue
Durham, N. C. 27701
He needs cheering up right now and I know I can count on all of you to help with that. Thank you again for your loyalty , your prayers and your committment to both of us during this difficult time in our lives.
More Later.................................Brenda
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